Hi. I'm having the exact same problems with my daughter who's 4. I honestly don't know where to turn. She is my youngest of 3 children. Back and forth to the doctors in over 18 months. Last Dec they said asthma but can't diagnose her because of her age. She has lumps in her neck, armpits and groin and last night I found one in her shoulder. She has a persistent cough, bloods showed up slight anemia, she has very bad night sweats, pale with flushed cheeks, tired a lot of the time when having 12-14 hrs sleep a night, she's now struggling to swallow at times and for over a year been waking up saying her throat is hurting. Her tonsils are huge too. The night sweats wake her up and so does the coughing. She also gets belly pains. She is under the hospital so has had bloods done, a chest X-ray and an ultrasound which showed small lymph nodes In her belly. She has also started itching and has a small rash that comes and goes on her face. My gut is honestly aching that something is wrong. I am currently waiting for a call back from the gp as I phoned telling them about the new lump in her shoulder. 
 

much love from one worried mum to another x

Hi ya...

That sounds horendious... oh my, no wonder your pulling your hair out .. that's not right, no mater how you look at it .. I wish I had a path that would help.. but if it were me, I'd call McMillan and ask for medical advice .. I would complain officially to the N H S  ... I'd write a copy of this letter to my M P though trouble there is the middle of an election .. but I did that once and got the help of my M P ..  

ASK those Drs what they would do if this was their child .. I'm afraid it's gonna take getting tough to get them to listen ..  I can't believe they've not taken her in for observation to see for their selfs ..

Get as much info as you can ... write down a daily log of everything .. good or bad .. and give them a copy ...  good luck ...  sending you a vertual hug... Chrissie xx

Hi ya...

That sounds horendious... oh my, no wonder your pulling your hair out .. that's not right, no mater how you look at it .. I wish I had a path that would help.. but if it were me, I'd call McMillan and ask for medical advice .. I would complain officially to the N H S  ... I'd write a copy of this letter to my M P though trouble there is the middle of an election .. but I did that once and got the help of my M P ..  

ASK those Drs what they would do if this was their child .. I'm afraid it's gonna take getting tough to get them to listen ..  I can't believe they've not taken her in for observation to see for their selfs ..

Get as much info as you can ... write down a daily log of everything .. good or bad .. and give them a copy ...  good luck ...  sending you a vertual hug... Chrissie xx

Just got back from the doctors and I actually feel like someone is listening to what I'm saying. Dr said he totally gets what I'm saying and understands why I think she has lymphoma. He thinks it could be something from the same family as glandular fever so more bloods have to be done to rule that out and another chest X-ray. If it isn't what the doctor thinks then his words 'we will nail it once and for all'. So hopefully soon enough we gets some answers x