Possible prostate cancer - "2 week wait" - psa level 12 -

On 31st May this year I went to A and E with acute urine retention. They installed a catheter and did blood and urine analysis. My urine was clear but the blood test revealed a psa level of 12, though I was told at the time that my blood results were "normal" and I accepted that. I was then sent home. 2 weeks later I failed a "voiding trial", so had to have another catheter installed. Six and a half weeks later, on 30th July I saw a consultant who did a DRE which found nothing on the side of the prostate he could access. He informed me about the psa level from my first blood check on 31/5 - eight and a half weeks earlier.  Further blood and urine analysis on 30th July indicated a urine infection (catheters are an absolute curse) and a psa level of 18 probably partly raised because of the infection. A week or so later my next appointment with the consultant was made for the end of December - this year!  However, that appointment has since been brought forward to 24/9 thankfully, all of which means that 14 weeks after my psa levels were found to be 12 (not particularly high, but above the level where actions should be initiated I suspect) I still don't know if I have prostate cancer and I won't know either way until at least sixteen and a half weeks have passed.  All the while, I was thinking that things were moving along at a reasonable pace (though an indwelling catheter hits quality of life really hard if you're normally very active) until I came across refs to the "2 week wait" rule in this forum and elsewhere today??. Have I been missing out?? Has someone been dragging their feet, or is this kind of delay just par for the course? I'm 64.  Any info would be gratefully received. Thanks in advance. 

  • Hello weeboatguy, 

    Poor you it sounds like you have been through quite a lot recently and I hope you will get some definite answers soon. As you say, living with a catheter when you are reasonably active must be rather frustrating and I hope you don't need to wait long now. It might be worth giving them a call and asking how long you should have to wait for in your particular circumstances. 

    Our nurses are also available on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm if you would like to talk things through with them. 

    I hope you will also hear from some of our members who have been in this position before and that they will come along soon and share their story with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Hi weeboatguy. Welcome to the forum.

    I am not a doctor; however, I did have a radical prostatectomy back in 2010 for early prostate cancer. 

    PSA is not a reliable test for prostate cancer, and given the amount of manipulation your poor lower urinary tract has received over the last months, it's not surprising that it's higher than normal.  I doubt that your PSA was ignored; it was more likely put lower down the list of priorities.  The thing about prostate cancer is that it is almost always slow growing and lethargic - that's if it's there at all. It's very rare that a delay in treatment makes any difference in final outcome. 

    All that said, of course it now has to be investigated.  You'll probably be given a prostate biopsy and an MRI scan, maybe other tests.  These can be given in any order, and you may find more tests are added later on.  Whatever you do, DON'T PANIC!  Adding later tests is quite normal, and it doesn't mean that the early tests have found anything to worry about.  But, if it turns out you do have prostate cancer, then again don't panic.  There's quite a few of us here already, and we can hold your hand through whatever happens next. 

  • Much thanks for that Lucie. I'm optimistic that my next appointment with the Consultant will lead to progress.  Kind regards. 

    jim 

  • Thanks for that telemando. You're absolutely right about the threat that prostate cancer poses. The 10 year survival rates are very high.  And PSA levels are, as you say at best only a rough guide. It was the unexpected encounter with the phrase "two week wait rule" that had me wondering about what the standard approach was, as I seemed to have missed that particular boat by some margin, and had me seeking information about it on here. The truth is that I'm actually much more concerned about becoming catheter free as soon as possible. As medication hasn't yet solved that problem, and doesn't look likely to, a TURP is the solution I'm hoping for - asap.  Many thanks for the information, insight and positive attitude. Glad to see you're still going strong 9 years on from your radical prostatectomy.

    jim