Waiting for Diagnosis complex ovarian cyst

On the 28th May I had an ultrasound scan which showed that I had abnormal uterus on the left and my right ovary had a mass which measured 4.75cm in diameter. I was referred to the gynea team for further tests and an appointments was made for 14th November.  

On 29th May I was admitted to hospital as I was  bleeding from the bowel and had severe pain in the lower abdomen. I was treated for my colitis flare up as I have ulcerative colitis and painful bladder syndrome.  The doctor asked about my periods as they had seen the ultrasound  I explained I am having a lot of problems and my symptoms are irregular bleeding,  constipation,  diarrhoea , water infections,  period clotting, severe abdominal pain,  extreme fatigue and period lasting much longer than normal.  This has been going on for approx 12 months.

My bowel consultant ordered a CT scan which I had on the 7th June.  The results showed that the mass had grown a further 2cm diameter and that there was a solid characteristics. He paged the gynea team to come and see me right away to discuss what it meant. 

The gynea consultant explained that it had changed from a simple mass to a complex mass and that i  am going to need surgery and require a mri scan of my pelvis. I was discharged from hospital and sent home with morphine for the pain and was told that I would be seen within 4 weeks.

Is this normal? I am going out of my mind and I know I shouldn't but can't stop researching . 

How was you diagnosed and how quickly was you seen?

Lorraine xx

Parents
  • Hello, 

    Just had an ultrasound and found an adnexal mass, mainly cystic with solid components. Appearance suggestive of malignancy.

    I will be referred to the Gynecology, but I'll probably die of anxiety before. Can't sleep, can't eat, can't stop crying.

    I don't know how people cope with this waiting. It's killing me.

  • I know exactly how you feel! I've been diagnosed with right multilioculated adnexal 7cm cyst. I am terrified. Had a scan and was sent straight to a gynaecologist a day later. They done blood work C125 to check tumour markers. I have to hide away from my family as all I keep doi is crying. They warned me that they don't know what it is and could be cancer. I have muscular dystrophy and type two respiratory failure - how the hell am I going to cope with treatment if it is the worst case scenario. I am anxious. Scared. Lonely. I get my results on Friday.  

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  • I know exactly how you feel! I've been diagnosed with right multilioculated adnexal 7cm cyst. I am terrified. Had a scan and was sent straight to a gynaecologist a day later. They done blood work C125 to check tumour markers. I have to hide away from my family as all I keep doi is crying. They warned me that they don't know what it is and could be cancer. I have muscular dystrophy and type two respiratory failure - how the hell am I going to cope with treatment if it is the worst case scenario. I am anxious. Scared. Lonely. I get my results on Friday.  

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