Hello Luc50,

I'm in a similar boat.  I am 52.  Hadn't had a period for 18 months, then had bleeding.  Went for an ultrasound and also had a hysteroscopy at the same appointment.  The ultrasound detected the thickness of my uterine lining was at 8mm.  The hysteroscopy showed fibroids.  They took a biopsy and I was told I would get the results in 1-2 weeks time.  It's 2 weeks today and after ringing I was told they have a backlog of typing and so no letter has gone out and they can't give me any information as yet.  My bleeding stopped just under a week ago so I'm pleased about that but the waiting game is tough.  Without having the bleeding, I have been able to forget about things a bit but on the whole have had a pretty rubbish few first weeks with dark thoughts and lots of crying.  I'm now trying to carry on with a positive attitude as there's not much I can do until I get some results.  It is very worrying but in the meantime I keep trying to keep myself informed so that when I get to talk to someone medical, I will at least understand what they're talking about.  I have also started to eat better and tried to lose weight - have lost half a stone in the last two weeks - as I understand that oestrogen excess can be caused by being overweight.  Have you had a hysteroscopy?  Not a pleasant experience!  If you haven't yet, and you have to have one, I only read after having had mine that it helps to take a couple of paracetemol before you have it!  And make sure you have someone who can drive you home afterwards!  I'm presuming that if my biopsy shows that it's got abnormal cells, then I'll be heading for a hysterectomy but if they're not abnormal, it'll be hormone treatment first.  Seems like you've had a different suggestion as to what happens next with your treatment but I would have thought they'd have to see the results of your biopsy before recommending a hysterectomy.  Or maybe they mean a hysteroscopy (the camera) first rather than a hysterectomy?  Anyway, I wish you all the best and to hear from you again.:)

Ho ladies.

I've been down this route and believe me the waiting is by far the worst. Once you know what you’re dealing with, whatever that is, it is much easier. I was diagnosed with endometrial cancer in April 2018, had a hysterectomy, further surgery for removal of lymph nodes and three sessions of internal radiotherapy. I got my all clear in April of this year and am on regular checks now. 

Just to say if you have  any questions now or in the future just ask and I’ll be happy to answer them based on my experience.

Sending a virtual squeeze from my hand to yours.

Sundial

I am so sorry to hear your news. That's going to take a bit of processing. 

In your original post you said you had a hysteroscopy, but you did say what prompted this. What symptoms did you have that resulted in going for it?

What happens next for you now? Thanks so much for sharing.  Here for you. Stay strong  

Sorry honey, just noticing what you've replied to others. 

Take care, stay positive, we're all here for you x

Thank you going to speak to my doctor today as I didn't take in much yesterday from the call from the hospital.Just need to know how they will deal with it I will keep in touch and best of luck with your treatment.

Hi

This is start to finish lol before being told I had cancer.

April 2020 breathless and dizzy many tests done on lungs nothing showed skip to October Dr decided should do full blood count. My haemoglobin was so slow ended up with 3 blood transfusions it was then Drs decided I must have an internal bleed so was put on 2 wk cancer pathway. Went through bowel tests precancerous growth removed. Had 2 occasions of blood on toilet roll. The next test was scan I had a thickening of lining of womb 12 so hysteroscopy was booked 4.5wks ago a biopsy was taken from womb a polyp was also found they could not remove it as I take warfarin hence just biopsy. Skip 4.5wks I receive call from hospital to go in yest and that is when told Cancer they would normally do an MRI but can’t do it as I have a mechanical heart valve (5yrs ago went through open heart surgery) so they are arranging another scan. Then getting heart scans to make sure ok for the operation then from there decide if chemo required. my feelings are you could crack up go to pieces etc but don’t it won’t help try be strong say you will beat it I know because that’s what I will do just like I did previous with my heart. If you need to know about the tests anything just ask me. Trust me the waiting is the worst bit you get the diagnosis. And then you must deal with it.  

Hi 

I hope you got on ok with Doc it’s difficult but stay positive like me you will beat this Keep me updated please 

Hi Flo25

Got my appointment date with consultant gynaecologist on 24th May to discuss results of internal scan last week.  Been told I may have a hysteroscopy procedure at same time.  Like you, just waiting now to see what they think caused the bleed ??  Have you had a scan or anything done yet?  Xx

Hi

Feeling a bit better after chatting to doctor who reassured me I did the right thing reporting the bleeding straight away.Had my CT scan today and now just the wait for results.

Hi Murf, You're further ahead than me. I've had nothing yet. Haven't seen anyone. Spoke to my GP last Monday, 10th, and referred to hospital. My appointment at the gynaecology dept is the 26th May. Just a waiting game. Trying not to worry. Good luck. Keep in touch x

Hi

Soz to bother you what has happened since you were diagnosed? I am slightly concerned after my diagnosis last week I was told I would get a scan then go to get everything checked before hysterectomy. But this morning got call to say to go to hosp next Friday! I asked if I would get results of test scan, she said they would discuss that and my treatment plan for going forward!! And I could bring someone with me??!! Have you been told this? I was ok with it up to this point. Thanks for reading hope ur ok.

Hi

Sorry you are getting anxious about your appointment.I know each time my phone rings With the hospital number I feel so anxious.

I had the results of my biopsy last Thursday by phone from the specialist doing the hysteroscopy who said I needed further tests ie Ct scan and MRI which I had done Monday and Tuesday of this week.She told me at the time that it had come back as a malignancy.

This morning I was given an appointment for next Thursday to see a gynaecology/oncology consultant at the hospital.Then just now between reading your post and replying I was phoned by the same specialist who did the biopsy just to bring me up to date as she had sent me for the further tests.She said I had been discussed at the MDT meeting and it looked like it was contained in the womb.She said the consultant would discuss what happens next and "I could bring someone with me"

At this point I also panicked and said good god is that because I might get bad news.She reassured me that they say that to everyone as it's always a worrying time and helps to just have someone with you to take everything in.

I hope that stops you worrying unnecessarily.

Take care and hope everything goes well for you.

Hi

Sorry you are getting anxious about your appointment.I know each time my phone rings With the hospital number I feel so anxious.

I had the results of my biopsy last Thursday by phone from the specialist doing the hysteroscopy who said I needed further tests ie Ct scan and MRI which I had done Monday and Tuesday of this week.She told me at the time that it had come back as a malignancy.

This morning I was given an appointment for next Thursday to see a gynaecology/oncology consultant at the hospital.Then just now between reading your post and replying I was phoned by the same specialist who did the biopsy just to bring me up to date as she had sent me for the further tests.She said I had been discussed at the MDT meeting and it looked like it was contained in the womb.She said the consultant would discuss what happens next and "I could bring someone with me"

At this point I also panicked and said good god is that because I might get bad news.She reassured me that they say that to everyone as it's always a worrying time and helps to just have someone with you to take everything in.

I hope that stops you worrying unnecessarily.

Take care and hope everything goes well for you.

Hi

thank you for replying. That has eased me. I just freaked as they never said you can bring someone even when I got diagnosed with Cancer.  It’s horrible how you automatically go into dissecting mode. I had already been told I would be getting full hysterectomy when I got told last week I had cancer so when they said treatment plan I was thinking the worst. What stage is your cancer if you don’t mind me asking?

I haven't been told yet I expect to hear that next week.

Hi,

Firstly I would like to say you are all very inspiring, your stories have been comforting and reassuring.

I too have had a slight bleed after almost 3 years the bleed was pinkish and watery and only seen when I wiped, never enough to stain underwear and lasted 5 days

My periods were always fine, very regular and never really had period pains

I have been having slight draggy feelings and they have continued after the bleeding has stopped. I feel an ache in my sit bones too and I can feel my uterus close to the opening of my vagina (prolapse?l) 

I am booked to see my gp Monday but just wondered has anyone else with a slight prolapse had post menopausal bleeding and anyone else got achy sit bones?

Thanks in advance

And good luck to everyone awaiting results xx