Hi becky1984. Welcome to the forum.

I am not a doctor.

So far, it seems to me that you and your doctor have both done the right thing so far, and going back is the right thing.  But it's worth remembering that lymphoma is a pretty uncommon disease, raised lymph nodes are a very common symptom, and nodes can take a long time to settle down.

I would expect that your doctor would ask for the nodes to be ultrasound scanned, from which a great deal of information can be derived. I know it's easy to say don't worry about it, but remember that the chance of this being anything too serious is low. 

Thank you for replying, I really appreciate it :) Yes, I know you're right.  Its hard not to think the worst but I will try not to worry!  Good to know what the next steps maybe and what to expect from my dr, thank you for that.

I followed your comments in the other thread Becky and was wondering if you ever got any answers. I have the same lumps as you and even the 4 week cough which is really odd. I'd really appreciate if you could take a little time to reply to me 

Hi Jamie,

Sorry that you are having similar problems. Unfortunately I haven't really gotten any answers I'm afraid.  I did return to my dr when the nodes were still swollen, she ran another full set of bloods which came back clear. She said that with so many nodes swollen any lymphoma should show some abnormality in my blood, and as my blood came back fine she told me to forget about them.  Obviously I didn't and continued to stress!!  I went to see another GP about 4 weeks after and took a full hisotry, felt the nodes and again reasured me that she wasn't concerned. 

I've tried to trust in their oppinion and forget about it a bit since then, I'd pushed as hard as I felt able to and my mental health was really suffering with the constant worry.  Its been about 8 months since I noticed the lumps now, and I'd say there's been no real change in them over that time (which I take to be a good thing, although obviously I'd love it if they just went away!) Health wise I'm feeling a lot better, still suffering with headaches which are being investigated, but the aches and pains, cough and other things that I was panicing over all went away eventually - I guess they were either caused by a prolongued virus (maybe I was run down due to feeling stressed) or I was just being hyper aware and noticing these things more than normal.

I still worry about them now and then, but have come to the conclusion that they're probably normal for me, and may have been there for years before I even noticed them.  Have you seen your GP about them yet?  Althouogh I didn't find mine too helpful, they are all different, so that should definitely be your first port of call.  How long have you had the lumps?

Hi Becky,

just reading your post and I seem to have the same although in my armpit not really my groin although I've always felt those ones and they are commonly 1.5 cm and normal. I have my collarbone looked at and my throat for several swollen but they didn't consider them swollen even though I can feel them. The one in my armpit was considered long but she said she was worried enough to biopsy it. I feel like there is nothing more I can do but in light of the coronavirus and the fact it's all on one side (although I can dig for tiny tiny ones on my right collarbone and armpit) I might give my doctor a call and ask since I have no infection, why is she not considering lymphoma!!

very frustrating but you aren't alone x

I went through the motions with very similar symptoms last year, no real obvious swelling of the lymph nodes at that time but definite pain in the groin, armpits and neck, this all started after a bout of severe headaches that lasted for about 4weeks. The headaches eased but never fully went away, I had numerous blood tests, appointments with haematologists, neurologists, ultrasounds of my groin & armpits, chest x-rays and several visits with my GP. All tests game back clear and the specialists I saw had no reason to complete further tests. The whole things started in March and eventually eased in about December time which I thought was the end of it. 
 

Unfortunately about 4 weeks ago the symptoms have returned again starting with headaches, I'm back under the care of my GP at present who again suspects this is the result of a potential sinus infection, I have the same pain in the lymph nodes again but this time with some swelling of the in the neck and groin just on my left side.

I have a follow up appointment with a haematologist in a few weeks by chance,  as the symptoms sound very similar, if I get any answers from that appointment or any future tests I'll post again which may or may not give you something else to look at.

I went through the motions with very similar symptoms last year, no real obvious swelling of the lymph nodes at that time but definite pain in the groin, armpits and neck, this all started after a bout of severe headaches that lasted for about 4weeks. The headaches eased but never fully went away, I had numerous blood tests, appointments with haematologists, neurologists, ultrasounds of my groin & armpits, chest x-rays and several visits with my GP. All tests game back clear and the specialists I saw had no reason to complete further tests. The whole things started in March and eventually eased in about December time which I thought was the end of it. 
 

Unfortunately about 4 weeks ago the symptoms have returned again starting with headaches, I'm back under the care of my GP at present who again suspects this is the result of a potential sinus infection, I have the same pain in the lymph nodes again but this time with some swelling of the in the neck and groin just on my left side.

I have a follow up appointment with a haematologist in a few weeks by chance,  as the symptoms sound very similar, if I get any answers from that appointment or any future tests I'll post again which may or may not give you something else to look at.

Ah I'm sorry to hear it's happening all over again! 
 

that would be great to here other possible explanations ! Fingers crossed for you! Such a scary time to be having this horrible symptoms and worries! 
 

Loom forward to hearing (hopefully good news) from you!!

becky 

Hi Becky, 

I find myself in a similar situation did you get any answers? X

Hi [@Amie84]‍ !! 
 

unfortunately no - since this post I've gone on to find more lymph nodes in my neck and some even on my almost 2 year old (including collarbone) my doctors are basically giving up but it depends on the doctor one a&e doctor I met who I asked to check asked why I hadn't had a biopsy after feeling it so with pushing I have a scan on Sunday - if I get anymore useful info I'll be sure to let you know xx

if your nodes are below 1cm please remember these are typically normal lymph nodes and not swollen dependent on location ! I hope you get some answers x

Sorry to jump on this post but I noticed you said that lymph nodes under 1cm are not considered swollen? I have 2 swollen nodes on the sides of my neck (found a month ago, no idea how long they have been there) and my ultrasound showed they all look normal and the ones I can feel are 24mmx4mm and 18mmx4mm, does this mean I should be very concerned because they are so huge and should push it further? :( they feel like big tic tacs under my skin and my doc just says they are reacting to an infection but I haven't had a cold or any symptoms of one since Christmas! I don't have anything else either except my autoimmunne thyroid disease.

[@Annabel124]‍  hi annabel, no that doesn't mean that at all!  Personally I am super anxious about mine because they've been here for a year !! And I have them in my collarbone and my little boy does too :(  And specifically although of course it varies but technically they mean 1cm in the short axis which both of yours are under by at least half a cm so going by the length yours would still be considered okay... but I'm not a doctor I can't say for sure this is just the information I've been reading but I'm sure there are times under cm can be bad and above a cm can be benign but the doctors will know and if they've scanned you I'm sure they would be able to tell if they thought they were of concern! Of course if you are still worried speak to your gp explain your worries xxx

my partner and his sister have one on the side of their neck long but not in width! 

also it wouldn't surprise me if an autoimmune disease caused them to be slightly bigger! X 

Hi Becky

Thank you for responding.  Thats good news about your scan on Sunday, I.hope you finally get some answers.

My issues started with difficulty swallowing around 12 weeks ago, my GP diagnosed silent reflux and lansoprazole.  I then found a lump in my neck, I was still having difficulty swallowing, pains in my neck, a biggish lump under my arm and I haven't felt well for almost a year, The list goes on to be honest.  I have been to my gp 6 or 7 times had full bloods done, referral for endoscopy and neck ultra sound.   Last week I was referred on the 2 week cancer pathway about my neck because i felt my gp wasn't listening. I suffer with health anxiety and OCD and I decided to go private for the diagnostic tests the GP had referred me for in the end. I have waited 10 weeks and not received so much as a letter for my diagnostics with the NHS.

I had my ultrasound on Monday and was told that my nodes are raised but around 3mm and not cause for concern. Thank god. 

My body must be fighting some infection because I have multiple node enlarged in different places, hopefully I will get some answers soon.

Please let me know how you get on

 The care xx