Breast total duct excision ~I hope this helps someone

My first post  but not my first visit to this forum. It helped me a lot when I was going through my treatment and I want to return that support.

Xmas 2018 I noticed clear , almost blister water type fluid, coming from my right breast nipple when I took my bra off after a long day at work, more so when squeezed lightly. I’m 50 years old and wondered if it was ‘the change’ although I don’t think I’m in it or if I am I’m very lucky as zero symptoms! 

So off to the GP I go for reassurance that it’s ‘an age thing’ Unfortunately she couldn’t reassure me and referred me for a consultation with a breast specialist. 2 weeks later I see a lovely consultant and his junior training team, again expecting to be told ‘ it’s age’ so when he said there was blood in the sample he took and it was only one duct so I needed further tests. 2 weeks of worry again , mammogram and ultrasound both showed as clear however they wanted to do the full duct excision to exclude cancer and understand what was causing it. I think I’m a tough cookie but I was rocked I hadn’t told my family or friends ,just my partner and work colleagues,as they would be in spin. I decided to tell them and they were upset I didn’t share sooner but each to their own it was my way of dealing with the unknown. My 24 son was the worst affected and I hated to see him worry. 

So I had the operation on 14th March 2019. The medical and nursing team were amazing , they really do care. Post op I was suprised quite how swollen and bruised my breast was and to be honest the first week was pretty uncomfortable. I’m a DD cup and found wearing a none wired bra 24/7 for the first week helped a lot with holding the breast in a comfortable position whilst it healed. The sterile strips were easily removed on day 8 but my nipple was scabbed and very sore on one side so I put good old germaline on sterile lint squares taped it and wore Breast pads for a few days and it healed very well.

I had follow up results appointment yesterday (15 days after op) and was relieved to be assured it was nothing of concern, inflammation and debris which caused the bloody fluid, no follow up appointments and it’s healing super well just some bio oil recommended to help with the scarring. I sat in the car post appointment wondering if I had overreacted , been a drama queen but not knowing and wanting that reassurance is tough for anyone. I promised myself whatever the outcome I would post on here to hopefully help someone and to make a donation to cancer research which is my next task. Wishing anyone waiting for results or dealing with results much love I’m thinking of you

Parents
  • Hi pickles and other ladies on this forum,I’m 43 and a single mum of 4 daughters,I had my first appointment over 2 years ago having a papiloma removed with needle core biopsy,Then last year a second was removed,Hormone blood tests revealed I’m not on the change either,My mum had a mastectomy a month ago after an abnormal mammogram she was diagnosed full advanced breast cancer within hours and in theatre within days,I have not spoke to anyone about how I feel as I only have my mum and 4 daughters and neither are appropriate for answering them,I leak blood constantly from both nipples it’s quite scary but I’m just greatfull to survive this long,I’m concerned that it will look different as people have shown the dramatic cosmetic difference.I was bulimic 3 years ago and my confidence is still not back with my body but my boobs and just come back,any advice on what they can do following surgery x
  •  

    Hi Liag,

    Welcome to our forum.

    I have only noticed your post tonight and, see that nobody has offered you any advice. I am not a doctor but it doesn't sound right for you to still have blood constantly leaking from both nipples. Were you assigned a breast care nurse? If so,why not give her a ring and ask her for her opinion? Failing this, make an appointment with your GP. The initial appointment will probably be over the phone, but your GP can then decide to see you or refer you back to the breast clinic if s/he is at all concerned.

    I am so sorry to hear about your Mum's recent diagnosis. My Mum also had breast cancer and I have had two bouts in the past 11 years. I had a lumpectomy first time around and a double mastectomy on the second occasion, so if I can help her with anything please let me know.

    Please keep in touch and let us know how you both get on. We are always here for you.

    Seeing a professional about your own problems, should at least, lessen your worry about yourself.

    I hope that all goes well.

    Kind regards,

    Jolamine xx

Reply
  •  

    Hi Liag,

    Welcome to our forum.

    I have only noticed your post tonight and, see that nobody has offered you any advice. I am not a doctor but it doesn't sound right for you to still have blood constantly leaking from both nipples. Were you assigned a breast care nurse? If so,why not give her a ring and ask her for her opinion? Failing this, make an appointment with your GP. The initial appointment will probably be over the phone, but your GP can then decide to see you or refer you back to the breast clinic if s/he is at all concerned.

    I am so sorry to hear about your Mum's recent diagnosis. My Mum also had breast cancer and I have had two bouts in the past 11 years. I had a lumpectomy first time around and a double mastectomy on the second occasion, so if I can help her with anything please let me know.

    Please keep in touch and let us know how you both get on. We are always here for you.

    Seeing a professional about your own problems, should at least, lessen your worry about yourself.

    I hope that all goes well.

    Kind regards,

    Jolamine xx

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