Breast total duct excision ~I hope this helps someone

My first post  but not my first visit to this forum. It helped me a lot when I was going through my treatment and I want to return that support.

Xmas 2018 I noticed clear , almost blister water type fluid, coming from my right breast nipple when I took my bra off after a long day at work, more so when squeezed lightly. I’m 50 years old and wondered if it was ‘the change’ although I don’t think I’m in it or if I am I’m very lucky as zero symptoms! 

So off to the GP I go for reassurance that it’s ‘an age thing’ Unfortunately she couldn’t reassure me and referred me for a consultation with a breast specialist. 2 weeks later I see a lovely consultant and his junior training team, again expecting to be told ‘ it’s age’ so when he said there was blood in the sample he took and it was only one duct so I needed further tests. 2 weeks of worry again , mammogram and ultrasound both showed as clear however they wanted to do the full duct excision to exclude cancer and understand what was causing it. I think I’m a tough cookie but I was rocked I hadn’t told my family or friends ,just my partner and work colleagues,as they would be in spin. I decided to tell them and they were upset I didn’t share sooner but each to their own it was my way of dealing with the unknown. My 24 son was the worst affected and I hated to see him worry. 

So I had the operation on 14th March 2019. The medical and nursing team were amazing , they really do care. Post op I was suprised quite how swollen and bruised my breast was and to be honest the first week was pretty uncomfortable. I’m a DD cup and found wearing a none wired bra 24/7 for the first week helped a lot with holding the breast in a comfortable position whilst it healed. The sterile strips were easily removed on day 8 but my nipple was scabbed and very sore on one side so I put good old germaline on sterile lint squares taped it and wore Breast pads for a few days and it healed very well.

I had follow up results appointment yesterday (15 days after op) and was relieved to be assured it was nothing of concern, inflammation and debris which caused the bloody fluid, no follow up appointments and it’s healing super well just some bio oil recommended to help with the scarring. I sat in the car post appointment wondering if I had overreacted , been a drama queen but not knowing and wanting that reassurance is tough for anyone. I promised myself whatever the outcome I would post on here to hopefully help someone and to make a donation to cancer research which is my next task. Wishing anyone waiting for results or dealing with results much love I’m thinking of you

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  • Hi Pickles

    Thank you for sharing your experiences. I am feeling alone and fragile. 
    Spontaneous bleed from nipple followed by GP visit, mammogram, ultrasound and biopsy. Still none the wiser and awaiting total duct excision. 
    Really surprised at how it has shaken me. Those around me don't seem to get it. The rationale part of me knows my risk of cancer is low but google offers up lots of outcomes and I haven't been discharged for wasting someone's time as I really expected!
     

  • Thought I'd add to this thread as I had a total duct excision 10 days ago. I had an inverted nipple with intermittant bleeding. It was first checked 15 months ago with a mammogram and scan. Nothing was found and I was told it was an age thing and nothing to worry about (I'm 67). All was quiet for 14 months no bleeding but then it started again so I went back to the clinic, had the same tests still no sign of anything but I was told to have the operation to be on the safe side.

    A week after the clinic visit I got a phone call to come in for a pre op and a day later a call to attend for the surgery, it was all so fast I didn't have time to think! I've barely thought about the results, I feel so sure there is no problem other than a blocked duct. Hopefully my optimism is rewarded but I do have a worry and a question for others who have had this. My breast was very bruised after the surgery, not surprisingly, the nipple is hard and very sensitive but my big worry is a hard lump, which has manifested itself on the breast quite a distance from the stitches. I have my follow up on 6th January but this is worrying me. Have others had this? If so does it go away?

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    Hi Sue-Pat,

    A very warm welcome to our forum. I am sorry to hear that you have had this problem.

    Having had a lumpectomy and a double mastectomy a year later, I can confirm that I still have a hard lump on my breast which I'm told is scar tissue. My problem was a lump on the lower quarter of my breast, so I have no experience of having surgery carried out around the nipple. I had my lumpectomy 10 years ago and my double mastectomy 9 years ago and still feel this .

    Make sure to mention this when you go for your follow up apointment on 6th January. I hope that the news is good when you're there.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx 

Reply
  •  

    Hi Sue-Pat,

    A very warm welcome to our forum. I am sorry to hear that you have had this problem.

    Having had a lumpectomy and a double mastectomy a year later, I can confirm that I still have a hard lump on my breast which I'm told is scar tissue. My problem was a lump on the lower quarter of my breast, so I have no experience of having surgery carried out around the nipple. I had my lumpectomy 10 years ago and my double mastectomy 9 years ago and still feel this .

    Make sure to mention this when you go for your follow up apointment on 6th January. I hope that the news is good when you're there.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx 

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