Diagnosed with cancer but unsure what type

Hi, 

I am a 36 year old mum of two gorgeous kids (aged 7 years and 14 months). 

Following a hospital stay due to double pneumonia I have now been diagnosed with cancer. The biopsy results came back inconclusive and the bronchoscope was unsuccessful. Further tests are being carried out and I am hoping to find out more by the end of the week. 

I realise how important it is to find the primary cancer in order to give me a better chance of survival, thinking about having potentially less than a year to live slightly freaks me out. I was just wondering if somebody on here has been through the same? 

Warmest regards, 

Bibi 

 

  • Hi there, and welcome ...

    Your just feeling what we all did waiting for a diagnosis ... it's deff the scariest time .... it's the unknown .. slightly freaks out is probly an understatement. . So just know your not alone ...there's always someone here when you need a shoulder to lean on ...

    I got out all my emotions and cryed till there were no tears left .. then l felt stronger to put my pink boxing gloves on and get in the ring and take on this cancer ... coz it doesn't want us strong ... it wants us to lay down and never look up ... I've got a spare pair of pink vertual boxing gloves, I'm sending to you .. everyone here has one thing in common. . Kicking cancers *** .... 

    Chrissie 

  • Hi Chrissie, 

    Thank you so much for your reply - it was exactely what I needed to hear and you actually made me smile! 

    I just had the preliminary result and its non Hodgkin (the best outcome I could have hoped for!), subtype and stage are still unknown. 

    So I very happily accept your pink boxing gloves because I am ready for a huge fight!!! 

    Much love, 

    Bibi 

  • Hi there ...

    Any time you want a chat ... or vent ... I'm here most days ... go with feelings ... if you need to scream, then scream, (Just not in the middle of tescos)  lol .. sharing feelings with loved ones will mean no one's holding it in and trying to be brave ... even if the kids see you cry, it means they can cry too ..

    Your 7 year old will know something's happening ... and if you use gentle honesty , they will feel included ..  my granddaughter was 6 when I had my masectomy ... we are inseparable ... we told her nanny was very poorly, and needed to go in hospital so the Drs could TRY to make nanny better ...

    She knew my boob had gone, and she gave me very gentle hugs after op ... one day she pulled my tea shirt away and saw the missing boob ... and screamed " nanny how are you going to feed babies now!!) 

    Still makes me laugh .. but children are amazing ... they cope better then we think ... they can get upset and cry .. 10 minutes later go and play with toys ..  

    So hold on in there ... try not to do the scary "what ifs" don't look too far ahead .. and take every problem as and when it comes up ... and do everything to gether with loved ones .. once they see you coping, they will feel stronger too .. you got this ... there's lots of us in that boxing ring ... I've got a tea shirt that has a lass with pink boxing gloves and it says ... " cancer touched my boobs.... so I kicked it's ***" 

    Sending you a proud hug ... Chrissie

  • Just wanted to pop by to give you my support, I see chriss has also given you loads of love and support ( she helps me too) she's a wise bird and you couldn't be in better hands xxxxx

  • Thank you so much Chrissie and Marlyn! 

    Yesterday I finally received my diagnosis (although some test results are still missing) after I had to cancel my holiday for tomorrow which was previously approved. 

    I have diffuse large B cell non-Hodgkin stage 4B bulky. Basically all bad but what we expected and still treatable. My mass is so incredibly large that my heart, lungs and spine are all being pushed away, no wonder I am in so much pain. I am getting R-chop but as an inpatient, if I do well I might have the chemos as an outpatient later on. 

    Really, I am just incredibly relieved something is finally being done and they pain will be reduced so I guess I am sort of relieved (in a weird way)! It’s very unfortunate they don’t have enough time to harvest my Stam cells but for now this is the best way forward. 

    Like you said Chrissie, my daughter is taking it all in her stride, aren’t kids just the most amazing people in the world!! 

    I hope you are both doing well? 

    Love Bibi 

  • Hi ... and thanks for giving us an update ... though we were all hoping it would be a good one ... but as we all know, life or rather cancer has other ideas ... 

    I'm so glad you chatted to your little one ... so many kids are so scared because they hear whispers ... and then they too feel scared of what may be happening ... l know my granddaughter and little niece, have taken it all in their stride ... and they do ask, when it will grow back again ... but they know ill laugh and tell them gentle honesty ... I've told them boobs arnt like when their teeth fall out ... we only get one boob ..  if only we had a boob fairy along with the tooth fairy ... 

    It's funny, it does help once you have the "plan" and at least know the way forward ... you can do this ... just keep those boxing gloves ready ... yes there will be hard days but just get through that day ... don't look down, look at the stars ..

    Marlyn, is in the days following another round of her chemo .. though that amazing lady, still comes on here when she can to help others ... she's a true inspiration. . And I know she'll pop by when she can ..

    You know cancer wants to take everything away from us .. but without my having cancer, I'd never have met these wonderfull cancer warriors, that I've met on here ... cancer may touch our bodies but we hold on to who we are .. it won't change that ... 

    Keep in touch ... Chrissie

  • Hello, just wanted to say there is a lady on my chemo unit with non hodgkin who had a spell in hospital for chemo and now allowed home and coming in 3 weekly cycles, so I see her when I go! She about 70 ( I should think) and very upbeat..

    im relieved your on the right path now, you have to surrender yourself to our wonderful NHS . And it's treatable!!! Yay!!! 

    Please keep us posted....sending love and strength xxxxx