what were your symptoms of lymphoma?

Hi I’m not sure I should even be on here but here goes, 

I’ve had a swollen neck node since around May last year, I thought nothing of it until a few weeks ago. I started getting extremely tired so much so I’m falling asleep at dining table or having to go to bed for a nap. I like running but have found myself a little breathless and of course no energy to run like I use to. A few week ago I had a week of crazy night sweats which I put down to the menopause and my itchy skin I put down to dry skin. Got blood tests done at GP surgery and they’re all normal range, my gp isn’t concerned bout the swollen node and says tiredness is because I suffer from under active thyroid but I have this feeling something isn’t right with me, so should I push for another appointment with GP or just wait? Also what were your symptoms before diagnosis? 

Sorry if I’m not on proper thread 

lou 

Parents
  • Hi Lou

    I’m surprised by your experience. Blood test detect a number of things, like thyroid or throat  infections that could have an influence on the development of the bump, but that’s all. I’m being given a CT scan and an ultrasound (with biopsy) as a matter of course. My symptoms are not as clear as yours. You need them examined thoroughly and you need that now, even if it’s for peace of mind, which is super important on it’s own. My advice? Do go to another another GP. I’ll bet it changes.  

  • Any updates on your situations Lou or Georgina?

    I've felt a small lymph node on the back of neck for at least 2 years which doesn't move and feels hard  but not rock hard. I noticed it roughly around the same time as having tonsillitis so I put it down to that. 

    Anyway, I went to my GP in July for a suspected breast lump and told my GP about the lump on my neck. She referred me to the breast clinic and told me to ask them to check the lump on my neck if I have an ultrasound, and if not then I should go back to her to get it checked again.

    I had my appointment at the breast clinic on the 31st July. I had an ultrasound for my breasts which was fine (what I was feeling was just fibrous tissue), they then kindly checked my neck on the ultrasound and told me "that's just a tiny lymph node, nothing to worry about". That was me then, I could go home with good news...

    But about 3 weeks ago, I was checking my neck again, as I just felt something in the back of my mind telling me perhaps they got it wrong. The lymph node at the back of my neck is still there... And then I found another one just above my collarbone, it's small probably 7mm, it moves, feels quite soft. But it hasn't disappeared. Google tells me all sorts and now it's all I think about. Since finding that one, I can feel about 3 other ones, all roughly the same size. I just keep going in circles with it, perhaps I'm just one of those people who can feel their lymph nodes, maybe they've always been there and I've just never paid any attention to them. They don't hurt but the more I press on the more they ache. 

    I've also had pretty regular loose/soft stools and I often need to go to the toilet quite urgently, but my mum and sister both have IBS and just assume I could have it too, it's never really bothered me that much.

    I do have very very occasional itchy skin all over my body without a rash, but again, it doesn't bother me as it's not constant nor unbearable. 

    I have no nights sweats or fever. Oh and I'm 3 weeks away from turning 28 years old. 

    I just wanted to know if anyone else is in the same boat and how are you others getting on? 

     

  • Hi everyone,

     

    I read through all the previous posts here and I wish you all the very best and I hope you are all doing well. 
     

    Like the previous posts here I am curious to know what my symptoms mean. 
    Since December 2019 I have been having terrible night sweats almost every night. I have an itchy scalp and sometimes my skin is itchy too, but nothing that I thought was symptomatic of anything, I have had terrible fatigue and this was going from a lady at 40 in great shape running 4 times a week to a lady napping up to three hours and still unable to get out of bed in the morning. I haven't lost any weight but I have very bad cramping and swelling in my abdomen after I eat. Worryingly I have a very swollen lymph node on my groin that is causing pain down my left leg and tingling and also a slight limp. I went to my doctor, had blood tests and they were clear, had a colonoscopy that was also clear and I am going for an ultrasound next week. The more I read the more my symptoms are leaning towards lymphoma but like others here I don't wish to sound like a hypochondriac and my doctor can be dismissive. 
     

    I wonder does anyone agree I should push this matter. Sorry to ask just feeling very bewildered at the moment. 
     

    thanks in advance

  • Hi, I would wait and see what your ultrasound shows, they can usually tell if it's a reactive lymph node or if it's something that needs further investigation. If they are worried they will do a biopsy, this is really the only way to tell if it's lymphoma, that and a ct scan. If you are still worried, I'd push for further tests, I think this is the only way to go during this pandemic, don't let it go if you are still worried. Have you checked your neck and under arms for any lumps, I would check there as this is what my haematologist usually does when I go for my check up. Best wishes and fingers crossed it's a good outcome

Reply
  • Hi, I would wait and see what your ultrasound shows, they can usually tell if it's a reactive lymph node or if it's something that needs further investigation. If they are worried they will do a biopsy, this is really the only way to tell if it's lymphoma, that and a ct scan. If you are still worried, I'd push for further tests, I think this is the only way to go during this pandemic, don't let it go if you are still worried. Have you checked your neck and under arms for any lumps, I would check there as this is what my haematologist usually does when I go for my check up. Best wishes and fingers crossed it's a good outcome

Children