Hi Lou

I’m surprised by your experience. Blood test detect a number of things, like thyroid or throat  infections that could have an influence on the development of the bump, but that’s all. I’m being given a CT scan and an ultrasound (with biopsy) as a matter of course. My symptoms are not as clear as yours. You need them examined thoroughly and you need that now, even if it’s for peace of mind, which is super important on it’s own. My advice? Do go to another another GP. I’ll bet it changes.  

Any updates on your situations Lou or Georgina?

I've felt a small lymph node on the back of neck for at least 2 years which doesn't move and feels hard  but not rock hard. I noticed it roughly around the same time as having tonsillitis so I put it down to that. 

Anyway, I went to my GP in July for a suspected breast lump and told my GP about the lump on my neck. She referred me to the breast clinic and told me to ask them to check the lump on my neck if I have an ultrasound, and if not then I should go back to her to get it checked again.

I had my appointment at the breast clinic on the 31st July. I had an ultrasound for my breasts which was fine (what I was feeling was just fibrous tissue), they then kindly checked my neck on the ultrasound and told me "that's just a tiny lymph node, nothing to worry about". That was me then, I could go home with good news...

But about 3 weeks ago, I was checking my neck again, as I just felt something in the back of my mind telling me perhaps they got it wrong. The lymph node at the back of my neck is still there... And then I found another one just above my collarbone, it's small probably 7mm, it moves, feels quite soft. But it hasn't disappeared. Google tells me all sorts and now it's all I think about. Since finding that one, I can feel about 3 other ones, all roughly the same size. I just keep going in circles with it, perhaps I'm just one of those people who can feel their lymph nodes, maybe they've always been there and I've just never paid any attention to them. They don't hurt but the more I press on the more they ache. 

I've also had pretty regular loose/soft stools and I often need to go to the toilet quite urgently, but my mum and sister both have IBS and just assume I could have it too, it's never really bothered me that much.

I do have very very occasional itchy skin all over my body without a rash, but again, it doesn't bother me as it's not constant nor unbearable. 

I have no nights sweats or fever. Oh and I'm 3 weeks away from turning 28 years old. 

I just wanted to know if anyone else is in the same boat and how are you others getting on? 

Any updates on your situations Lou or Georgina?

I've felt a small lymph node on the back of neck for at least 2 years which doesn't move and feels hard  but not rock hard. I noticed it roughly around the same time as having tonsillitis so I put it down to that. 

Anyway, I went to my GP in July for a suspected breast lump and told my GP about the lump on my neck. She referred me to the breast clinic and told me to ask them to check the lump on my neck if I have an ultrasound, and if not then I should go back to her to get it checked again.

I had my appointment at the breast clinic on the 31st July. I had an ultrasound for my breasts which was fine (what I was feeling was just fibrous tissue), they then kindly checked my neck on the ultrasound and told me "that's just a tiny lymph node, nothing to worry about". That was me then, I could go home with good news...

But about 3 weeks ago, I was checking my neck again, as I just felt something in the back of my mind telling me perhaps they got it wrong. The lymph node at the back of my neck is still there... And then I found another one just above my collarbone, it's small probably 7mm, it moves, feels quite soft. But it hasn't disappeared. Google tells me all sorts and now it's all I think about. Since finding that one, I can feel about 3 other ones, all roughly the same size. I just keep going in circles with it, perhaps I'm just one of those people who can feel their lymph nodes, maybe they've always been there and I've just never paid any attention to them. They don't hurt but the more I press on the more they ache. 

I've also had pretty regular loose/soft stools and I often need to go to the toilet quite urgently, but my mum and sister both have IBS and just assume I could have it too, it's never really bothered me that much.

I do have very very occasional itchy skin all over my body without a rash, but again, it doesn't bother me as it's not constant nor unbearable. 

I have no nights sweats or fever. Oh and I'm 3 weeks away from turning 28 years old. 

I just wanted to know if anyone else is in the same boat and how are you others getting on? 

Hi everyone,

I read through all the previous posts here and I wish you all the very best and I hope you are all doing well. 
 

Like the previous posts here I am curious to know what my symptoms mean. 
Since December 2019 I have been having terrible night sweats almost every night. I have an itchy scalp and sometimes my skin is itchy too, but nothing that I thought was symptomatic of anything, I have had terrible fatigue and this was going from a lady at 40 in great shape running 4 times a week to a lady napping up to three hours and still unable to get out of bed in the morning. I haven't lost any weight but I have very bad cramping and swelling in my abdomen after I eat. Worryingly I have a very swollen lymph node on my groin that is causing pain down my left leg and tingling and also a slight limp. I went to my doctor, had blood tests and they were clear, had a colonoscopy that was also clear and I am going for an ultrasound next week. The more I read the more my symptoms are leaning towards lymphoma but like others here I don't wish to sound like a hypochondriac and my doctor can be dismissive. 
 

I wonder does anyone agree I should push this matter. Sorry to ask just feeling very bewildered at the moment. 
 

thanks in advance

Hi, I would wait and see what your ultrasound shows, they can usually tell if it's a reactive lymph node or if it's something that needs further investigation. If they are worried they will do a biopsy, this is really the only way to tell if it's lymphoma, that and a ct scan. If you are still worried, I'd push for further tests, I think this is the only way to go during this pandemic, don't let it go if you are still worried. Have you checked your neck and under arms for any lumps, I would check there as this is what my haematologist usually does when I go for my check up. Best wishes and fingers crossed it's a good outcome

Thankyou so much. I really appreciate your replying and I will take this on board. 

Hey I have very similar symptoms to you I just wondered wether you have any further results? Xx

Sorry for the late reply, stupidly I ignored my symptoms since I last posted, thinking I was just overreacting... and it worked for a while but now I've come back to obsessing over my lymph nodes again. I think I now have around 7 all over my neck.

Finally I've plucked up the courage to call the doctors and I have a telephone appointment with my GP on Tuesday. 

Have you had any tests?

Clarissa x

How did your appointment go? I'm having a very similar worry to yourself.

Hi Steve 

My Dr decided to see me for an examination and annoyingly they couldn't feel the lymph nodes/lumps that I can feel, so they've said they don't think it's lymphoma but have ordered me an ultrasound anyway for about a month's time and a blood test which I'll do this week. On the bottom of the blood test form the Dr simply put "lymphadenopathy?" but they didn't mention that in the appointment.

Don't put off seeing your doctor. I feel so much better now, even though I have no idea what could be the outcome, at least now I'm on the way to finding out. I don't know about you, but I was just driving myself mad, thinking the worst but not doing anything about it!

Hope you're ok, 

Clarissa 

Thank you for the reply Clarissa and I am glad you are feeling better! I had to go to my GP this morning to have a blood test for my diabetes but because they only specialise in that field I have been referred for an appointment on Thursday morning, I know its only 3 days away (soon to be 2) but at the moment it feels like 3 years! My head has been all over the place today especially now I'm feeling a little bit of itchiness, not a big amount just an inkling on different parts of my body from time to time and there is a bit of redness and pain on my leg which whilst could be anything is also a symptom of lymphoma so I've already kind of accepted the worse outcome. The lump/swollen lymph node has been there since 2008 so it's strange why I've suddenly started stressing about it. Fingers crossed I can report good news on Thursday!

Steve 

Hi Steve,

I've only just joined the Chat system today (01-02-21)

If you are any doubt, make an appointment with a GP.

I had a lump in my neck, not painful at all and not particularily solid, kept putting it off for over a year, until I noticed it had got slightly bigger. It took a further year of blood tests, Ultrsound and cell biopsy, and finally a Lymph node biopsy to diagnose that I had Follicular Lymphoma, a lymphoma typically seen in the age bracket 70+. I was 45. 

I know that the worry can be all consuming, but the only way to tackle it, is to know whether or not there is an under lying cause. It may simply be that you are fighting infections. My lymph nodes increase when I have a cold etc, and they increase and decrease naturally over the course of a year. The body is full of lymph nodes, but you don't actively tend to examine yourself for them, and you only seem to notice them when you're under the weather - typically in the neck. 

My Cancer is in the Indolent stage (slow growing) and have been on the Watch & Wait policy for over 5 years. My health hasn't really deteriorated in that time, so I could have still been here at this point and not known, however, the difference now, is that a have a great medical team behind me who are constantly monitoring my situation.

I can't do anything to change the situation, so I stay positive and try to live life as it should be lived - on my terms. 

I hope you manage to get a review , and an answer soon.

kind regards

DP_Worthing