what were your symptoms of lymphoma?

Hi I’m not sure I should even be on here but here goes, 

I’ve had a swollen neck node since around May last year, I thought nothing of it until a few weeks ago. I started getting extremely tired so much so I’m falling asleep at dining table or having to go to bed for a nap. I like running but have found myself a little breathless and of course no energy to run like I use to. A few week ago I had a week of crazy night sweats which I put down to the menopause and my itchy skin I put down to dry skin. Got blood tests done at GP surgery and they’re all normal range, my gp isn’t concerned bout the swollen node and says tiredness is because I suffer from under active thyroid but I have this feeling something isn’t right with me, so should I push for another appointment with GP or just wait? Also what were your symptoms before diagnosis? 

Sorry if I’m not on proper thread 

lou 

Parents
  • Hi Llou, 

    My mum had Non Hodgkins Lymphoma. She had a swollen neck, night sweats, was losing weight etc. She went to the docs who took bloods and told her she was fine, nothing to worry about, she was most likely just menopausal etc. These symptoms continued, but because the doc had said she was ok my mum (who never liked to 'bother' anyone!) just accepted his word and didn't go back. Ended up she took really ill one day, was taken into hospital, the lymphoma was diagnosed but by then it was too late for her, and she died a few months later. Now I'm absolutely not saying that there's anything similar up with you, and chances are youll be just hunky dory, but ABSOLUTELY go back to your GP and get a second opinion. Or a third. Or a fourth. Much better erring on the side of caution. This was 16 years ago by the way, and I'm sure most doctors are probably much better clued up than my mum's was back then. 

    Sending you lots of luck and positivity xx

Reply
  • Hi Llou, 

    My mum had Non Hodgkins Lymphoma. She had a swollen neck, night sweats, was losing weight etc. She went to the docs who took bloods and told her she was fine, nothing to worry about, she was most likely just menopausal etc. These symptoms continued, but because the doc had said she was ok my mum (who never liked to 'bother' anyone!) just accepted his word and didn't go back. Ended up she took really ill one day, was taken into hospital, the lymphoma was diagnosed but by then it was too late for her, and she died a few months later. Now I'm absolutely not saying that there's anything similar up with you, and chances are youll be just hunky dory, but ABSOLUTELY go back to your GP and get a second opinion. Or a third. Or a fourth. Much better erring on the side of caution. This was 16 years ago by the way, and I'm sure most doctors are probably much better clued up than my mum's was back then. 

    Sending you lots of luck and positivity xx

Children
  • I’m so sorry about your mum x I’ve an appointment  to see gp next week but honestly I know before I go it’ll be put down to viral infection or my thyroid. I’ve taken notes of everything that’s happening with me this last few weeks and tbh it’s just a long list that makes me seem like a hypochondriac and I really don’t want to come across like that to my GP. Anyway I just want to say thank you for taking time to reply x