Hi, my first symptoms were fatigue, itchy skin on my scalp strangely enough. I was losing weight and not being able to eat much also drenching night sweats which I had to change bed at night. . After many visits to doctors who didn’t know what was wrong with me, I finally had a lump on my neck and was sent to an ENT doc. I have an auto immune problem and I think doctors just put it down to that. It was only after biopsy in neck I was told it was lymphoma, this is the only way they can diagnose lymphoma. I guess your lymph nodes swell for lots of reasons, mine did get bigger then went down a bit but never went away till I had chemo. I think my doctor could tell it was suspicious as she told me to still go to ENT even if it went down. The doctor who did my biopsy told me it was probably a thyroid problem so in my case it’s just as well they did biopsy. If it’s still there in a few weeks I’d go back. Also even if it is lymphoma and it’s indolent, most people go on watch and wait with no treatment. 

Hi and thank you for the reply. I’ve had this node swelling since last year but only since January have I been feeling unwell. I’m going back to gp next week but I’m not holding out much hope getting my issue resolved. Are you currently undergoing treatment? And how are coping? I hope you don’t mind the questions 

Hi, I just finished treatment in November but on one of my follow up appointments in January my doctor found another lump in my neck. She ordered xrays, biopsies etc and I’m still waiting on results. She did say as my ct scan in December was excellent and I feel well, if it has came back I will go onwatch and wait but she doesn’t think it’s in the lymph node but it is suspicious and has ordered further tests. I should be used to the wait. I coped well with the chemo, the staff in the unit were super but I’m hoping I don’t see them for a while lol. X

Hi, I just finished treatment in November but on one of my follow up appointments in January my doctor found another lump in my neck. She ordered xrays, biopsies etc and I’m still waiting on results. She did say as my ct scan in December was excellent and I feel well, if it has came back I will go onwatch and wait but she doesn’t think it’s in the lymph node but it is suspicious and has ordered further tests. I should be used to the wait. I coped well with the chemo, the staff in the unit were super but I’m hoping I don’t see them for a while lol. X

A super stressful time for you, I’ll keep you in my thoughts and I really hope you don’t see the staff for a very long either x Thank you for taking time to reply to me x