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Trouble with diagnosis.

dc12345
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I am 21 year old male.

Symptoms :

Lump inside of neck. Size of a grape. Hard, does not move. (been there approx six months)

Weight loss. (although i had been trying to diet and gym same as i had been for years. This time the weight came off far too quick and easy approx 4 stone in 4 months.) Havent been to gym in almost three months and have been eating like a pig since and havent gained a pound.

Night fever. So hot at night I cant sleep with a duvet. If i do sleep with duvet i wake up in a puddle of sweat, as if Ive wet the bed.

Cough and shortness of breath, permanent cough the past year or so. Put it down to smoking as i smoke about 10 per day past three years but I'm not sure that could cause this. Ive friends who smoke much heavier and for longer with no cough.

Red patches. Ive several small red patches on my torso area. (not itchy) My GP said it is a fungal infection.

Hair loss: my body hair has thinned out massively over the past year or so. Chest and abdominal hair has really thinned out. Chest and back hair have thinned out with several big patches completely bald.

All of these symptoms are associated with lymphoma, (the last two a symptom of T-Cell lymphoma particularly) upon finding this out I went straight to my GP. He seemed to be suspicous I had lymphoma too and ran blood tests and sent me for a chest xray and ultra sound on my neck.

Bloods came back fine apart from a minor low liver function.

Today chest xray and ultra sound results came back fine.(during the ultrasound the radiographer didnt seem to focus too much on where the actual lump)

My GP said everything was fine?

Basically I have been given news that many of you would dream to hear, but I am so confinced that they have missed something. Where do I go from here? Something must be causing these symptoms as they are very distinctive and consistant? After ringing me with results the GP has not suggested any further action or testing? Should i go for a second opinion? 

if anyone has any helpful advice or found themselves in a similar situation please let me know. Thank you so much for reading

*important to note* I have been type 1 diabetic for 4 years but blood sugars have been perfect all the time and none of these symptoms are related to diabetes as far as my research goes

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    Hi and wecone

    Im not a doctor and can’t advise about symptoms other than I have been a type 1 diabetic for 57 years and I get red patches which are a fungal infection. I was told by my doctor that diabetics often have this. Also I quite often have night sweats if my blood sugar drops overnight. I’ve just invested in a freestyle libre and have discovered my blood sugar can drop quite dramatically during the night without hypo symptoms but come back up in the morning. As for your other symptoms I can’t say that I’ve had any of those.If you feel a second opinion would be useful  then I would say go for it, If only to put your mind at rest.

    I hope that has been a help. And just a little advice from someone who’s been there...don’t consult dr google. He can convince you that you’ve got anything. Seek that second opinion from a real doctor. I hope you get this sorted out.

    Sundial

     

  • Offline in reply to Sundial

    thank you [@Sundial]‍ 

    i also sweat with hypos at night, but check ive checked them every time which i wake up sweating and they are always withing range usually around the 7 mark. These night sweats i have been experiencing are mych more intense and require the sheets to be changed.

    thank you though as the red spots are now no longer so concerning 

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    Hi there.

    As I was reading through your symptoms sounded quite similar to myself - I am also 21 and have Hodgkin's Lymphoma. I had the cough for about a year before diagnosis and had weight loss. I also became very breathless. I have realised through my own situation and others that I've seen/heard about, thatthat lymp isnt always the most straightforward thing to diagnose. For me, it took me to have to go to a&e with extreme breathlessness before I eventually had scans/biopsies and was diagnosed. Before this my doctor had diagnosed me with asthma so came as a massive shock. I will point out though that nothing had come back on my bloods to indicate anything was wrong and it took a 3rd person to actually realise something did show to be unusual on my x-ray as the first two doctors believed it to be normal. It was the CT scan that then showed inflammation and that I needed a biopsy.

    So have you had any CT scans? If not, maybe suggest having one to your doctor so that you can get peace of mind. I don't want to scare you and obviously I'm not a doctor so I'm not really qualified to say what's best to do, but based on my own situation, I think you should perservere to have more testing until they can give an actual reason as to what is causing your symptoms. At the end of the day we know when something doesn't feel right that's happening to our own body and so if you have noticed these symptoms and they have been ongoing for a while you have every right to get all the tests you need to find out what's going on.

    I hope everything does however go well for you. 

  • Offline in reply to Emily-May

    [@Emily-May]‍ thank you so much for your responce.

    Should I ring him back and request a CT scan and how long does that process take, anything else i should know etc,

    All the best in your road to recovery.

  • Offline in reply to dc12345

    It's definitely worth it. It's hard to say how long though because I had mine whilst I was an inpatient and so the request for scans etc is much quicker. I would just stress to your doctor that you are concerned about your symptoms and hopefully he can then refer for further testing. 

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