Hi there. I have had the same thing for 6 months now.  All started from a normal cold and then a chest infection.

Had a few CBCs and all come back clear, as did infection markers.

They thought it was silent reflux and had 5 weeks of Omeprazole which did nothing.

Had the camera down throat at ENT and he said no cancer but had swollen lymph nodes and should be ok in a few weeks. This was June and it's still bad now.

Other doctors thought it was Glandular Fever, but 2 blood tests didn't confirm it. Was not strep either.

Now they think it could be my thyroid (been on Levo for 11 years now).

Got a throat ultrasound in a couple of weeks and done nothing but cry and cry for months as convinced I have cancer.  

I so hope everyone on this thread is ok now and found out what they have.

Hi debsy, how are you now? 

pls do give an update when you find out what stage the cancer is. Im hoping the best for you!

is there any update on your situation? Have you founf out the issue yet?

Thanks & I will x x 

Thank you Ben - I thought last year was bad enough but this one has taken an even worse turn and I cannot function at all it seems. I go for help and do not get any.  Thank you for your kind words though x

Absolutely nothing. My doctors are useless. I have had endless appointments but they treat me as a joke and also lie to me and twist things to make me look like I make it up. They thought my situation may be down to menopause starting, but of course, no HRT as there is a national shortage.  I have beeen up there with my husband on numerous occasions and get told to make appointments at the reception to follow up then they pretend they "are not allowed to do it", even though I was told by the doctor to. Then it's phone back next week, we do that and they then change it to phone on the day, and we did that and of course - no appointments available. I flipped that last time (a week or so ago) and my husband was so scared of my anger and talks of ending it all, that he called 999 and a paramedic phoned me and said she would try to get me an appointment - of course she failed as they are so useless up that doctors.  We did get an appointment last Tues with some girl who should not even be qualified in my opinion, and all she did was refer me to ENT - this could have easily been done over the phone.  I am wondering did she even do the referral? If I felt better I would change the doctors I am at.  Thank you for asking and hope you are ok x

Morning Debs 

I just looked at your very first post and see that you saw an ENT specialists back in September. Surely you should still be under that specialist ? Have you tried yourself to make another appointment with him /her and say that since your last visit nothing has changed , if anything things have got a little worse . 
 

I think that's the route I would take if you can . Give it a go .

Hugs Ginny x x 

Hi Ginny - I had 2 ENT appointments in 2019 - the first for lymph nodes and sore throat in June, and he said that it was not cancer and gave me some useless throat spray. It still persisted. Endless Drs appointments and then scan on neck/thyroid - nothing but a "small thyroid".  I also developed ectopic heartbeats (found on a visit to A&E) and got told to check it out sometime. These got worse and after months of begging to be sorted out at doctors, had ECG and then a 24 hour ECG and eventually this January had an echocardiogram which showed I had them but no other problem with heart.  The specialist (after another long wait for a follow up appt) said that no idea why had them and could be anxiety.  I said could it be linked to menopause (as I had missed 2 periods and last year they were all over the place) and he said possibly. We enquired at Doctors re HRT and there is none about to take. So it's just left hanging.  I did have another ENT appt in November, but it was a nurse who did it and said my throat and vocal chords were ok. Once more left hanging in the air.  Doctors say to stop smoking - I have tried to cut down but how my anxiety is over this illness never going and this coronavirus now in my town, it's hard to stop totally.  This other ENT appt I want booked is for my nose - I had another cold start 7 weeks ago today with a sore throat then the sneezing and coughing etc. Tried the Neilmed nasal rinse stuff as a few years ago it helped - it made it worse and the inner part of my septum is all blown out and red and blocked my nostril and I am terrified that it's cancer.  Yet that Doctor looked up nose and said she could not see anything??  Gave me a 5 day course of prednisolone which made me nearly lose my mind how it caused me to think suicidal thoughts and it did not reduce the swelling. Then all the stress about the appointments (which I explained in another post on here) and now just waiting.  Sorry this seems all garbled but I haven;t checked into this page a while and sorry not to explain more when it was happening. 

you should definitely try change your GP if that's the case or go to a private clinic, since your current doctors aren't giving you the attention to need. Maybe a new GP could give you the help you want. 

Btw have you ever had a CT/PET scan? If you haven't and your GP isn't letting you, maybe you should think about paying for one at a private clinic. It could be expensive, but it could relieve the stress you have. 

If I could get this ENT thing done, I would change doctors, but there are not really any near me that I can go to. I do not drive.  Then this surgery would  "lose" my records and every hospital or place that I go to for treatments would get confused, and the chemist... this all happened before when I changed surgeries to one near me when I moved to the other side of town 9 years ago.  I cannot afford private health care - I just do not have that sort of money sadly.

Thanks for replying Debsy. Sorry to hear you are feeling so depressed aswell. I'm still waiting for appointment. Sometimes I am in so much pain with my throat. I just wish I knew what is causing it. Friends are starting to think it's in my head which hurts me that they think that. I just feel I am in limbo now waiting for ENT. Its definitely affecting my quality of life. 

Thanks for replying Debsy. Sorry to hear you are feeling so depressed aswell. I'm still waiting for appointment. Sometimes I am in so much pain with my throat. I just wish I knew what is causing it. Friends are starting to think it's in my head which hurts me that they think that. I just feel I am in limbo now waiting for ENT. Its definitely affecting my quality of life. 

I HATE that, when people think you are imagining it. I have been accused of it as well, even from doctors.  Yeah because we want to pretend we are in pain hey?!  I am not sure if that referral has even gone through and if I ring up to ask, I will get snapped at and told that there are "other more important things doctors are worried about and busy with".  Hugs to you and so hope you get seen soon xx

Hi,
Had a sore throat on and off for a couple of years now. I do suffer from reflux so when I went to the ENT chap he said the soreness was due to reflux and I was booked in for a gastroscopy. Yesterday I had the results from that which confirmed I had stomach polyps (from the long use of omeprazole) and island of Barrets Oesaphagitis (from years of reflux). Biopsies taken, nothing sinsister, recommend another gastroscopy in three years.However, guess what he said.....your sore throat is nothing to do with reflux you should see the ENT people.
My sore throat gets worse throughout the day especially if i am at work and talk a lot.
I like to think I am in good health other than my relux, dont smoke, dont drink much, not overweight, eat a good diet etc etc
I feel the same as you, frustrated, angry and upset at the same time. If I knew what caused it at least I would have an answer and hopefully get it sorted. Noone, even family members, dont seem to appreciate how I feel.
One thing it perhaps could be related to is my sinuses as about 30 years ago I was suffereing from a post nasal drip and I had to have my nose straightened and sinuses cleared. 
Oh well, here's hoping another trip to the ENT will be fruitful, ever the optimist....lol 
 

So ENT said you had reflux, then you hadn't in your throat?? No wonder you are confused.  I could not stand omeprazole. For some reason it made my weight rocket and cause even more stomach problems than ever before.

My throat is still sore on and off but I seem to have more trouble with my sinuses and breathing and been so tight in the chest.  It could be hormones with me, but once again, nothing ever done to help and there was no HRT to even give me. 

With this virus thing ongoing for what seems forever, I worry that people including myself, will never get well or to the bottom of our problems ever. And that terrifies me.  

Best of luck and hope you get sorted soon,

How are you doing Debsy ?

I'm still suffering with my throat. Got a hospital appointment but not until July. So depressed with it all. 

Thank you for asking Micky.

Not doing well at all.  It;s not so much my actual throat  that is sore now,but it's the breathlessness and tightness in it which frightens me. Of course, I am terrified it's that virus, as so many of my symptoms match it, but not got a cough.  I do get hot flushes.  Also terrible burning smell in my nose that has worsened in the last month, and something growing inside my nose where the septum is - I had an ENT referral made but no idea when I will ever get that appointment now.

I so hope you can get your appointment -  I am hoping this lockdown will not be in place in July but I am very doubtful it can be now.

Sending lots of hugs to you, I feel really depressed too xxx 

Hi Debsy, sorry to hear you're not doing to well. Its horrible when suffering with health issues. I know what your saying about the virus. It is such a worry. I hope you can get seen yourself with all the symptoms you are suffering with. This virus situation has just put everything on hold. Big hug to you. Take care x 

Thank you so much. I cannot even keep calm. My anxiety is absolutely out of control and the constant noise from next door and their horrible kid does my head in on a daily basis. Just constant screaming, banging, yelling.  I just feel beyond despair and having problems with my breathing and feel so exhausted xx

Hey everyone, I just came across this thread and I'm relieved but also sad to see that many of you are experiencing these symptoms, it is strange to take some comfort in that.

I have a sore throat from around December, it wasn't intense pain but I knew it was there. I had a really bad virus infection in January and had the worst cough I've ever had. Thankfully the virus ran its a course (as far as I'm aware it was nothing to do with COVID-19, but who can be sure?) At the end of January, I actually felt my sore throat was gone and I was feeling pretty healthy again. The past month however the niggling sore throat feeling came back and then last week it went to a whole new level of feeling like it was on fire.

I had a diagnosis of GERD a few years ago which has given me some issues so suspected it could be something related to that? However, I did call the doctor last week and describe my symptoms, back of my mouth looks quite raw and my right tonsil looks slightly enlarged and was giving some antibiotics which will be done this week. Doesn't seem to make an impact so far. I don't feel the pain when I'm eating or drinking, and have even tried taking a spoon of honey to help. I find talking a lot will set it off even more and trying to occupy my mind can help sometimes but I really don't think it's anxiety. The doctor wants to test for Glandular Fever if I still have symptoms after the antibiotics. 

I really resonate with you Debsy about somebody thinking it's all in your head, it's so dishearting when you are actually suffering from something on a day to day basis and you're told it's just in your head.

I know this post doesn't really offer much, but I felt compelled to reply. Obviously, with our current situation, it's going to be hard to investigate this further and I'm staying positive in thinking it's not something sinister but when you do have something impacting your daily life and you just don't have any answers it can really leave you feeling helpless. 

I'll be checking back on this thread every once and a while to keep you updated - and I just want you to know you are not alone if you are reading this.

Sounds like me last year - my doctors wasted MONTHS saying it was silent reflux and gave me omeprazole that did nothing but cause weight gain and stomach problems. Then they said I had glandular fever - despite 2 blood tests saying negative but was told "you can still have it if the tests are negative" which seemed ludicrous to me.  Was referred to ENT and had the camera down throat and there was no reflux or even any sign I had had it. I was given a throat spray but that was useless.  Just no idea why they cannot diagnose anything for us.  Mine all started with a normal cold March 2019 and has never fully gone away, but led to lots of other amounting ailments and pain.  So hope you can get help better than I got.

Looks like I'm not the only one suffering from this. I've been suffering from this for 15ish months to be exact. Start from December 2018. One day woke up from a nagging sore throat. No fever/colds. Went to the GP and they gave me antibiotics and it never worked, tired GERD tablets for 4/5weeks and didn't make a difference. Then went to the ENT put a camera down my nose and they found that one tonsil was bigger than the other.  They said I am going to need a tonsilectomy. I went with the surgery. 4/5 weeks after the surgery I went back as an outpatient for a check up and I still complained of the nagging sore throat. The ENT specialist just looked at my throat and said to 'Give it more time to heal'. Few months later before xmas 2019, went back to the GP and complained of a sore throat again. My GP tried to pull the anxiety card on me but booked for a bloodtest for Vitamin deficiency (I think) and Unereactive Thyroid. Results came back clear. So I went back to my GP and they refered me to the ENT which WAS due this april but due to COVID, it got canceled.

I can drink fine but when I eat solid foods I can feel something small scraping at the back of my throat. Due to this, alot of the times I do not feeling like speaking or going out because of the discomfort I am experiencing. I'm starting to feel very down and depressed because I have a feeling the doctor wont find anything and say its in my head. Will I have to live with this for the rest of my life? I know its not really anxiety because I went on holiday for 2 weeks and I was still in pain/discomfort.

 I'm 21y/o never smoked and only drink on special occasions.