Hi there. I have had the same thing for 6 months now.  All started from a normal cold and then a chest infection.

Had a few CBCs and all come back clear, as did infection markers.

They thought it was silent reflux and had 5 weeks of Omeprazole which did nothing.

Had the camera down throat at ENT and he said no cancer but had swollen lymph nodes and should be ok in a few weeks. This was June and it's still bad now.

Other doctors thought it was Glandular Fever, but 2 blood tests didn't confirm it. Was not strep either.

Now they think it could be my thyroid (been on Levo for 11 years now).

Got a throat ultrasound in a couple of weeks and done nothing but cry and cry for months as convinced I have cancer.  

I so hope everyone on this thread is ok now and found out what they have.

Hi debsy, how are you now? 

Sounds identical to what I am going through. They have never suggested CT for me.  Had most of the other tests you have had and all normal. They tried to get mine diagnosed as either glandular fever or Reflux.  2 ENT appointments said it wasn't. I am only glad I am not the only one suffering like this and hope you will be well soon x 

I know how exactly hou feel. I've had a horrendous sore throat since 6 December. Told it was viral and that the reason I couldn't swallow because of gastritis. Nope, it's not that. Then this diagnosis became tonsillitis with an abscess so given antibiotics. Kept going back as constant fluid coming from my right tonsil. Keep getting the brush off from various GPS. Two weeks later the bacterial tonsillitis is back with lots of fluid coming from tonsil. When I explain to GP they say they either can't see anything or it's just mucus. Ended up at ENT on New Years Eve who said my tonsils weren't large enough for tonsillitis & also have me the brush off after literally looking in my mouth for 2 seconds. I've just had another 10 days antibiotic & had some swab tests done with a blood test for glandular fever this week. I'm so frustrated that nobody is listening to me & helping find the cause. I just keep getting told that my symptoms are not the normal presentation for a throat abscess or they don't know what it could be. I think next step is to strongly request a scan to see if there's something lurking that's not obvious from having a quick look in my mouth. Been off work for 4 weeks & so frustrated as getting nowhere.

Mintie - I feel so, so sorry for you.  Your story sounds so similar to mine.  

My throat isn't so bad lately but still feels constricted and sore on and off and SICK of hearing it's anxiety based.  I am in acute pain with constocondrits which is getting worse and up A&E again last night myself for shooting pains down chest that have worsened.  Once more tests all come back normal and all they could say is  maybe "fibromyalgia" or maybe "slipped rib syndrome" and sent on my way with the usual "anxiety and take ibuprofen" rubbish.

I have a cardio appt next week about my increasing ectopic beats and palpitations but guess that will just come back flipping normal as well.

I think a scan should be your next step, but why arent doctors suggesting this?  It seems we do their jobs for them trying to find out what we could have online (even though they HATE when you do that - well try doing your jobs and sending us to specialists if you have no idea then!!).

Best of luck and let me know how you get on xx

Hi, I had been suffering with a persistent sore throat for several months, but eventually I think I may have stumbled on the cause, at least in my case.

My GP initially felt it was a bacterial infection and prescribed an antibiotic.  Problem persisted and I had a number of follow up tests with ENT specialist all of which came back normal, including the reflux monitor which I had to wear for 24 hours. 

I went on holiday to the US for a couple of weeks in November and within two days of getting there the soreness in my throat when I swallow had all but disappeared.  Obviously, I began thinking maybe it was related to anxiety and the fact I was on vacation I was not thinking about it so much.  Having not had the problem for most of my vacation I returned home quite pleased with myself only for the problem to return within about 36 hours. 

A friend in the US had suggested that if it did return when I got home, I should examine closely my home and work environment to check for any possible triggers.  To cut a long story short my better half has a fondness for scented candles, fragranced oil burners and those plugin air fresheners around the house.  I asked that we cease using all of them for a week or so to see if it would have any impact. Low and behold after a few days the sore throat again went away.  It has now been three weeks since we discontinued fragrance oil, essential oil, and other scented products around the home and my symptoms thankfully have not returned. This may not help you directly but may be of assistance to someone.

Good luck and I hope you get to the bottom of the problem sooner rather than later.

I am glad you found out what caused yours. We don;t use things like oil burners in our home, so it's not that x

Hi just wanted to ask how you were doing? Are the results fine?

Hi just wanted to ask how are u doing now?

Thanks 

Iv had the camera up nose down throat not the best experience but it was clear thankfully 

I still get the pain in the side of throat it comes on and off and quite sever when it does  

it's weird sometimes I feel like I can make it worse with the way my neck is I do still worry about it but try to think positive which I'm not great at 

how are you 

Hi thank you for asking.

I still have the same symptoms - painful swallowing, fatigue, weight loss, sore throat, dry mouth. 

I saw an ENT consultant who gave me the all clear. I've also had a Barium Swallow which came back as abnormal. Apparently I have a crycopharangeal indentation in the muscle between the pharynx & the food pipe. I haven't yet had a follow up appointment for this - saw the report in my online records. No indication that it is cancer but hopefully something can be done to rectify it. I've also got a blood test to check for auto immune diseases.

The results did come back clear, but once more, nothing is ever followed up.  Sadly it looks like it's deja vu from last year as recently got a cold/cough and my throat is once again sore.  I just do not know what to do anymore.  Thank you so much for asking Nideba, and hope you are ok xx

The results did come back clear, but once more, nothing is ever followed up.  Sadly it looks like it's deja vu from last year as recently got a cold/cough and my throat is once again sore.  I just do not know what to do anymore.  Thank you so much for asking Nideba, and hope you are ok xx

I have been suffering with a sore throat for 5 months now and feel as though its getting worse. I have had blood tests which were fine. Also camera up the nose and checking throat. Everything ok apart from oral thrush. Was given tablets for that. Throat still very sore and feel as though I have sinus problems. Feels worse after eating and got put on lanzaprozole but that has done nothing. Waiting for another appointment at Ent. Seriously depressed with it now. 

Sorry to hear you are still suffering Micky. I have the same and my sinuses are having problems too. Tried saline nasal rinse but it did something odd to my right sinus and it is all blown out and blocking my nostril. I am terrified that is cancer too. I am on a waiting list for ENT  but no idea if and when will be seen as my relationship with my Doctor is at an all time low.  I feel so depressed to and wanted to end my life on a few occasions recently. I get no help there either and cannot even take antidepressants as I have an eye condition.  I am terrified I will get this coronavirus too.  I feel like I am a prisoner in my own home and when I do go out I feel panicky. I so hope you get your appointment soon and they can help you.   

Hi Debsy_1971,

I just wanted to drop you a note to say I'm sorry to hear how things have been going recently and how you're feeling.

If you'd like to talk anything through with our nurses at any point, you can reach them on 0808 800 4040 - Monday-Friday, 9-5.

In terms of your general mood, do give Samaritans a call - they are always available and always ready to support and offer good avice. Their number is 116 123.

I hope you're finding this forum useful and continue to use it to reach out to others.

Wishing you all the best,

Ben
Cancer Chat Moderator

I was told every visit when I had a camera down that they couldn't see anything ( I hade sore throat 5 months ) . I then noticed pea size lumps on my neck , swollen lymph glands so they did a biopsy & MRI my cancer is at the base of my tongue never showed up when looked at by the camera . Thank god my lymph became enlarged . I am just waiting for biopsies on my lymph & a CT scan to  get my cancer staged and then I'm ready to start treatment . 36 radio & 6 chemo . We know our own bodies I believe Go back & back again . If you have health insurance use that or if you can afford it go for a private opinion . Good luck I hope you get it sorted & I hope it's not cancer x x x PScjust because they can't see anything with their camera doesn't mean it's not there I'm proof of that . X x x

hugs Ginny x x z

pls do give an update when you find out what stage the cancer is. Im hoping the best for you!

is there any update on your situation? Have you founf out the issue yet?

Thanks & I will x x 

Thank you Ben - I thought last year was bad enough but this one has taken an even worse turn and I cannot function at all it seems. I go for help and do not get any.  Thank you for your kind words though x

Absolutely nothing. My doctors are useless. I have had endless appointments but they treat me as a joke and also lie to me and twist things to make me look like I make it up. They thought my situation may be down to menopause starting, but of course, no HRT as there is a national shortage.  I have beeen up there with my husband on numerous occasions and get told to make appointments at the reception to follow up then they pretend they "are not allowed to do it", even though I was told by the doctor to. Then it's phone back next week, we do that and they then change it to phone on the day, and we did that and of course - no appointments available. I flipped that last time (a week or so ago) and my husband was so scared of my anger and talks of ending it all, that he called 999 and a paramedic phoned me and said she would try to get me an appointment - of course she failed as they are so useless up that doctors.  We did get an appointment last Tues with some girl who should not even be qualified in my opinion, and all she did was refer me to ENT - this could have easily been done over the phone.  I am wondering did she even do the referral? If I felt better I would change the doctors I am at.  Thank you for asking and hope you are ok x

Morning Debs 

I just looked at your very first post and see that you saw an ENT specialists back in September. Surely you should still be under that specialist ? Have you tried yourself to make another appointment with him /her and say that since your last visit nothing has changed , if anything things have got a little worse . 
 

I think that's the route I would take if you can . Give it a go .

Hugs Ginny x x