hello I know this was posted in Feb but I have just had the same and waiting on an urgent referral as we speak! How did you get on? X

In the end they did a urgent referral to gynaecology as there was such a long wait for colpscopy. The specialist looked and acouple weeks later lasered the ectropian and that was it. She didnt even mention cc and just said an ectropian is common if u have been on the pill for a long time or during pregnancy.i have just had a smear test done and nothing was said about anything looking sore etc so I assume the ectropian has gone. Just waiting the dreaded smear test results.

Looking back I think my hormones were so high and low due to having my daughter that I just didnt deal with things rationally at all. I hadn't even had a worrying smear result but in my head I convinced myself the ectropian was something nasty. The depo didnt so me any favours either so am off of that and much happier on the pill.

Hope you are okay? Xx

So sorry to hear you are going through this hun. So cut a long story short I've been completely removed from the pill, I'm not on any form of contreception at the moment. This is because I didn't actually have a form of erosion since they removed after surgery, it's basicslly hormones. I would definately explore this but you are on a copper coil which is hormone free.

So basically when they treat the erosion it should just go. Mine cervix going to take some time to heal by itself then hopefully I can have a copper coil fitted myself. Maybe explore the hormonal route, I wouldn't worry though I've had erosion lazered, silver nitrate it gives you mild period pain. Erosion is nothing to do with hpv or cancer. I've had smears which were borderline CIN and they went by themselves. Anybody that said its related hasn't done much research as I've seen 5 gynos and each have said no. Good luck hun, I still bleed and spot after sex but they said this will take time to get hormones out my system and my cervix will heal x 

I feel glad I've found this thread. Had a clear smear and negative hpv test in October but recently had bleeding after sex. Been to the doctors tonight and she said it looks like an ectropian but wants me to have a colposcopy to be on the safe side. I lost a family member to cancer so my mind has gone into over drive and I can't stop crying. I have a 13 month old daughter and I feel worried sick! I thought that a clear smear and negative hpv would mean I was ok? I'm hoping I don't have to wait long but she said normally it takes 4 weeks to be seen.

Hi, your symptoms sound exactly like mine, abnormal smear last year, CIN1. 
a lot of discharge following the smear lasting months! Misdiagnosed BV also.

had a period beginning of this year lasting 2 and a half to 3 weeks, and bleeding after intercourse.

GP said erosion, referred into gynae, who I saw today and has referred me for urgent ultrasound and colcoscopy! 
It is all so worrying, hoping to god that it's just erosion which sorts itself out!!!!

Hello,

So I started getting pains last July during sex really sharp deep pains to the point as soon as it goes in I'm having to stop, then my periods started to get really painful in September, to the point of nearly fainting on the first day of it, I'm now spotting before periods for a few days, in agony with my back which feels like it's in the back of my pelvis, had swabs taken (all clear) where I bled and nurse said my cervix was red which I've never experienced before I'm nearly 30 upto date with smears which has been fine, had a coil in 2017 but had that taken out after 4 month as it was awful haven't been on the pill since 2016, I've just had my referral letter for colposcopy and it's not until the middle of May, just feel a bit alone worrying and feeling my doctors aren't doing enough, haven't had bloods or anything offered to me to check for infection/inflammation, as all of you are just really worried it's something sinister and probably googled too much! Sex is a no go at the minute with me and my partner luckily he's understanding! Just really worried now. 

Hi Megan,

I hope you're well! Just wondered how you got on? 
 

xxx

Hi Megan. 

I've not posted on this thread for ages either but have returned for reassurance after ongoing issues. Your experience sounds very similar to mine and I just wanted to reach out again to share stories / support. 

I also have had an ongoing ectropian , silly heavy periods, a colonoscopy which came back with CIN 1 and then 2 clear smears since as check ups after a year (in which time I had my son). 

My latest experience was returning to the GP again with post coital bleeding and she had a look and decided to urgently refer me after seeing a white patch and ectropian. The consultant once again told me it was an ectropian and sent me away. That was in September. 9 months later and I'm still get uncomfortable sex and very tiny bit of blood after sex so I've gone back again but obvs couldn't actually see the doctor this time, just a phone appointment. She said the wait is now super super long to see a gyne due to covid (we're talking 7 months min) so I'm thinking of going private to have some investigations. I'm so so tired of this. 

The stupidly long periods, the pain, the ever returning and anxiety creating ectropian, the uncomfortable sex. It's just rough. 

I totally and utterly get how you must feel.xxxxx

Hi All,

Just wanted to write on here as I'm a bit worried about a result from the dr's recently and wanted some advice!

I've been on Cerelle for 4 years now (progestrogen only pill), and about a month ago I started experiencing some dark brown/ pinky discharge / bleeding, I haven't had this before whilst being on the pill and it's been on and off, about a week and a half of light bleeding / discharge and then a few days with nothing. I called the Dr's and spoke to a nurse last Friday to discuss my symptoms and she asked me to go in so she could look at my cervix and do some swabs (I was thinking this would be a smear test). She said I had a small cervical erosion which was probably causing the bleeding and then took swabs for STD's, BV, Thrush and other various infections, I'm only 23 so she said I don't get a smear test until 25 which made me a bit nervous because surely she should have just done one whilst I was there as this is unusual for me? 
 

She then proceeded to say that I need to wait for the test results (about a week) and then speak to the Dr to see if they want to refer me or not... I don't know if I should be pushing for a referral or if this is normal at my age? I've been considering coming off all hormonal contreception recently as I want to find a more natural way of looking after my body.

Any advice / experiences would be helpful! 
 

Lauren x

Hey, I'm 21 and had similar situation but my symptom was just blood during intercourse. I'm on the combined pill and have been since I was 16 and this can cause the erosion so I may decide to come off it too. I had the infection swabs and they came back normal so I was referred to the hospital, so hopefully they will do that for you to. they said I have an erosion and that's probably the reason but I was referred to have a colposcopy to check. They saw the erosion but took biopsies to make sure that's what it was so I'm just waiting for that to come back, if it's just the erosion I can get treatment for it. I was surprised I was taken quite seriously for my age! They may do a similar process for you. Hope it goes well x

Hey Hattie! Thanks for your reply. So I did actually get the test results back and they said I had a really high level of Candida (Thrush), so had to get that treated, I'm quite prone to getting thrush! They also said there was a very minimal prescence of Strep B, which isn't something to worry about until I am pregnant (still worrying!), anyway a few days after these results came back, my GP called me again and said they have spoken to a colleague and they have decided to refer me to the hospital for a colcoscopy so I guess it will be a similar situation to you! I'm nervous about it but glad they are referring me.

For reference I have come off the pill completely and are just using condoms now and my symptoms have stopped! I hope your biopsies come back safe and it is just the erosion! Would be good to hear your result if you want to share :) 

Lauren x

Hi! 
 

Its good they've referred you just to be on the safe side probably. The colposcopy process was fine, it was only the biopsies that were slightly uncomfortable/painful but nothing extreme and you may not even have one. 

Im glad your symptoms have stopped! I've always been the one to never have any side effects from the pill but maybe I should just come off it too. During the colposcopy they put some silver nitrate on my cervix so that may stop the bleeding. Yeah I'm hoping it'll be ok but who knows! It's a horrible situation when erosion symptoms are very similar to cc.

Hattie x

Hi! 
 

Its good they've referred you just to be on the safe side probably. The colposcopy process was fine, it was only the biopsies that were slightly uncomfortable/painful but nothing extreme and you may not even have one. 

Im glad your symptoms have stopped! I've always been the one to never have any side effects from the pill but maybe I should just come off it too. During the colposcopy they put some silver nitrate on my cervix so that may stop the bleeding. Yeah I'm hoping it'll be ok but who knows! It's a horrible situation when erosion symptoms are very similar to cc.

Hattie x

Fingers crossed! Sorry to hear the biopsies were a bit uncomfortable, the procedures can be a little invasive sometimes. 
 

This was the only method of contreception I have found works for me with not many side effects (weight gain and loss of libido), I've tried the injection the IUD and been on a few other pills too. Although I'm sad that this one didn't work out, I'm grateful for coming off of it because I personally think they can be more dangerous to your body than dr's and sexual health advisers say... but that's just my opinion! 
 

I hope the bleeding stops for you and hopefully this will be the end of your symptoms, but your right, as soon as symptoms are remotely similar to cancer it starts to make you anxious, it would too anyone - it's good to try and stay positive and think that the chances at our age are very unlikely.

Lauren x

Hi! 
so I had my biopsy results and I have hpv and CIN1 which are the low grade pre cancerous cells and although these aren't great results, I know the bleeding isn't to do with cancer and it is just the cervical erosion. I'm glad I've gone through this as otherwise I wouldn't have known about the cell changes until I was 25 in which they could've progressed. I have another colposcopy in a year to check but this type of cell change and the hpv are expected to clear up within a year. I need to ring up now and find out what treatment I can get for the erosion or whether I should come off the combined pill. 
I hope it all goes well for you! As you said, our age is a positive factor in these kind of situations. 
 

hattie x

Hey! I'm really happy to hear it's just CIN1 for you. 

I had my colposcopy yesterday and she said there were some abnormal changes and she had to take a biopsy. She said from what she saw they were CIN2, and pre cancerous. Which made me instantly panic and I started crying.

The doctor I had was very factual and not particularly empathetic, plus there was a student nurse, and a nurse in there too, so 3 people in total, it was all a bit much! 
 

I have to wait for the biopsy results to come back, but am expecting I will need treatment. I am very anxious at the chance they will come back as cancerous rather than CIN2, but some people are saying they would have been able to see if they were cancerous cells not just abnormal from the colposcopy. 
 

My cervical erosion was also still there, I hope this clears up soon! 
 

Lauren x

Hi, 

thanks for replying again! The bleeding has kinda stopped for me at the moment so I'm not sure whether to just stay on the pill and deal with it if it happens again. I'm glad that there's nothing serious going on instead.

Im sorry to hear you've been feeling anxious and that the colposcopy wasn't as easy or reassuring as it should've been. The wait for the result will be difficult but you just need to distract yourself and I'm sure it'll all be fine. The nurses are really specialised so I'm sure it's only CC2 and if so then you can get treatment and then it's removed. Like me, I'm sure you'll be glad that you've been checked out, your symptoms could be due to the erosion still. 
I hope everything goes well for you, if you would like then let me know how your results go and the next step x 

Hattie

Hey Hattie,

I hope you're well! I wanted to let you know that my test results came back completely normal which I'm really shocked about. I hope you've not experienced any more or new symptoms and are all well.

take care and thanks for your support throughout it's been really comforting. 
 

xx