Scared to find out the answers

Hi everyone, my name is Sarah. 

In the past 9 months I've lost 9.5 stones (I was very overweight) with just a lack of appetite. I discovered a hard lump on my neck about 5 months ago alongside becoming fatigued, having night sweats, severe itching, daily migraines, daily nausea and vomiting, feeling too full to eat, a dry cough, hearing loss in one ear and difficulty swallowing. I am too tired to do much other than  sit and sleep.

I was reluctant to go to my GP as my mum passed away from pancreatic cancer last year and I didn't want to go to the doctors because I didnt want to make a big deal out of my symptoms after my mum had suffered so much.

Anyway, 10 days ago I decided that I had to go and see a GP. She felt the lump in my neck and then told me she had felt more of them. She said that I have thrush all down the back of my throat and that she recorded that I had lost a further 10kg since I was last weighed at hospital 2 months ago. She listened to my chest and said she could hear "something" on my left lung so sent me for a chest x ray the same day.

She also referred me for the 2 week wait service to the Head and Neck clinic - my appointment is tomorrow afternoon. She put on my letter that she found a neck mass, salivary mass and nasal blockage.

I am very anxious and scared about tomorrow. I wondered if anyone had any advice on what to expect at the clinic? 

I'm 20 years old and I was planning on starting university this year, but my health is going further and further downhill and I don't know what to expect.

Does anyone know what to expect at the clinic tomorrow? 

Any advice is much appreciated. Sorry if this post isn't suitable, I just don't want to upset my boyfriend and dad by talking about how I feel xx

  • Hi there ... and welcome ..

    Most threads on here talk about all sorts .. so your thread is fine .. now I can't help with what will happen at your clinic as I'm a breast cancer lass .. but guessing .. they'll look at everything .. maybe a scan .. and quite possible a small sample for testing ... so if they do, don't panic as anything is better under the microscope to know for sure ... 

    I can't stop you feeling scared, we all did .. it's the worse part as the "what ifs" creep in ... and trust me no one gets away with not being anxious. . But try to keep busy .. and it just maybe something else ... most lumps and bumps are o.k .. but you know there's lots of us here , all with  different cancers and different treatments and you'll always get someone here to hold your hand ... 

    So anything you want to say or do, this is the place .. and you know, it's so hard telling loved ones what's wrong .. but it's a lonely road to walk alone .. yes they'll be worried and scared for you ... but they won't thank you for keeping them in the dark .. and having someone you love with you on appointments and tests is so helpfull .. to give you a high 5 if o.k and a shoulder to lean on if not .. 

    Let us know how you go .. big vertual hug ... Chrissie xx

  • Hi soupytwist.

    I referred to the ENT this time last year on the urgent pathway.  At the initial meeting, the consultant took a medical history, then gave me a physical, feeling all around my neck and finally putting an endoscope up my nose to have a look around.  You might expect that to be uncomfortable, but it wasn't at all. He then referred me for a head/neck MRI.

    The MRI didn't reveal anything unpleasant, but the consultant still wanted to be sure so I was referred for procedure called "panendoscopy with biopsies" under general anaesthetic.  Modern anaesthetics are great and I went home on the same day, a few hours after the procedure.   I then had a wait for results, which came back clear.

    In discussions with other people, the pattern of endoscope up the nose, MRI, and possible pandendoscopy seems pretty common.

    With your lymph node issue, I would expect an ultrasound, which may or may not be done on the same day, and possibly either or both CT and MRI scans. 

    Be aware that these days the tendency is to give every patient every possible test and scan, so being referred for further tests and scans is the norm, and nothing to get alarmed about. 

    Unfortunately, tomorrow will probably be the start of the process, not the end, and you may not get all the answers you seek at your first appointment.  However, your chest X-ray result may be back by now. If it was ordered by your GP, then the GP surgery should have the results. I suggest you give them a ring. 

    Best of luck tomorrow. Please tell us how you get on. We'll be here if you need someone to talk to.