Hello,

Sorry that you’re going through this worry at the moment. I am currently going through the exact same. I have 8 lymph nodes that I can feel, 3 on the base of the back of my neck have defiantly been there for about 2 years. Recently found more above my collar bone and sides of neck and behind ear. All pea sized, soft and very moveable. I haven’t been ill recently which sparked my worry.

I went to the doctors on Wednesday who felt them all, had to point him to some as he couldn’t feel them but found them eventually. Said it was unlikely anything sinister but referred me to have an ultrasound so I’m waiting for an appointment to come through. He didn’t tell me if it was going through as urgent.

my anxiety is also through the roof I have no other symptoms apart from being tired but I have a one and half year old and I am also 10 weeks pregnant. I feel so worried about all of this and can only think the worse all information I can find points to cancer. 

how did you get on at the doctors?

I went ant to the 

Hi sorry so late at posting again I didn't think anyone would've text me on this lol , the doctor that day said she couldn't feel the one which I think is around 2cm , she kept trying but couldn't feel it which was very frustrating because I know it's deffinatley there and but the other ones she could feel she said felt normal, I also discussed with her my health anxiety and she referred me for CBT which I haven't had yet I just hope when I do it's going to help with this horrendous anxiety, still got all the same nodes now , haven't changed in size I don't think but still worry me daily

Hi Marie.1234

i really understand your anxiety I am exactly the same everyday!my lymph nodes have been swollen since March last year and the biggest one u der my jaw is now 2cm so it has slowly gotten bigger since March last year  where it was as measured at 1.2cm on ultrasound, In September I had an MRI and this one was 1.5cm but the report said not suspicious just slightly enlarged???I also have a rock hard one just down from my ear,my GP and ENT keep telling me they are reactive but I still have this fear it’s a cancer that’s spread there....especially as I have a small growth on my bottom eyelid same side as lymph nodes in my neck!I don’t understand if they are reactive they have never gone down?? I hope you can get some answers as to why yours are swollen, keep us updated and I wish you all the best! Xxx

Hi Miks77 

sorry to to hear about your lymph nodes and anxiety , we seem to be in the same boat , I went back to the doctors a few weeks ago and they finally referred me for a scan and ent appointment but it’s not until the 5th June the waiting is driving me mad! 

Have you told your doctors that one of your lymph nodes have grown? If nothing suspicious has shown up on neither your mri or ultra sound then that is quite reassuring but I know exactly how your feel because I never believe my doctors even though I know I should it’s a vicious circle , I will update when I’ve had my app , try not to worry too much ( easier said than done) 

take care x

Hi Marie.1234

Thanks for your reply! I did go back to my ENT dr as it’s really bothering me, i have a strange feeling in my neck under my jaw where the biggest node is almost like a throbbing feeling....it definitely has not gone down and if anything feels even bigger! I have yet another appointment for an ultrasound on Thursday.... certainly is hard not to worry I’m still worried it’s related to my eye as I’ve had ongoing problem with my right eye and this is the same side as the biggest lymph node.... I hope you manage to keep busy over the next month before your appointment I totally agree it’s very hard not to think about it and waiting for appointments doesn’t help the anxiety that’s for sure,for me it’s a constant worry and I just have a bad feeling that something has been missed! I will let you know how the ultrasound goes on Thursday and I wish you all the very best. My MRI was last year in September which did show the lymph node was enlarged 1.5cm then but not suspicious apparently but this node has now been in my neck along with other smaller ones for more then a year and now it’s growing.... So far they keep telling me it’s reactive... I just would like to know what it’s “ constantly “ reacting to! Have a great evening and will chat soon!

take care of you too! Xx

Hi Marie.1234

Thanks for your reply! I did go back to my ENT dr as it’s really bothering me, i have a strange feeling in my neck under my jaw where the biggest node is almost like a throbbing feeling....it definitely has not gone down and if anything feels even bigger! I have yet another appointment for an ultrasound on Thursday.... certainly is hard not to worry I’m still worried it’s related to my eye as I’ve had ongoing problem with my right eye and this is the same side as the biggest lymph node.... I hope you manage to keep busy over the next month before your appointment I totally agree it’s very hard not to think about it and waiting for appointments doesn’t help the anxiety that’s for sure,for me it’s a constant worry and I just have a bad feeling that something has been missed! I will let you know how the ultrasound goes on Thursday and I wish you all the very best. My MRI was last year in September which did show the lymph node was enlarged 1.5cm then but not suspicious apparently but this node has now been in my neck along with other smaller ones for more then a year and now it’s growing.... So far they keep telling me it’s reactive... I just would like to know what it’s “ constantly “ reacting to! Have a great evening and will chat soon!

take care of you too! Xx