Hi, I am so glad I read this as it’s EXACTLY the same as me. I have literally just got home and in bed after leaving my night shift early as I was in so much pain with this. Mine started 2 years ago, when I had significant swelling only on the left side of my lower abdomen, real cramp type pains and pressure pains. At the same time I was spotting so I went and got it checked at an out of hours GP surgery in the hospital. Said the spotting and the swelling weren’t linked and he said I had IBS, and it’s my large Howell that’s inflamed. Got buscopan and fybogel and sent in my way. They still don’t know what causes the spotting as I’ve has US scans, smears, cervix examinations etc and all clear - possibly hormonal... anyway, my left side has always swollen up now and again for the past 2 years, sometimes my tummy is flat as hell and nothing there, other times my god it’s like something from Alien. I don’t have dihorrea and not hugely constipated either. But the pain is sometimes so bad, it’s startes to hurt my back now and again, and I get pains in the top of my thighs maybe it’s a nerve being squashed with the pressure of the swelling. I sometimes have vagibal bleeding after a Howell movement too but again that’s been ruled out. I am tempted tomorrow to go a&e if this pain is still there or I can t sleep. Even my mum, my husband, my colleagues, my brothers all say oh my god please get that checked out it looks awful! The last 2 days I have felt a bit sick from it too and my appetite is non existent today I had a nap and woke up sweating and have been quite warm all night like a fever. Ideally I’d like to have a scan or x Ray in this part of my abdomen to see what the hell it is and sort or treat it. It’s getting me down and being told IBS all the time does not help! Sorry to go on, but I know how you feel and I’m so glad someone has literally explained exactly what I feel!

how have you got on since you posted this? 

Xxx

Hi, I am so glad I read this as it’s EXACTLY the same as me. I have literally just got home and in bed after leaving my night shift early as I was in so much pain with this. Mine started 2 years ago, when I had significant swelling only on the left side of my lower abdomen, real cramp type pains and pressure pains. At the same time I was spotting so I went and got it checked at an out of hours GP surgery in the hospital. Said the spotting and the swelling weren’t linked and he said I had IBS, and it’s my large Howell that’s inflamed. Got buscopan and fybogel and sent in my way. They still don’t know what causes the spotting as I’ve has US scans, smears, cervix examinations etc and all clear - possibly hormonal... anyway, my left side has always swollen up now and again for the past 2 years, sometimes my tummy is flat as hell and nothing there, other times my god it’s like something from Alien. I don’t have dihorrea and not hugely constipated either. But the pain is sometimes so bad, it’s startes to hurt my back now and again, and I get pains in the top of my thighs maybe it’s a nerve being squashed with the pressure of the swelling. I sometimes have vagibal bleeding after a Howell movement too but again that’s been ruled out. I am tempted tomorrow to go a&e if this pain is still there or I can t sleep. Even my mum, my husband, my colleagues, my brothers all say oh my god please get that checked out it looks awful! The last 2 days I have felt a bit sick from it too and my appetite is non existent today I had a nap and woke up sweating and have been quite warm all night like a fever. Ideally I’d like to have a scan or x Ray in this part of my abdomen to see what the hell it is and sort or treat it. It’s getting me down and being told IBS all the time does not help! Sorry to go on, but I know how you feel and I’m so glad someone has literally explained exactly what I feel!

how have you got on since you posted this? 

Xxx

Hi please read my post as I think we all have the same problem and I got cured for two years but now its back

It makes me sick when they pass it of as IBS because its not

I cannot believe this this is exactly exactly to the absolute letter what is happening with me. I'm 33, always been very very slim. Cannot put weight on. 3 years now I have had a lump appearing all over my stomach it moves when I lie flat and turn, can go into my side sometimes.  I can push it around. I get bubbles all around it almost popping (little balls appear in my ovaries) and the most strangest noises ever. My partner and everyone I've shown freaks out about it. I went to the doctors and in turn the hospital about a year and a half ago. They gave me an ultrasound and they even gave me and mri. I stayed there a week. They told me it was poo and I was contstipated. How can the same mass (poo) live in someone's body for 3 years and not poison them? The nurses were also commenting on my size 6 figure with 0 bloating. Constipated and no bloating??? I I had been to the toilet (number 2) 11 times over the week hospital stay. They gave me fibrogel orange, buscopan and omeprazel. And said it was I.b.s. This thing moves, it's makes me feel physically sick, it feels like it has a pulse, it hardens and comes to the surface of my body when I'm lying flat. In the last month I have had al the symptoms of water infection, And more recently a kidney infection. However after a hospital visit last week they said my urine was clear and sent me home with antibiotics. I absolutely feel like I'm going crazy. I've looked I don't know if it's all just because I'm skinny else I wouldn't feel it, but this could be why I can't put weight on? I'm 7st6 and I'm 33 I've had 3 children I've been big before. But can never retain weight. If anyone gets any answers to anything like this please share. X

I have the exact same as Tarakay 87. I can feel it moving around has a burning stinging sensation and I can feel my pulse in it at times. My bowels are regular. It feels like a mass or something. There is stinging pain all around my belly button as well. Going for ultrasound next week.

Let me know how you get on please. I am still suffering and it is causing more pain and problems. I'm suffering from blackouts now x

Hi,

I know this is 2 years later but did you ever get answers for this?? 
For just over two months I've felt a lump on my right side just above my hip but it goes in, so when I lie flat it will stick up then go back in, I have slight achy pain on that side some days and when I have period paid it's all on that one side too. I've been pestering the doctors and they are crap. I went for an ultrasound and they couldn't see anything so not I'm worried it's a lump further in and it's something bad. I ended up going a&e because my doctors were taking forever and the doctor there had me sitting up and down an he actually felt it where as the doctors couldn't because when I lie flat it's gone, I feel like they think I'm lying because I suffer with bad health anxiety. I don't know what I'm supposed to think when I can feel a lump moving around! Like you said it makes me feel sick it's like I have a baby there it's so strange!! Been trying for weeks to find stuff on the internet but just came accross this now x

Hey! This is pretty much the same as what I have drs have suggested IBS but I know I can feel the lump. Have you heard anything back about your problem? X