angiomyolipoma kidney tumour?

A few months ago I started getting uti symptoms which are still ongoing. I had an ultrasound last week and it picked up a 4mm shadow on my left kidney. The doctors report said they believe it’s a angiomyolipoma. I stopped googling this shortly after I started as it terrified me with things like haemorrhaging etc. I’m an otherwise healthy 35yo woman. Has anyone had experience with one of these? I’m going to be having further tests in the coming weeks so they can rule out other things. I can’t help feeling that 4mm is really small to give that diagnosis based on an ultrasound, it’s apparently quite a rare benign tumour. I’m just really scared and wanted to see if anyone out there’s had one of these and knows anything about these/kidney ultrasounds? Thank you x

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  • I had a large AML in 2015in my right kidney  had three embolizations over tweleve months it has shrunk but my scan today showed it had grown a bit a small one lower down hasnt changed but I have one now ih the left kidney please take it seriously mine started to heamorage take care 

  • Hi I also have a 10cm aml in my right kidney I'm considering for embolization but the doctors are freaking me out saying by doing this I may ultimately lose my whole kidney, believe me I'm soo worried don't know what to do, or should I just leave it as it is, 

    Did the doctor say that to you too about the risks and how big was your aml kindly can you let me know 

  • Hi annie456

    Exactly the same thing doctors said to me last Thursday when I went to see them ,now they r recommended me to have my whole kidney removed it's freaking me out crying all day long don't know what to do, I said to doctor I'll just leave it as it is and you may monitor me ,soon I said that he said if it bleeds yiu can die omg it freaked me out so he gave me a month's time to decide   please can yiu let me know what you have decided about yours thanks

  • Annie456 doctor said if I leave it it might bleed and I might collapse or die,and if I do  embolization I will loose my kidney,  please let me know what did you decide please let me soo thank yiu

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