Angiomyolipoma

Hello i am a 50 year old female and had major surgery on my left kidney 13 years ago. I collapsed im my kitchen and was taken to hospital for tests, i soon discovered that i had 4 growths on my kidney called angiomyolipomas and the biggest one was 10cm in size and there was a possibility that i could hemorrage if it burst so i had surgery to remove them and now have only a quarter of a kidney on my left.

I have regular mri scans as i have them on my other kidney and after a check up today i now know i still have small growths on my left.

I live a healthy life and still work full time as they cannot do any thing now untill these growths reach a certain size,hope this has helped.

Angiomyolipoma

Hello i am a 50 year old female and had major surgery on my left kidney 13 years ago. I collapsed im my kitchen and was taken to hospital for tests, i soon discovered that i had 4 growths on my kidney called angiomyolipomas and the biggest one was 10cm in size and there was a possibility that i could hemorrage if it burst so i had surgery to remove them and now have only a quarter of a kidney on my left.

I have regular mri scans as i have them on my other kidney and after a check up today i now know i still have small growths on my left.

I live a healthy life and still work full time as they cannot do any thing now untill these growths reach a certain size,hope this has helped.

Hi Paulajane,

Welcome to our forum. Thank you for telling us your story. It is always reassuring to hear how others are coping with AML. It is so good to hear that you are working full time. I am sure that this has been a great help to others who are at an earlier stage of AML.

I sincerely hope that you continue to avoid any more surgery.

Kind regards,

Jolamine xx

Hi everyone 

Found this site as I was looking for more information to see if AML falls under having a kidney disease. When I was 21 I was diagnosed with AML after exporitory surgery that resulted in my left kidney being removed. They identified a small aml on my right kidney but were not worried and continued to monitor me yearly. I then got pregnant at 29 and a second AML appeared healthy baby boy was born and I continued to be monitored yearly up until 2018 where I was discharged. I’m actuallly going to get refered back for my own piece of my but it’s been 20 years since me surgery and happened to be looking for information when. I came across this thread. 

Hi Maz,

A very warm welcome to our forum. I am sorry to hear about the problems you've had with your kidneys. I am a breast cancer lassie, but you may find it useful to go to the blue banner at the top of this page. Click on search and insert AML into the search box, then click. This will bring you to previous posts on the topic which you might find helpful.

I am so glad to hear that you have managed to have a healthy baby boy, despite your problems. Please let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx