Likely Nose Cancer - Need reassurance or info.

Hello all or any.

I'm here as I have had my world come crashing down at a very likely diagnosis of Nose cancer, not sure which type yet. I never had a clue what the symptoms were untill this pimple in my nose had got bigger and turned into a red hardish lump which has at least two white dots/debry at the tip of one side.  Which ruled out some of the safer lumps it could have been.

I've had Nasal congestion and stuffiness that doesn't get better and got worse for the last 4 years, I could smell like a Ash smell at times and shortness of breath at other times.The doctors thought it was somthing else and just throw some cream at me and a Nasal spray which did nothing. Always having a blocked nose on either side at a time. I have put in tones of research - Enough to know, the symptoms I seem to have and have had for a long time are direct symptoms of Nasal Cancer, nothing else.

I read somwhere that when the Lumo appears it tends to mean that the later stages of the cancer - When looking at the surivival rates, anything over stage 2 has a poor rating. Stage 1: 61% Stage 2:63% Stage 3:50% Stage 4:35% and this isn't even British states, they import tham from the US so I don't know what to think.

I also hear this Cancer is very rare, can't be that rare If I get it haha! I have a 4 year old and wife who depends on me, I'm so scared and shaken. I was given 50 / 50 from the doctor but thats only becasue she not allowed to state what she thought, only what the results bring up with my biopsy due for the 18th dec. I asked what else could it be - She didn't even look at me, she said a Nasal polyps might be the reason which are soft, mine isn't large or soft. 

I mean I do get it - When going on all the stuff that points towards it - Will I die! I'm so worried. Anyone had this , if so what stage? What does it mean when you find the lump, is it to late? 

I'm very scared of the so called "threatments" and if nothing can be done for you, I hear they don't even put you to sleep to pass away peacfully which gives me trust issues, I would not want to die slowly and painfully. I would rather a respecful end, I hear they do that elsewhere in Europe but not here which just adds more stress.

  • Hi Alan 

    I know very little about nasal cancer. However...just wanted to wish you well and tell you that even if it was worst case scenario -  the world is full of people with cancer (including advanced) that are very much enjoying life and living it relatively normally. So...no need to write yourself off or get carried away :-)(although being a person who experiences anxiety I understand completely how this could happen!!) 

    I’m here because my Mum got cancer. I see posts from people who are beating cancer here regularly (a lady just posted a few moments ago on the forum in fact!) 

     

  • Thank you for those words Starcatone - I'll take that encouragment! Means a lot! It really does.

    Im sure you have a deal of experience with cancer with your Mum going through it all. I to have had issues with anxiety - When the doctor told my it was 50/50 I had it. I didn't take it seriously at that time like it was not real, it hit me a few days later, I freaked out as things started to click in. I have been so stressed and anxious resulting in a constant headack. 

    I'll that that encouragment, cheers.

  • Hi Alan, I am a 31 year survivor of stage 4  nasopharyngeal cancer. Those statistics are very old and now  wrong. You have a 90 % chance of suviving nowdays and at least 50 % of living past 5 years without tumour recurring. Unfortunately this cancer is not very rare like it used to be. However treattments have greatly improved and so have survival rates. I know a good number of survivors. You won't get the same amount of long term side effects as  I have, if you do have this cancer , due to improvements in treatment.

    My Symptoms: weight loss, fatigue, loss of hearing, continual runny nose, frequent nose bleeds, then a lump on side of neck which grew very quickly. They biopsied the lump and I started radiotherapy two weeks later.
    I hope you get answers soon and that there is nothing to worry about. If you do get a cancer result, remember there are lots of suvivors nowadays, you will find them on social media groups, and we can help with questions you have. Take one day at a time.

  • You have no idea what that means to me! Thank for that info ! I can breath a bit now!  My lump is gowing so slow, but i have hand tremor. Thanks so much Croiseidh

  • Feel free to message me if you have questions, and as I say there are Nasopharyngeal support groups on facebook where you can get advice too.
    Wishing you a speedy recovery.

  • Thank you - Is Nose cancer the same as Nasopharyngeal?, I have only seen Nasal Cancer and Paranasal sinus cancer listed so far.

  • Hope everything goes well tomorrow, Alan! Be great to hear how you got on x 

  • Thank you Star - I will get back to you afterwards, thanks for the support.