Hi, I’ve just finished my treatment for grade 3 lymphoma. My story started like yours, the FNA biopsy will confirm if you have lymphoma and what kind you have. This unfortunately took three weeks for my results to come in. The waiting is the worst bit. After that I had to have a ct scan, this tells them what grade of cancer you have, again this took a few weeks for results to get back to consultant. I also had a bone marrow biopsy but not everyone has this. When all results are in the consultant has a multi disciplinary meeting with other cancer doctors and they all decide what the best treatment would be. A lot of people with low grade lymphoma don’t get treatment straight away and go on watch and wait. I was told I am in remission and pleased to say treatment wasn’t too bad. I just followed doctors orders and took all the medication they gave me. I have another ct scan next week and I’m hoping it’s still gone. I was told my lymphoma is not curable but treatable which shocks you when you hear that but I’m hoping it stays away for a while. Only time will tell. I also had practically every B symptom in the book but never even gave lymphoma a thought as I have auto immune problems and thought it was that. I wish you well with your biopsy which isn’t too bad, I had two taken from my neck then another 13 taken from under my arm, I think they were worried that it was aggressive but turned out it wasn’t. Let us know how you get on. 

Thanks for your reply

Since your treatment had your lymph nodes went away or down any? I hope you stay in your remission period aa long time. I have been reading up about low grade and alot of people can spend years in remission. 

Im very nervous about everything amd wprry to the point i feel unwell. I know i shouldnt as what will be will be whether i worry or not x

Hi, when I first went to my gp, after she examined me told me she was referring me to ENT and told me to still go even if it went down. I think she had a good idea it was abnormal then. When I went for my biopsy it was really large but went back down a bit a week later. When I started my treatment it started to get smaller. I had enlarged lymph nodes under my arm and the biggest concern was at side of my lungs. After my third treatment and ct scan most of them had went. Honestly I am the biggest wimp out and even told my husband I cudnt go through with chemo. My doctor was really nice and supportive and by the time I started my treatment I was up for it. The drugs they give you are so much better than years ago, I had minor problems but every time I saw the doctors or nurses they fixed them. If the anti sickness doesn’t work they want to know as they don’t want you being sick and they will give you a stronger one. Try not to worry, if I can do it anyone can. If I can be of any more help through this journey please get in touch. You May be lucky, but even if you are not, stay positive, take support from friends and family, I honestly think they feel worse than you. Take care x

Thanks scones i just cant wait to get this biopsy done and dusted. The thought of it terrifies me but I'll just have to get on with it lol x

Thanks scones i just cant wait to get this biopsy done and dusted. The thought of it terrifies me but I'll just have to get on with it lol x