Testing for lymphoma

Hey everyone

Im new on here and just need a place to get everything off my chest instead of scaring my OH to death.

Im 24 and currently going through Testing for lymphoma. Ive had a raised lump on my neck for up to a year (roughly about 12mm). 

Currently had my bloods done (all ok not sure what the bloods tell etc) and had my ENT appointment today and got the lovely camera down my nose  

They have now reffered me on for a scan and biopsy. 

I am so terrified. Its all i can think about. Ive worried myself sick. I have two young children and i keep imaging if i have this how much it will impact their young lives. 

This waiting process is so scary and unknown.

I would love to hear anyone's lymphoma stories wjen it comes to testing and diagnoses 

Thanks 

Xx

Parents
  • Hi,

    I’m in similar situation. My neck glands came up in June I went to the GP got referred under the 2 week process to ENT they did an ultrasound and downgraded the referral back to GP care. By August they were still up so went to the GP for bloods, they tested for HIV, Glandular fever all clear! Had one slightly raised protein which they did a second check on but it went down so again was left. By Oct glands were still up and I could feel my auxiliary (armpit) gland was up now. So back to GP, they did a chest x Ray this time which confirmed some glands on my chest were up. At this point I went private, they did a ct scan last week which is listed as abnormal as all glands are up, I went back to the ENT in the mean time they did an ultrasound and confirmed my gut feeling, which is that the glands I originally went to the doctor for in June, had gone down, my GP said that was inconsistent with cancer, which I’m clinging on to However as the ct was abnormal I have a biopsy on Thursday. I have not experienced any type b symptoms such as night sweats, weight loss etc. I play netball every week and do a weekly HIT training session, yet here I am. It’s terrifying and a constant mental battle whichfor me ranges from me visualising  my funeral to visualising getting the all clear. From other things I have read on here I think glands diseases etc are difficult to diagnose. My advice is to stay on top of your GP/specialists and ask them to rule out as much as possible as quickly as possible. Have you experienced any other symptoms? It is a very difficult experience so also make sure you have some good people around you to support you if possible xxx

  • Thanks for your reply. The quickness of everything has nearly terrified me more but so glad they have taken me seriously. 

    Ive had tiredness but im a community carer so very active job plus early morning and 2 wee young kids so hard to know what would be normal. Slight weight loss but as im slender already i loose weight extremly easily- slightest big of stress or worry. No night sweats.

    I hate this unknown ita driving me insane i feel like its taking over everything. I too keep thinking that im juat going to be diagnosed and not be able to get cured. Its horrendous and trying to keep a brave face. 

    I hope you get some answers soon. The not knowing is the worst. I dont think unless your in this situation ypu can understand that fear 

    Xx

Reply
  • Thanks for your reply. The quickness of everything has nearly terrified me more but so glad they have taken me seriously. 

    Ive had tiredness but im a community carer so very active job plus early morning and 2 wee young kids so hard to know what would be normal. Slight weight loss but as im slender already i loose weight extremly easily- slightest big of stress or worry. No night sweats.

    I hate this unknown ita driving me insane i feel like its taking over everything. I too keep thinking that im juat going to be diagnosed and not be able to get cured. Its horrendous and trying to keep a brave face. 

    I hope you get some answers soon. The not knowing is the worst. I dont think unless your in this situation ypu can understand that fear 

    Xx

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