Hi what was your out come

Hi i have Pan Colitis....Ulcerative colitis of the entire bowel x

Bless you 

sometimes I need to chat private,y but never want to bother anyone. I try to just deal with things. I help others but never myself. Is that silly

i will try to relax and take a bath . Thank you so much for your advice and offer. You are right people just do t understand sometimes. A lot of people tell me oh just go to the hospital and get it over with. I want to say, have you ever had to lie in the operating theatre for a procedure in covid times having lost your dad to covid? But I say nothing and stress alone.

this group are wonderful and I've been upbeat but the last week or so I'm just very low because I don't understand what is happening 

no biopsies were taken and they want me to remove the polyps because they could do it last time. No is that because they didn't see anything to biopsy or they are waiting to biopsy the polyps? I think I'm low and my mind is working overtime. It's coming up to dads anniversary soon too

So it turns out that I'm waiting for a phone call from the hospital, this has been scheduled for the start of April.. this will then decide either colonoscopy or sigmoidoscopy. I'm sick with worry, I honestly don't think I can wait so long but.... covid... :(

On another note, the bleeding seems to be happening more often. I looked more closely this time and it was on the stool but only on one side, which I'm hoping makes it even more likely to be hemorroids? I never knew that you could have hemorroids and not have any pain/itching. Also (sorry to be graphic) I only get the blood if the stool is firm which I'm hoping is another sign of something less serious. 

I guess for now I just have to wait for the call in April, and then probably wait another month or so for the actual procedure. I'm going to try get an Anoscopy in the meantime.
 

Hi again

Sorry I've not posted on her lately, I'd been quite busy.

Can you give them a call to ask them these questions directly? I know that when I was confused about some of my tests, I called my GP and asked them about it. And another time I arranged another phone appointment with my GP just to explain why I was worrying and see if i had a good reason to be worrying, and it did help having them explain everything to me again.

Im a bit concerned again myself. Since the doctor said I had hemorrhoids last week, I've been pretty constipated. Was in some discomfort for a few hours after the rectal exam but that went away, but then I couldn't go the toilet for about 2 days so I took a laxative which helped me go on Saturday quite a bit. Didn't go at all on Sunday or Tuesday and when I have been going, I'm having to push harder and it's coming out in more parts, often narrower and flatter in shape.

I'm a bit concerned as I didn't think hemorrhoids could cause this, though I may be wrong. I have my sigmoidoscopy next Saturday so at least I don't have much longer to wait now.

Hi 

I called gp he just says wait to speak to specialist

they said I have a polyps that needs to come off. They took no biopsies either I'm not sure why not

since the colonoscopy I have become constipated too with mucus

honestly I'm a wreck. I thought all was ok 

am I stressing over nothing I'm not sure 

I'm just so tired now of constant worrying 

I'm feeling totally the same. Wasn't worried over the weekend as I thought I probably was just overthinking how frequently I should be going the toilet but I've definitely had strange bowel movements for the past week. I think the best thing we can both do is listen to the doctors advice and wait for whatever the next step is.

Hi Sterbo

Your symptoms sound like mine!

I've been feeling a strange sensation under my left ribcage for about 3 weeks. It feels like something is moving under there.

Ive  felt a pain which seems like its radiating from my left rib which were sore to the touch. So much so I had to use a muscle rub on them.

In the last few weeks ive had indigestion, fatigue, constipation and felt very lightheaded.  

I've  recently seen that my stool has red pepper/ tomato type of bits in it and im having bad cramping!

Can blood look like red pepper bits????

My stools are now all over the place and before this I was very regular.  

I've had blood work, stool tests, chest xray and an ultrasound, everything has come back clear.

I'm going to contact my gastro today and advise him of my new symptoms.  

I am so worried its unreal. 

Hi 

I think you are right. I need to just listen to see what they say and do the tests they need. I've had to cancel my session at the colonoscopy to remove the polyps  because I've been called for my covid vaccine. I think I might just start ticking off things as I go along until I've had all the tests. 
I was told that if there is any blood in stool it could be that the polyps that sticks out can rub on colon and cause friction and make it bleed slightly. Can't explain the mucus or the fact that stool is in little bits like a rabbit lol well bigger but not in length. Honestly stress is awful.

the other thing I was told and did notice was when I ate red meat for Sunday lunch I had more mucus. By the end of the week after eating pasta and chicken dishes, not so much xx

thanks for being there x

Hi, I totally understand how you feel I am really not looking forward to going to the hospital either for my procedure as I am worried about Covid and also both my auntie and uncle caught Covid in hospital and died through that complication they were very ill but that didn't help, so I know your concern.  How are you doing? I am waiting for a colonoscopy and it seems like you wait forever.

BTW you can message me anytime, you are not bothering me, we are all welcoming here :) 

Just a random question has anyone experienced a constipated floating stool?

All the best, 

Jem

Update I got my Colonoscopy on the 3rd March and I am freaking out abit, what if the result is wrong and I got through the procedure for nothing?

Hi,

im so sorry for your loss. I was in lockdown in USA visiting my kids and couldn't get back at all. It's heart breaking so I know how you feel.

I panicked because they rushed my colonoscopy on a fast track thing. They found the polyps and want me to remove it next time using a smaller flexible scope. 

ive never experienced a floating stool. 
Thank you for answering. 
this group is amazing and I thank you from the bottom of my heart. 
x

Hi,

im so sorry for your loss. I was in lockdown in USA visiting my kids and couldn't get back at all. It's heart breaking so I know how you feel.

I panicked because they rushed my colonoscopy on a fast track thing. They found the polyps and want me to remove it next time using a smaller flexible scope. 

ive never experienced a floating stool. 
Thank you for answering. 
this group is amazing and I thank you from the bottom of my heart. 
x

I have been reading about how unbelievably painful colonoscopies are and I am very anxious about going to my appointment on the 3rd March!

I hope you can settle my mind on this?

Sorry I'm late replying. 
my colonoscopy was a little uncomfortable but ok. The nurse was with me all the time offering support ,talking to me helping me turn over when asked. She spoke to me throughout telling me we were almost done, we were finished and it was over. Throughout she said if you feel windy just pass it because the more you don't the more you will be uncomfortable afterwards. 
befor it begins they explain everything to you and they put a cannula in your right hand. I had anesetic to make me a little drowsy and it helps. They are in full masks and stuff so don't be scared and you get to keep your mask on too. That reassured me. You don't feel the camera at all but you feel a little uncomfortable as it moves around but it is bearable. Once it's over you are taken to a room to recover and given tea and a sandwich

i am your worst patient but I was fine. You feel a little gassy and want to rest. 
please take someone with you to bring you home and look after you throughout the night. There isn't a problem but they like you to be with someone. 
please tell me how you go. I don't know how I can give you my email but you and kna are welcome to email. Good luck and stay strong. Always here to chat x

Thank you for your reply :) 

You can message me through my profile and we can correspond there. 

I was freaking out a bit as I heard some horror stories about colonoscopies and I am very sensitive to start off with! 

I will let you know how it goes through PM if you would like. 

Are you still waiting for results? 

All the best, 

Jem x

Hi [@disneyqueen]‍ and all

So sorry have missed some of the chat, I didn't see any notifications . I'm sorry Disneyqueen that you are having a bad time . I promise I will reply later - just going to see my elderly mother.

To everyone wishing you a good day. Let's be as positive as we can. Speak later xx

That's ok don't worry. Have a great time with your mum. Give her our love xx

Hi @disneyqueen,how are you doing today? 
Im so sorry to read that other people have been getting you down. Did you decide to go ahead with the procedure to get the polyps removed? I know you were not sure what to do what with covid being a risk. 

I really hope ur not feeling too low. I saw you said it's coming up to your dad's anniversary too, that's hard.

I'm always here xx

Thank you so much for replying. The procedure is on Tuesday . I had my covid vaccine last night. Not sure if I should get the procedure done. I had a covid test done today which was required before you have a procedure. I'm worried and unsure what to do.

yes my dads memorial comes up next month and it was on my sons birthday too. It will be tough

thank you for listening 

It's a difficult decision. A friend of mine had a hospital procedure last week and was worried but she was reassured by the staff regarding safety within hospitals and the fact that staff are also now vaccinated. 
That said, I totally understand your concerns. Is it something you can discuss with your family to help you make a decision ? 
 

You are right. I feel I should go and get it over with but feel worried

I have a couple of days to think xx

my friend went to visit her husband in the hospital as he was close to passing and 4 days later she got covid and that scared . Hopefully I will will be reassured by the hospital staff on Monday 

thank you for the support x 

have a good weekend

It's a very worrying time so it's completely understandable. 

I would think about it as you say and see how you feel.

I hope your Sunday is going well. Always here x

PS hoping to get my results tomorrow. Still no blood so I do feel positive about that