Hi Louise,

I know this an old post so apologies for replying here but I've tried adding you etc and I'm not the most technologically minded so I'm giving this way a go! Is it ok if we talk please? I am having a thumbnail biopsy on the 29th of this mo th and would love to get your opinion on things if you don't mind! Thanks a lot, Rachael x 

Hi Rachel,

I hope your biopsy went well and you are doing ok. I too had a biopsy done on my thumb on 2nd July, had my nail removed & biopsy on nail bed so am happy to help you with any questions, although I may not know the answer, I know what you are going through! 

I'm still waiting on my results IhI my appointment at the end of August so im trying to stay positive as I have my husband and kids but it's hard not to worry. 

I will try adding you as a friend.

Take Care

Hi Jo,

Thank you for the reassurance. My GP basically said she couldn't offer me 100% reassurance as she didn't really know for certain it wasn't melanoma. She did explain it didn't have the typical characteristics but wanted to get it looked at to be certain. 

What does your mark look like? How are you feeling about your appointment? 

Oh I see! It's better to be safe than sorry, not having typical characteristics is a good sign so just try focus on that! 

mine is like a bruise/blood spot, it started right in the corner of the nail bed but is moving up the nail now. It's not massive compared to my nail. I sent u a friend request maybe I can send u a pic via message? Not sure as I'm new to this site 

x

Hi Jo,

I've accepted your friend request so I'll send you a quick message!

Hi Angie

I have just got off the phone to the dermatologist who didn't say anything to me if I'm honest. Please explained that I have had it 12 months and it appeared overnight, which she said was strange.
She says she wants me in to look at it under a microscope which has an 8 week wait. Just as the call was coming to an end she said, do you go on holiday to sunny places a lot? Right I may get you in sooner then. 
I am now more worried than I was before. 

Hi,

I'm sorry that the telephone consultation wasn't as helpful as it should have been. To wait such a long time to be checked out face to face isn't helpful and it must be that the hospital is still playing catch up due to Covid. I really hope that they get you seen quicker than that. Try not to worry (easier said than done) and I'm crossing fingers for you xx

Hi,

Reading this thread has been amazing, so many knowledgeable and incredibly kind people!

I have what I thought was a bruise under my big toe nail, but after 2 months it hasnt grown up even a tiny bit and I googled hoping to find a bruise remedy only to find subungual melanoma everywhere. My doctor has referred my on the 2 week cancer pathway and I am absolutely terrified. 
 

It's a really odd looking mark and doesn't look fungal or really like a bruise should after 2 months. 
 

I don't know what to expect and I have a young family and I'm scared. 
 

if anyone reads this and takes time to reply then thank you x

edit: just realised I did this as a direct response to someone. I didn't mean to, sorry if that's not okay!

Hi I have just sent you a friend request. I've just joined because my mum has just had a biopsy of her thumb & been told it is cancer sublungal melanoma, she needs amputation & test her lymph nodes with dye. So far NHS but we want to switch to private, not sure where to start. A dermatologist referred her to a plastic surgeon who says he will refer her to another surgeon. Should we find an oncologist? 
any advice gratefully received x

Good morning everyone

This is an interesting thread for me to read as I have received a positive diagnosis of a subungual acral lentiginous melanoma in my thumb .... its has left me reeling with so many frustrations and emotions.

It started 3 years ago with a ridge in my nail that developed into a split ... I saw my GP who said 'its just a split nail', the Covid pandemic hit and even though I had telephone appointments (sending pictures too) the doctors took a while to finally refer me to a dermatologist, hence here we are now!

I had a biopsy done on 1st Feb, diagnosis confirmed on the 3rd March, Breslow 5.3mm, 2 mitoses/mm2, pT4a, Stage 2b, no lymphovascular or perineural invasion, my first full CT scan was yesterday 11th March. I have an MRI next Tuesday and then see the plastic surgeon on the next day, hopefully this will be to discuss the scan results and arrange a date to have my thumb aputated.

So much to take in, it's so distressing for me and my beautiful family ...

Reading on here has been helpful to me as this is such a rare skin cancer

Sending big hugs to everyone x

Hi sorry to hear about you mum's diagnosis, hope she is doing well now. I just want to ask a question as I'm really worried because I will be having a nail biopsy tomorrow. After your mum's biopsy did they prescribed her witj pain killers? I'm so scared as ai read horror stories how painful it is once the anaesthetic wear off

Hi there hope you are doing well, can I ask some question as I'm so worried because I'll be having my nail biopsy tomorrow. Will the surgeon prescribe pain killers after the surgery? I'm so worried about the pain, I have very low pain tolerance. Thinking they would not prescribe me with pain killers is making me cry and so scared I can't imagine myself being in too much pain.

Hi there hope you are doing well, can I ask some question as I'm so worried because I'll be having my nail biopsy tomorrow. Will the surgeon prescribe pain killers after the surgery? I'm so worried about the pain, I have very low pain tolerance. Thinking they would not prescribe me with pain killers is making me cry and so scared I can't imagine myself being in too much pain.

Hi Mariandy

I'm so sorry I have not replied to you sooner, I have only just read your post. I do hope that your biopsy went as planned and hope that you are not too sore, I found that taking paracetamol was sufficient for pain relief, also keep your hand elevated if it feels sore as that will help.

I ahd my thumb amputated on 7th April, my Sentinel Lymph Node Biopsy on the 19th May - the tumour was removed fully with clear margins and the SLNB came back clear, so that's good news for me, however the CT scan did show a nodule in my lung so I am due to have my next scan to0 check that next week on the 6th July. It's such a rollercoaster of emotions and lots of appointments etc to get through, but hey ho, staying positive is the best thing we can do for ourselves and each other!

Wishing you well and fingers crossed your results will come back negative for you. 

Best wishes xx