Subungual Melanoma referral

Hi, I'm new here and worrying like mad. I had a fungal nail on my thumb with a light black line down the side, I went the docs twice and they said it's more than likely fungal as the rest of my nail was yellow brown and crumbling off. I was told to use a home remedy of nail applicator which can take up to a year. They don't like to give pills for fungal nail as I would need a liver function test due to the strength of them apparently. 

Anyway, I just carried on with my home treatment for nearly a year now, the black has thickened and is starting to raise my nail bed at the side. At the weekend, blood was spurting everywhere from and it was seeping blood all weekend. my nail went flat but stayed black. it's now raised up again with what looks like a lump of skin (I thought it was a blood blister) but smelling so I went to my gp again to treat infection if I had one.

saw a different gp and he agreed I had an infection and gave me anti bs. He then said he was referring me to a specialist and to expect an appointment within 2 weeks to be tested for menalona! 

straight away I went to Dr Google, I cannot sleep with fear, I'm 40 with a 6 year old son and no other family. I'm petrified that the black line has been there for well over a year and nothing has been done and it could potentially now have put my life at risk. Can somebody advise me or help me relating to this I'm so so scared waiting for an appointment and all I'm doing is imagining the worst.

Thankyou 

  • I am thinking of you and your son and praying for good news.  Hope you had a lovely Christmas and glad to hear your sons finger is healing.  

    Best wishes xx

  • Hello!

    I feel so worried about posting on here but it's so reassuring to read that so many of you have been in the same position, and you all sound so supportive. 

     

    I've had a brown line on my right little toenail for about 2 years. I've never thought anything of it, always just ignored it and assumed it was a bruise, until I heard about SM and realised it probably isn't something I should have ignored. 

     

    Anyway, I phoned my GP yesterday and already have a dermatology referral booked for next week. The urgency of everything is worrying me slightly and it's obviously very easy to let Google terrify me, so I'm trying not to research too much. 

     

    I'm 29 with two babies under 3, so the thought of having to deal with anything potentially serious is really knocking me for six. It's reassuring that so many of your dermatology referrals have had positive, happy outcomes, but I still can't help but fear the worst. 

     

    Could someone please tell me what I should expect to happen at my dermatology appointment next week? 

     

    Really glad I've found such a supportive group. 

     

    Hope you are all doing well and have had a lovely Christmas xx

  • Hi Felicia29

    Firatly welcome to the thread although I am sorry you are in the position that you have had to seek support... you will get support on here so I'm glad you have found this thread.

    May I just say that I also had a brown line in my little toe nail right at the edge of my nail coming up to two years ago now amd like you I was worried sick amd presumed the worst. 
    I also had/ have young children so o think it's only natural we go into full panic mode.

    Thankfully for me my biopsy turned out to be negative however I currently have another wider brown steak on my big toe that we are keeping an eye on - I've had it about 18 months now but it hasn't changed. 
     

    when I first noticed the streak on my little toe like you I didn't think anything of it for about 6 months amd just covered it up with nail varnish. Then I came across SM online somehow amd freaked out!

    I actually paid privately to see a dermatologist as my GP fobbed me off and a few days later the dermatologist who saw me thought it was just melanochyia and nothing to worry about but couldn't say for certain. 
     

    He gave me the option to photograph it and see him again in 3 months and see if there are any changes or go ahead with a biopsy. 
    I felt he was happy to watch amd wait so that's what o decided..... however a month later it was really affecting me emotionally amd I had already convinced myself it was SM so I decided I had to know one way or another so I went back to see him and we both felt the streak was getting wider so he arranged the biopsy. 
    I had to wait 4 weeks for the biopsy doing and I won't lie it hurt like hell for a few days every time I tried to walk but I was so relieved it was done. 
    I had to wait 6 weeks for my results and that almost ate away at me as again I was convinced no news was not good. 
    I eventually got the negative result and I was elated because I was convinced it was SM as it had changed. 
     

    it's good your GP has referred you so quickly. 
    have you noticed any change in the line over the last 2 years at all?

    SM is very rare but I know when you are worried about it we just presume the worst and we will be the one so I can empathise how you are feeling. 
    Try to remain as calm as you can, write down any questions you have for the dermatologist and remember the chances are this is nothing sinister. 
    xxx 

  • Polly4, Louiseandfin, Betty25,

     

    I've just had results through in a letter. My son's streak is nothing to worry about, so I am assuming it was a mole in the nailbed whose pigment 'leaked' into the nail. We have a follow up appointment at the end of this month, so will find out more then. But for now, I can breathe a little easier!

    Thank you for your support and kind wishes,

     

    Kat x

  • Hello,

     

    Was reading through your posts and sounds similar to me, hope all went well for you? Did you find out what it was?

  • Hi louiseandfin,

    i just registered here as I was reading the comments and sent you a friend request and I really would like to talk to you about SM please! I hope you will see my message. 
     

    Vivien

  • Hi,

    I'm just going through the waiting stage and wondered how you got on, what were your results in the end? I  had the nail and some of the nail bed removed yesterday and so now the long wait to find out. The pain is not too bad, but the sickening feeling is awful. Hope you're well. 

  • Hi,

    I'm just going through the waiting process. I've had my nail removed and nail bed for biopsy. How did you get on? I found the plastic surgeon registrar I saw and the surgeon on the day wouldn't give an opinion at all and just said its best to get it off. So hard as you just want something to cling to! 

  • I've just read this thread and been useful, thanks [@louiseandfin]‍ and [@AngieT]‍ especially.  I had a biopsy last year and results were slightly ambiguous but no need for further treatment/biopsies unless I had more signs. I now had a new line appear in a different place on the same nail measuring bigger, 3mm bottom and 2mm at the top and Hutchinsons sign positive (had developed since Christmas and was seen in Jan but didn't look suspicious then). Lines are also not even. I had the second biopsy done yesterday and waiting on results now and dealing with pain. At least this time I can rest, last time was peak lockdown and no one could help, children were at home and husband had to go to work.

    I had it done privately and he's seeing me next Friday with hopefully results but might be a bit longer. Dressing change on Wednesday as last time the first one wasn't nice so didn't want to wait a whole week.

    I hope everyone is doing well.

  • Dear Ellenrose. 
    I am so sorry you are having such a worry again. It's just never ending sometimes, I completely empathise with your worry as I also had a second biopsy but on  a different toe ( this time my big toe ) but thankfully it was not sinister. Mine measures 2.5mm at the top and 5mm at the bottom which freaked my out as my pinky toe was a straight line of just over 1mm.

    For  me I was just told I am prone to melanochyia but I have to still keep an eye on them, check every 2 months ( I check daily ha ha ) and if they change go back. 

    Sending you lots of strength and positive vibes and I hope you get the results soon as the wait is torturous. 
     

    good look, thinking of you 

     

    xx