Breast total duct excision

Back in June I started having bleeding from my nipple and found a lump in my breast, my go quickly referred me to the breast clinic where they did a ultrasound on the lump and I was examined by a specialist nurse. They were happy the lump was just glandular tissue and sent me merrily on my way .But then I was called 6 weeks later for review with a consultant. She announced that even though the lump is nothing to worry about, the discharge is concerning and she wants to do a total excision of all the ducts in that breast as this is the only way to find out what is causing the discharge/bleeding and as cancer is a possible cause it needed to be done to rule this out.  So I’m booked in for this in a few weeks. I’m really worried. About the procedure, the recovery, the scaring and the waiting for the results! I’m only 38 and really struggling to deal with my emotions at the minute. Finding myself very weepy. Has anyone else had this procedure? 

Parents
  • Hi 

     

    I had this surgery back in april, for a papiloma, same symptoms as you. after surgery i didnt even have any pain as they injected anesthetic into the area, i didnt even feel like i had surgery, it was quick and simple and I was back to normal the following day, unfortunatly for me i got an infection and my wound opened up again, so it sbeen a long process to head but again it was never painful, it doesnt look to deformed the complications with mine make mine look worse but otherwise it was ok. you will be fine x

     

  • Hi,

    I had a total duct excision last week, the operation was fine and I have virtually no pain.  Wasn't worried at all.  I've got my post surgery check up next Wednesday and the nerves are kicking in now.

    I had a clear discharge for a long time in my left breast but it never occurred to me that it may be anything serious, I'm in my 40's so naïvely assumed it was a hormone thing.  The discharge changed about a month ago and there was blood in it.  That's when I went to the Dr, I had a mammogram and ultrasound within 10 days, they couldn't see any lumps but there was a widening of my ducts, another 10 days and I was getting the operation.  All a bit of a whirlwind and as I said, I was totally ok.  The waiting for the results to see if the root cause is cancer or not is now taking its toll.  Both of my grans passed away with breast cancer before I was born. My Dad currently has incurable lung, liver and kidney cancer (secondary from melanoma)

    Wish me luck

Reply
  • Hi,

    I had a total duct excision last week, the operation was fine and I have virtually no pain.  Wasn't worried at all.  I've got my post surgery check up next Wednesday and the nerves are kicking in now.

    I had a clear discharge for a long time in my left breast but it never occurred to me that it may be anything serious, I'm in my 40's so naïvely assumed it was a hormone thing.  The discharge changed about a month ago and there was blood in it.  That's when I went to the Dr, I had a mammogram and ultrasound within 10 days, they couldn't see any lumps but there was a widening of my ducts, another 10 days and I was getting the operation.  All a bit of a whirlwind and as I said, I was totally ok.  The waiting for the results to see if the root cause is cancer or not is now taking its toll.  Both of my grans passed away with breast cancer before I was born. My Dad currently has incurable lung, liver and kidney cancer (secondary from melanoma)

    Wish me luck

Children
  • Hi 

    Sending luck your way . I don't know if you've read this whole thread but I posted on here previous to getting my op and I like you was having the same exact thing which ended up with having total duct excision everything went fine no pain afterwards had a wound check all ok then I was getting nervous for my results thinking it was all very sinister and with my family history of breast cancer and thinking why at my age was I having problems but everything was all fine turn out was papilloma which was guessed before results. I also done my own research that having excessive amount of hormones in your body these they show signs and come out in your breasts, as I did have the implant in and ended up taking the pill as the same time for whatever reasons I believe the build up in hormones caused this as I had other symptoms from the doubling up in contraception but I maybe wrong but it's a wild guess. But yes my fingers are crossed for you and wishing you the best of luck for your results.

     

    Sorry for the long reply I didn't manage to getting round to putting my follow up on here for others to read. X 

     

  • Hi, thanks for responding it looks like we have a very similar story.  Hopefully I'm worrying for nothing, they did mention papilloma but couldn't rule cancer out.  I've been googling like mad over the last few days and it seems they both have very similar symptoms. Not long to wait now, I'll post on here when I get my results.  I'm sure it'll be fine.... Maybe..... If not I'll deal with it  

  • Hi, just a quick update.  Got my dressings off today and the all clear. Some small lumps in my ducts but no cancer.  There is hardly any scarring at all. I was lucky and am counting my blessings tonight 

  • Aw that's great news! Pleased everything has came back clear! That's good news all around.

  •  

    Hi RMckk,

    I am so glad to hear your news tonight. this must be a huge relief to you. Have you been discharged, or does your consultant want to keep an eye on you for a while?

    Kind regards,

    Jolamine xx

  • Hi 

    Thanks, yes it was a massive relief

    I've been completely discharged, no need for further treatment or follow up.

    xx

  •  

    Hi,

    That's fantastic. Don't forget to check your breasts regularly after this - hope that you never have any need to return to the breast clinic.

    KInd regards,

    Jolamine xx

  • I had major duct excision yesterday. I started to have a bloody discharge a month ago and was fast tracked to the breast clinic for tests. Mammogram and ultrasound were clear but surgeon said at my age (55) and a history of cancer (womb) he wasn't prepared to take any chances. 
    I had to stay in overnight. Home now and a bit sore but only taking paracetamol. 

    Did anyone posting on this thread have restrictions re arm movement? 
    The nurse advised not to lift my arms above my head for two weeks and gave me a certificate for 2 weeks off work. 
    worried sick about the results on the 11th November xxx
     

  •  

    Hi Daisee,

    Welcome to our forum. I am glad to hear that you had a major duct excision yesterday and, that you are doing well post-operatively. With womb cancer, I am glad to hear that your surgeon has decided not to take any chances and has gone ahead with this surgery.However, it is good to hear that your mammogram and ultrasound were both clear.

    I have had a lumpectony and 1st level lymph node clearance first time around. That was 10 yearsago. I had a second bout the following year and had a double mastectomy. I had definite restrictions in my arm movement particularly after the first operation. I perservered with my exercises and it eventually abated.

    I sincerely hope that your results on 11th November are also clear.

    Do please let us know how you get on.

    Kind regards,

    Jolamine xx

  • Hi everyone .

    I have recently had an ultrasound, biopsy and mammogram to determine why I kept having constant nipple discharge. The results thankfully came back negative but the surgeon wants me to have a duct excision . This is happening on wednesday this week . Can anyone tell me how they were afterwards ? Thanks in advance :)