Thank you so much. It means a lot when you feel you have people to listen to you. I'm so very grateful xxx

You have a good time and try to forget all this for a couple of weeks.  Hope the weather keeps nice for you.

Well I have just returned from my holiday and searched through the pile of mail and nothing. No results. The ENT doctor said that if it was nothing to worry about he would write and say so. Needless to say now I'm pretty scared. I'm guessing that the biopsy booked for Wednesday remains very relevant. I was really hoping to come home to a letter telling me "reactive lymph nodes.... nothing to worry about" but it seems this is not the case. Would my GP know my CT results or would I need to speak to the consultant at the hospital?? Or will I hear nothing until after the biopsy??? I'm devastated not to have a letter :(

Hi sharpy20.

This is why consultants shouldn't do this sort of thing. There are any number of reasons why you received no letter, but I think the most important question is this:  Did you have any symptoms related to lymphoma while you were on your holiday?  In particular, did you have the drenching night sweats? 

Yes I do wish he hadn't said that. Not really any symptoms at all to be honest. I think they are more inclined to think that the enlatged node is a result of a spread from somewhere in the abdominal region rather than lymphoma. Judging by the questions he was asking and the fact he described my lump as a large hard lump that is. They ordered the CT scan to be of chest and abdomen but when I got there they were only doing chest. When I questioned this I was told he did request but radiology had declined to do more than the chest. Sounds stupid to me but hey ho. The lump is rock hard and feels about the size of a golf ball but not really painful at all. Do get some swelling around it some days but comes and goes. Still have the biopsy Wednesday but not sure who and if I should be chasing this scan result or whether he is waiting to get both results before calling me in to explain my fate. Not even sure who I would call to ask. Feel like I'm dangling on the end of a piece of string.

So I became slightly impatient and called the consultant secretary. She told me that my results have been there for over a week. She said he wants me to go ahead with the biopsy appointment and that no further tests have been ordered at this point. Also that he will not be telling me the results until after the biopsy results are in so that he has the full picture. This all sounds terrible to me. I hate the waiting. Wish he would just tell me something!!!

Hi you could contact your GP and find out. I knows its adding to your stress but I'm sure there are other reasons why you haven't got a letter yet.  

Give your doctor a ring or even phone the consultants secretary.  They won't tell you anything but you can see if a letter has been done.

Let me know how you get on xx

Thanks for your reply. I called the doc this morning and no results are there. Think I just need to wait for the biopsy to be done. I'm trying to stay positive for now. I am about to begin my last year of uni as a mature student and have lots to keep me going. The biopsy shall reveal all. Sorry for my rant earlier but I find this all so stressful! It's so nice for you to reply and k ow that someone is listening even if I am just having a complete flap and rant!! The secretary just told me that the consultant doesn't like to meet until he has the full picture. For this I shall wait. Sometimes I feel like I'm losing my mind and other times I am just thankful for everything that I currently have. Right now I'm just trying to have fun with the children before they go back to school. Will keep you posted. Thanks again for your reply x

Hi I'm so pleased for you.  Like mine a reactive lymph node.  I still have mine and won't be wholly happy until it's gone but I know it's nothing sinister.  

I wish you all the best and thank you for being part of my journey.  Xx