I have no lady bits had them all take away at 46 I am now  66 yrs.Had blood test because  felt abit under the weather  , when doctor got result found CA 125 was high 100. Had ulchsound  found nothing . Doctor  said he his going look into to see what other test I need xx has anyone  out had the same experienced. 

Hi All, I had an elevated level in July 2018 of 50 and had all the relevant scans to be told everything is normal. Yesterday I received my latest result and the CA125 is now at 71. Now being referred for further scans and feeling anxious. Has anyone experienced this and still come away with normal results? 

Hi. 
 

I had similar. Feeling exhausted and very heavy periods, CA125 was 126.7. Went for ultrasound scan and internal scan. Nothing seen although was told they couldn't find one of my ovaries even after a 3rd scan ‍♀️ Ca125 now down to 47. Have been told to just monitor it but would rather investigate then just wait and see. Still feeling exhausted all the time but not sure if it's all in my mind now. I do feel like it's a ticking time bomb and with covid there is a reluctance to investigate. 

Hi there

Thankfully, I've had a clear ultrasound and since then my levels have returned to within a normal range. I was on my period at the time of bloods so it can apparently make it raised. I'm being investigated for bowel realated stuff now because I'm still have abdominal discomfort and bloating. Hope you're ok. 

Thanks how long did it take for your levels to return to normal. 

Only two weeks x

Hi there, 

I've just been reading this chat as I have recently been having tests done in the gynaecology clinic, I had my ca125 blood test done 2 weeks ago and it came back raised at 211 with normal being 34 that is obviously very raised, and so the consultant has suggested it could be ovarian cancer, she's referred me for a CT scan and a MRI, she did however say it could also be to do with endometriosis. I'm absolutely terrified however as I'm only 24 and if it is indeed ovarian cancer, I don't know how I will cope.

any advice would be appreciated. :( 

Hi,

Sorry, I can really help much. But I am also in a similar position. However, I had my scans and both MRI and CT come back all clear. They just want to wait and see if it goes down in 6 month. But I hate waiting... 

just wondered if maybe you had your scans by now and I hope it's all ok. You are too your for overian cancer, statistically speaking x

Hi! 
 

thanks for this, I'm hoping that it's not what they think. I have had my CT etc done, and I've been told that I should get my results for that on Monday. I also had a call from an oncology nurse asking if I'd have someone to look after me if I was to have surgery. So I'm worried that it means it is in fact cancer. I'm not 100% sure yet however and I'm hoping that they can put my mind at ease next week. I hate waiting so I completely understand what you mean. I would be the same in your situation, I will update you after my results come Monday. Here's hoping everything is okay. X

I am sure it's all going to fine. Sometime they do ask some simple questions and we over analyze and worry about it.

I will have all my fingers crossed for you 

Hi every one, my heart goes out to you all. 

I was diagnosed with stage 3b grade 3 triple negative breast cancer last October and the it's only juSt hitting me. Up to now I've have a mastectomy with lymph nodes clearence. They found a 6cm Timer and 9 of the lymph nodes they removed were positive for cancer. Since then I've also had a raised level of CA125 blood test. I am worried but because I'm still having chemotherapy I'm praying it will help with the raised level of CA125 and kill what ever is lingering in my body. I have also recently received the news that I have the BRCA1 gene mutations in top of everything else so I will be having preventative surgery which is another mastectomy with lymph nodes clearance and then hysterectomy including the ovaries.

I'm just very lucky to of had my 3year old little girl who gives me the strength to fight against this cancer.I would also love to get to 40years old as I want a huge party but that's another 4 years.

Hi. 
I am 60 years old and I have been having ongoing issues with pelvic, back pain, spotting, urgency to urinate and more recently extreme tiredness. GP did a full blood count and ca125 which came back raised (not sure by how much) I have an urgent appointment for ultrasound and mentioned possibly biopsy. Just wondering if anyone experienced these symptoms? I am sick with worry. 
thanks

Hi. 
I am 60 years old and I have been having ongoing issues with pelvic, back pain, spotting, urgency to urinate and more recently extreme tiredness. GP did a full blood count and ca125 which came back raised (not sure by how much) I have an urgent appointment for ultrasound and mentioned possibly biopsy. Just wondering if anyone experienced these symptoms? I am sick with worry. 
thanks