I have no lady bits had them all take away at 46 I am now  66 yrs.Had blood test because  felt abit under the weather  , when doctor got result found CA 125 was high 100. Had ulchsound  found nothing . Doctor  said he his going look into to see what other test I need xx has anyone  out had the same experienced. 

Hi All, I had an elevated level in July 2018 of 50 and had all the relevant scans to be told everything is normal. Yesterday I received my latest result and the CA125 is now at 71. Now being referred for further scans and feeling anxious. Has anyone experienced this and still come away with normal results? 

Hi all 

I am really concerned as during a routine MRI for unrelated issue in aug  last year (2018)a cyst was found on my left ovary bearing in mind I have no womb having had a hysterectomy for endometriosis kept my ovaries as I was 27 I am now 36. But for the last year I have felt rotten at the time I had a ca125 done which was 35 and just told it would go away however my symptoms have just gotten worse and worse bloating tired all the time can't eat sick and constipated I keep getting told that it's ibs I have finally gotten the doctors to listen and repeat bloods and they have booked a scan but really concerned about results due to symptoms can anyone give me advice thanks x

Hi angela1987

my story is a little like yours, my first blood test of ca-125 was 67 which I paid and got a scan and it was normal, they repeated the bloods and now it's 77. They had referred me to gynaecology, I'm just wondering how you got on? X

Hi, 

For me, thankfully, I’m absolutely fine. They don’t know the reasons why mine increases or why I have elevated levels- apparently some people just do. I don’t have endometriosis and there’s no cysts on my ovaries. The gynae consultant recommended I go on the pill and started me on one called rigevedon (i think that’s how you spell it). It didn’t agree with me so I’m now on lucette and it’s jinestly helped a lot of problems I was having. Weirdly they told me there’s no need to have further blood tests to check my levels in the future. I hope all is okay for you. Best wishes to you x 

Hi how did you get on with all your tests? My CA125 was 91 and I was sent for pelvic ultrasound and they couldn't find anything wrong so I am waiting 6 weeks for repeat CA125 blood tests to see if my levels are up or down? Even though I've had a scan I'm still worried too.

Hi there

im worried sick about my ca125 being 67 and just wondered how you got on? Did you have other symptoms too? Hope you're very well and thanks x

Hi angela1987

jisy wondered if you ever got the a125 repeated and how you are doing now? Any response is so greatly appreciated

i hope you are doing really well x

Hi angelheart, 

jist wondering how you got on as I'm in a similar boat and going through hell with worry. Hope you are very well x

Hi angelheart, 

jist wondering how you got on as I'm in a similar boat and going through hell with worry. Hope you are very well x

How did u get on my levels are the same as urs. 

Hi there

Thankfully, I've had a clear ultrasound and since then my levels have returned to within a normal range. I was on my period at the time of bloods so it can apparently make it raised. I'm being investigated for bowel realated stuff now because I'm still have abdominal discomfort and bloating. Hope you're ok. 

Thanks how long did it take for your levels to return to normal. 

Only two weeks x

Hi I've been told my levels are raised and I'm terrified x

Hi I know how you feel. Honestly don't worry. They can be raised for lots of things. Inflammation, infection anywhere in body. Your period, cyst. Anything can. Or just naturally high. If there raised at all they have to check you out. Do you know what number your level was. 

Back in April or may it was 46, repeated the test Monday this week but I didn't ask what the level was, I'm so scared x

I have no symptoms at all

Where you on your period. I wouldn't worry. They have to red flag it if it's raised. My number went up to 67. What happen back in April. Did they scan you 

I was at the end of my period, the last day, I'm waiting for a scan a appointment, did you have a scan?