I have no lady bits had them all take away at 46 I am now  66 yrs.Had blood test because  felt abit under the weather  , when doctor got result found CA 125 was high 100. Had ulchsound  found nothing . Doctor  said he his going look into to see what other test I need xx has anyone  out had the same experienced. 

Hi there. Like you I had full hysterectomy (10 years ago) I have been told j had raised CA125 and had a retest yesterday. Wax not told what level it is raised to. I am beside myself with worry. Have they found the cause ic your raised levels?

Hi there. Like you I had full hysterectomy (10 years ago) I have been told j had raised CA125 and had a retest yesterday. Wax not told what level it is raised to. I am beside myself with worry. Have they found the cause ic your raised levels?

Hello all,

My mom is 73 and has been really unwell since January this year. She was diagnosed with a vaginal prolapse and because of this the GP pretty much ignored her other symptoms. She paid to see a gynaecologist privately because of the waiting time on the NHS and although she needs an operation for the prolapse he wasn’t willing to do this without the other symptoms being ruled out first. This was 6 weeks ago! 

Since then she’s had endless tests one of which was CA125 bloods and her level was 135, which was a shock and upsetting for us all. Her ovaries and womb, colon, liver and kidneys are all clear, but she has lumps all over her peritoneum. The gynaecologist has told her he suspects its primary peritoneal cancer. She had a biopsy last week and we are waiting the results. 

It’s incredibly hard to be patient, in one hand we want the results on the other we don’t want the news we think we’re going to get. Moms lost over 3 stone in weight over the last 2 months, is bloated, has no appetite and is struggling to eat as she feels sick when she does. She’s  also in a lot of pain although we are unsure if this is from the suspected cancer or the prolapse! 

As I had never heard of peritoneal cancer I googled this and it has all the signs of ovarian cancer, including raise CA125. It’s very rare but if you’re still unwell but you’re ovaries etc are clear it’s worth asking about this as well. It only gets diagnosed at stage 3 or 4 as it’s one of the cancers that you only get symptoms when it’s advanced. 

Mom is literally deteriorating by the day, we are all so worried and the waiting is incredibly difficult.