Do I have lymphoma? I'm so scared

Hi everyone, 

I have just gone been to the doctors for a full blood test , I have no 'lumps' but I have lost 1stone this month without trying , decrease appetite, general feeling unwell most of the time and I have started getting pain in my neck and ears after consuming even a tiny bit of alcohol, I am 31 non smoke mummy to three amazing children , my youngest is only 6 months , I'm so scared , please advise me , I can't talk to my husband as he is really stressed with work, Does this sound typical of lymphoma? What are the chances of a diagnoses from blood test results? 

Any support or advice is really greatfully received , I'm desperate,

Thank you 

Parents
  • I'm gonna try and chase things today cause I just hate the waiting xxx yeah 

  • Hi, I agree, the waiting is the worst bit, unfortunately mine took just over 3 weeks to be done. It was positive last year. After finishing chemo I noticed a small lump again, another biopsy was done, after 3 weeks I called my doctor and she said it was suspicious and ordered further testing, yet another 2 weeks, I had an appointment with her a few weeks later when she told me it was the same lymphoma again. This time it’s too soon for more treatment and also I feel well so it’s watch and wait which I’m happy with, hopefully I can stay on this for a while.  It’s a long process getting diagnosed but necessary in order that they get it correct before deciding on treatment if any. After the biopsy I had to have ct scan, then yet another biopsy as they found one under my arm, the ct scan showed I had enlarged lymph nodes at my lungs and sides of my kidneys. Then I had to wait again for a bone marrow biopsy. I’m afraid it’s quite a long process, I originally went to my doctor in May and started treatment in August . I guess some areas are quicker and I also had to change hospitals which held things up a little. My fingers are crossed for you, hoping you get a result quicker than me.

  • Hi,

    Good news,   im so pleased for you.  When are you seeing him again with regards to the lymph nodes

    Kernow200

  • Hi, 

    I have a small lump in my neck and it's really painful to touch. I'm not sure what to do. Any advice?

  • Hi, I have lymphoma, had chemo and then it came back, I'm on watch and wait this time. I said to my consultant which I see every three months that my lump was a bit painful. Her answer to me was that's a good sign, lymphoma doesn't have pain which is probably right as I didn't have pain with my rather large lump first time. It's a hard lump and doesn't usually move around. I would go to your doctor as they could reassure you if he examined you. Good luck x

  • Hi, did you ever find more results on this?  

  • I ended up having a lymph node removed and a biopsy it came back fine at the end of the year.

    It was put down to viral and may never return to normal but going forward a few months they are bigger than they have ever been so will be trying to get them looked at again 

  • Hi everyone im a 35 year old male and i dont know if im worrying to much but im really scared and freakin out. I suffer really bad with health anxiety but i dont want to be pushed aside because of that as alot of people blame that for your symptoms. Last year i noticed i had an enlarged tonsil which it didnt really bother me as i put it down to having a damaged tooth and it must of been fighting an infection as if i didnt focus on it then it didnt bother me so i left it for a while but the last couple of months i thought this is really aggravating my health anxiety and made a big mistake of reading google and it came up with cancer so i thought i need to put my mind at rest. So i rang gp and gave me an appointment following morning. But that same night before i went to the doctors i noticed some inflammation under both my armpits and that scared me even more. Anyways i went to docs i explained everything what was going on she had a good look at my mouth and tonsils and also felt my neck and then felt the imflamation on my armpits. She said she doesnt see any alarm bells i also told her i changed my antipersparent the other day and she said it was probably a reaction as far as the armpits are concerned so she said she wasnt worried about anything and tried bringing up my anxiety. But since ive left the doctors ive been watching videos about people who have had lymphoma and cancers and last night all of a sudden i have itches in diffarent parts of the body i also have bloating and stomach rumbling alot but i also have ibs but woke up this morning and stools looked ok but i had a horrible night and only slept an hour r 2 as ive been worried thinkin the doctor has missed something. Ive also woke up this morning with muscle pains but my fiancee says your all tense and your worrying alot so it could be your anxiety but i cant stop from being scared and i keep watching stuff and it seems im obsessed that i have cancer i cant find any hard lumps or not having night sweats i did lose abit of weight but i wasnt eating for a couple of days but i manged to wolf down a kfc after i went to the docs then i weighed myself again and i put a couple of pounds back on which im assuming its a good thing. Sorry for the long essay but im really going nuts and i dont know who to talk to without sounding stupid

  • Hi, I think you have to read a bit less as it worrying you too much. When I was examined first time round, my doctor referred me to an ENT consultant, she must have known the lump I had was suspicious, I guess we have to put trust in our doctors. You are young, don't have night sweats or losing weight, these are all the things they look at before they decide on treatment. They can tell the difference when they feel the lumps. I have one in my neck again and it's small and hard, doesn't move around, it's not painful. After my chemo this lump came back very quickly, that was nearly two years ago and I'm on watch and wait, they won't do treatment at this stage, I just have to live with this cancer. Blood cancers are a bit different to other cancers, I'm no doctor, but if you are worried you have to talk to your doctor again, the only way to get a definite diagnosis is a biopsy under your arm. I had one in my neck, under my arm, just to check what kind of lymphoma I had and If it was a slow growing one or aggressive. Ct scans, bone marrow biopsy's. This was all before they decided on whether or not to give me treatment.it takes months to go through all this. Try not to panic, keep your eye on your lump, it may just be a reactive lymph node or maybe your new deodorant. Best wishes

  • Thanks for your reply your very kind and very brave with what your going through. Im just one of those fools that looks straight to google and starts panicing straight away. Apart from this episode my health anxiety has been great the last couple of years but its quite remarkable what anxiety and stress can do to your body pysically never mind mentally. How are you doing? Hope your doing well and thanks again for your reply

  • Hi, you are not a fool, I was a bit of a mess before my treatment started, I read everything I could and it worried me sick. It's taken me a while to get where I'm at. The hospital gave me books about blood cancers, they scared me as well. I've got bloods to get next week at the hospital and I'm worried, not seen my doctor for about a year, before Covid I was going every three months to get checked. But I feel good at the moment, no symptoms like my first time round. When I get checked, she checks all round my neck, under my arms and my groin. An X-ray showed they are back at side of my lungs but no side affects yet. Live for today is my motto, but all I can say is be vigilant and go back to your doctor if your lump doesn't go down. Take care 

  • Hi there bit of a long post but looking for some help or info 

    So a few months back I went to the docs with tightness if my throat which they think is acid reflux they gave me tablets which help but now I have found a swelling at bottom of right side of neck like at the crease if you get me. Doc felt it said it was a vein then another doc felt it never mentioned anything about a vein but said it felt like fatty tissue couldn't feel a lump .. but have been waking in the mornings with face swelling doc gave me steroids which are helping a bit I'm so freaked out I have lymphoma cos that's what google says I know I shouldn't google but easier said than done! I should also mention I'm a little over weight not sure if that comes into anything 

     

    if anyone could get back to me that would be appreciated thanks 

Reply
  • Hi there bit of a long post but looking for some help or info 

    So a few months back I went to the docs with tightness if my throat which they think is acid reflux they gave me tablets which help but now I have found a swelling at bottom of right side of neck like at the crease if you get me. Doc felt it said it was a vein then another doc felt it never mentioned anything about a vein but said it felt like fatty tissue couldn't feel a lump .. but have been waking in the mornings with face swelling doc gave me steroids which are helping a bit I'm so freaked out I have lymphoma cos that's what google says I know I shouldn't google but easier said than done! I should also mention I'm a little over weight not sure if that comes into anything 

     

    if anyone could get back to me that would be appreciated thanks 

Children
  • Hi, sorry you are going through this stress and worry. I'm not a doctor but to be honest, have faith in your doctors, they can usually tell if a lump is worrying and if they are unsure, they will send you for an ultrasound and more tests. The steroids should take your inflammation down but if it doesn't get on the phone again and tell them that you are worried. Lymphoma comes with lots of other symptoms like night sweats, loss of appetite and weight loss, fatigue. Your swelling may be your glands doing what they are supposed to, maybe fighting infection. Let your steroids do their job, it's a worrying time but try not to worry, just keep a check on your lump, check under your arm as well and your groin. Take care xx

  • hi thanks for getting back to me 

    I have a app with ENT but that was nothing to do with this swelling it was because of the throat tightness that have went away, still waiting on app tho.    It's weird when sitting down I can't feel the swelling but when I stand up and tilt my head and put my arm back I can feel and see it it's like fatty and I have realised if I do that I have it on both sides 

     

    it's so scary 

  • ENT was the first hospital appointment I had, he put the camera up my nose to look at my throat, he then sent me for a biopsy with ultrasound. Without a biopsy they can't really tell but they do have the experience on which lumps are abnormal. Hopefully it won't be anything, mine was a hard lump and didn't move about. Will keep my fingers crossed for you. X

  • Hello,

    I'm a 20 year old male, I also suffer bad from health anxiety.

     

    so around a week ago I noticed a small lump under my skin under my jaw line I think where the glands are.

    I am so scared if it could possibly be cancer and I've consulted dr google many of times and my head is fried and I don't know what to do. I'm so scared to go to the go incase they give me the worst outcome possible.

    I don't show any other symptoms I don't have night sweats I don't have lose of weight (not that I know off) 

    I'm just scared as I really don't fancy dying young not at this age :( 

    I feel like I'm going on a bit here but I just need some reassurance I really don't know how to deal with this health anxiety.

     

    many thanks for reading, 

    jake 

  • Hello I'm 15 I suffer with bad anxiety/health anxiety, and about 4 weeks ago.I was playing my PS4 and then noticed 2 small lumps on the left side under my jaw, o went and told my mum right away she said she had the same thing when she was little and it was the size of a golf ball and she had no symptoms and was very healthy, what they said to her was they thought it was cancer and she had an ultrasound and it came back as a swollen gland that hasn't gone down, she has it removed immediately and 20 years later she is very healthy, back to me my mum rung up the doctor who understand my anxiety, she said if it doesn't go down or decrease in size in 4 weeks come and see me and I'll get it checked for you and will run a ultrasound, to this day I keep googling and heading words like "cancer" etc and I have no following symptoms other then the small  2 lumps, I am very worried yes, but you need to put your trust in your doctors, I've read loads of things why I might have these lumps but it's still early!!! It's always best to get stuff like this checked out at an early stage rather then late, please inform me an update from your last writing, please try not to worry !!