Hi, 

im in a simimilar situation but my symptoms were quick to develop. I started off with one lump on my lower left leg a couple of months ago, I now have 5 lumps they feel hard and immobile to touch, although the doctor is convinced they are lipomas i have my doubts, the lumps have been continually growing and they have just recently started to feel painful to touch, I have severe fatigue some days I can’t keep myself awake, I feel nauseous all the time, my gp keeps sending me for ultra sounds but my legs are full of fluid, so am having another scan hopefully soon. Would appreciate any advice. As I’m a huge worrier too mostly down to the fact that all my grandparents have suffered from cancer, 3 out of 4 died. 

Thank you. 

This sounds very similar to my current symptoms first lump was found late last year and I now have five hard non mobile lumps causing pain that run down my shin bone. Have you had any results yet? I hope you don’t mind me asking 

I would be interested to know what the results were too. 

I found a lump on my leg yesterday its quite big. Having already had papiliary thyroid cancer any lump is always a worry to me but I try not not let it get the best of me. 

I'm going to see if there is any change on Monday and if not I will try and get in at my doctors. 

Hi,

Thought id respond to you all, thank you for taking the time to message me back too.

I had an ultra sound and a CT scan, apparently not lypomas or blood clots, or circulatory related. I saw two different types of radiographer too, i have a refferal to dermatology as they said this is the last resort for them to go down as they are completely puzzled. My appointment is in 3 weeks so will update you all, but my lumps are growing i now have another one, so totalling 6. Im no longer googling or researching as i have decided to not think the worst, when i messaged last i was in a bad place emotionally. I hope your all well, anybody else had any results or breakthroughs. x

Hi,

Thought id respond to you all, thank you for taking the time to message me back too.

I had an ultra sound and a CT scan, apparently not lypomas or blood clots, or circulatory related. I saw two different types of radiographer too, i have a refferal to dermatology as they said this is the last resort for them to go down as they are completely puzzled. My appointment is in 3 weeks so will update you all, but my lumps are growing i now have another one, so totalling 6. Im no longer googling or researching as i have decided to not think the worst, when i messaged last i was in a bad place emotionally. I hope your all well, anybody else had any results or breakthroughs. x

Just made an account to reply to this and see what happenend and if you ever got a diagnosis?

I started with some lumps in the front of my lower legs when pregnant but they went after the first trimester. As soon as baby was born they came back and I now have 20+ lumps in total, there are also bruises at every lump site and wondered if yours were the same?

I had a dermatology appointment yesterday and he suggested it was just over scarring? Which seems an odd thing to suggest when I have no lumps anywhere else in my body. I was worried it might have been Sarcoidosis as my tattoos and scars have all been reacting weird and scabbing over, I had uveitis as well last year and have a load of other little symptoms and I'm waiting for a biopsy appointment.

Hoping you've managed to get it sorted and would appreicate any suggestions etc with things to try/suggest to the GP moving forward :)

Hi LMYD - the symptoms you are describing can be an indication of an infection or generalised inflammation.  Scars and tattoos can scab and itch even years after healing, because when you get a tattoo or damage resulting in a scar, the skin heals with with more histamine-releasing cells called mast cells in there. Something can trigger an allergic response and the cells start reacting. 

The uveitis is also an inflammatory disease, so this would also link with the scars and tattoos.

As you have a diverse collection of symptoms all of which are inflammatory, including the lumps which could be granulomas, it seems a bit odd that the dermatologist would just write it off as 'over scarring' whatever that's supposed to mean.  

You could ask your doctor for anti-histamines or corticosteroids and see if that has an effect - if it does then it seems likely that the lumps are granulomas (as in sarcoidosis).  These are all issues with the immune system, and as such shouldn't just be ignored by the specialist. 

You could be right about it being sarcoidosis, just on the grounds of the diversity of the symptoms, but don't forget that this can actually clear up spontaneously even without treatment, but otherwise can be treated with steroids or other anti-inflammatories. It does need checking out, but it isn't something to panic about.

On the other hand, you could just have had a series of unrelated allergic/inflammatory episodes - it does happen, and sometimes you never get to the bottom of why they have been triggered.  I regularly had high levels of markers for inflammation in my blood tests, and we never pinned down what had triggered it.  I'm still here, years later. :happy:

Good luck, hope it's all going well for you. xx