Anyone’s low grade smear test turned out high at colposcopy?

Hi

smear result low grade dyskaryosis and positive HPV.

me again. Still worrying. Especially now I have a six week wait for the colposcopy!!! Got the appointment today. That’s over two months from original smear. 

I just have a bad feeling that it’s worse than the smear says. 

Have been having heavier more frequent periods since having the copper coil last year. Just put it down to a side effect of that. 

I booked the smear without getting a reminder as I had a nagging feeling something is wrong. 

So that’s the question. Has anyone had a low grade dyskaryosis smear result that turned out worse at colposcopy? 

Thank you. Katie. 

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  • Hello!

    I would just like to put your mind at ease, about a month ago I was diagnosed with the exact same thing as you low grade with HPV virus detected, this was my first ever smear test and scared the hell out of me, I literally cried for a week straight no exaggeration.. anyway I booked an appointment with my GP to talk about my smear results and she encouraged me to ring the hospital to try and get a cancellation for my colposcopy. I called them up and they managed to get me a cancellation so within 2 weeks of finding out my results I had my colposcopy I don’t think I could have waited for 6 weeks, I would try to get a cancellation :)

    with regards to the colposcopy I PROMISE you there is nothing to worry about, the nurses are the most loveliest people I have EVER met, they make you feel comfortable and do not judge you at all. The examination itself does not hurt in the slightest it’s just a bit embarrassing that’s all. 

    Within 2 weeks of having my colposcopy my results came back, I want to reassure you that although abnormal cells have been found it’s nothing to worry about. My results come back from the biopsy taken that I have no CIN at all and they will do a repeat smear and HPV text in a year. So please don’t worry as I put myself through hell for a week crying and worrying when your results can also come back as no cin at all! I hope this has put your mind at rest and if you want some more advice on anything please message me :)

  • Hi there, that's an amazing story. I'm happy for you!

    I'm currently awaiting results from a colposcopy/biopsy. I'm so worried, can barely sleep! It's awful. I have some questions to ask you though. When you first got your results from your original smear test. did it say you had high-rise HPV and low risk dyskaryosis? That's what mine said. Also in the colposcopy did the doctor mention/show you roughly how much of your cervix had abnormal cells?

     

    I'm trying to predict my results! Can't help it!!! 

  • Hi tm29

    I’m sorry to see this has affected your life to such an extent. Almost everyone who has ever been sexually active will have come in contact with the HPV virus, and most will never even know they have it. 

    However, having the virus does not mean you can never have a relationship again, or never be intimate again. I appreciate that is your choice, but just saying that it’s not a necessity. x

  • I have just received a letter confirming I have HPV and Low-grade dyskaryosis. I am going for a colposcopy. I was just wondering how the procedure was etc... 

    I am also worried sick, I have lower abdominal pain and I think a UTI, not diagnosed. I had excruciating pain a few weeks ago after sex, but I just had put that down to having the coil fitted a couple of months back. 

    But you google these things and it's terrifying, I know you shouldn't google but it's natural!!!

    Any words of wisdom or advice would be much appreciated 

    Charlotte

  • I am not selfish enough to want to spread a virus that causes cancer but appreciate your input 

  • Hi Charlotte

    Well, my advice would be to stay off google! It’s not something I ever did, and I’m so glad I didn’t because I think it would have both scared the life out of me and given me lots of false information. I preferred to be guided by my medical team which has served me much better. 

    The colposcopy is basically just a closer examination of the cervix and a solution is applied to identify any areas of abnormal cells. Low grade dyskariosis may not require treatment so your outcome will depend on what is found when this is done. Your mind can run away with itself when you get an abnormal smear result, but it really is extremely common, and the whole point of the screening process is to deal with this before it ever turns into cancer. The colposcopy is very straightforward, so try not to worry too much about it. 

  • Hi!

    Just wondering what kind of vitamins you took?

    Thanks  

    Iya

  • Hi Iya,

    I took the standard Wellwoman vitamins in the purple box!

    best wishes

    Lola x

  • Hi Lola!

    Thank you for the quick reply! Sorry for the late reply.I just read your message . I'm just a bit worried now as I have my colposcopy appointment today!Wish me luck!

  • Mine also came back as this and I have 9 momth old aswel km so scared aswel I suffer with anxiety and overthinking so this is knock me for 6, om googling alsorts

  • Offline in reply to tm29

    Hi x wondering how you’ve got on x hope all is good xx and I agree with your decision back then. My 2nd col next week, a year after the first and the invitation did not read well  Worse than the 1st. Some on here are lucky and seem to clear their hpv but I’m not one of those and the dyskar is much worse it seems. xx

  • Hi SBJJ and welcome to the forum.

    I'm sorry you haven't heard back from tm29, It's been a while since they last posted and over 2 years since this discussion was last active. You may have more luck reaching out to others on more recent discussions about this topic or starting your own.

    I hope your second colposcopy went ok but if you have any questions or concerns you can give our team of cancer nurses a call on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they will do all they can to help.

    Kind regards,

    Steph, Cancer Chat Moderator

Reply
  • Hi SBJJ and welcome to the forum.

    I'm sorry you haven't heard back from tm29, It's been a while since they last posted and over 2 years since this discussion was last active. You may have more luck reaching out to others on more recent discussions about this topic or starting your own.

    I hope your second colposcopy went ok but if you have any questions or concerns you can give our team of cancer nurses a call on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they will do all they can to help.

    Kind regards,

    Steph, Cancer Chat Moderator

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