Hello!

I would just like to put your mind at ease, about a month ago I was diagnosed with the exact same thing as you low grade with HPV virus detected, this was my first ever smear test and scared the hell out of me, I literally cried for a week straight no exaggeration.. anyway I booked an appointment with my GP to talk about my smear results and she encouraged me to ring the hospital to try and get a cancellation for my colposcopy. I called them up and they managed to get me a cancellation so within 2 weeks of finding out my results I had my colposcopy I don’t think I could have waited for 6 weeks, I would try to get a cancellation :)

with regards to the colposcopy I PROMISE you there is nothing to worry about, the nurses are the most loveliest people I have EVER met, they make you feel comfortable and do not judge you at all. The examination itself does not hurt in the slightest it’s just a bit embarrassing that’s all. 

Within 2 weeks of having my colposcopy my results came back, I want to reassure you that although abnormal cells have been found it’s nothing to worry about. My results come back from the biopsy taken that I have no CIN at all and they will do a repeat smear and HPV text in a year. So please don’t worry as I put myself through hell for a week crying and worrying when your results can also come back as no cin at all! I hope this has put your mind at rest and if you want some more advice on anything please message me :)

Hi there, that's an amazing story. I'm happy for you!

I'm currently awaiting results from a colposcopy/biopsy. I'm so worried, can barely sleep! It's awful. I have some questions to ask you though. When you first got your results from your original smear test. did it say you had high-rise HPV and low risk dyskaryosis? That's what mine said. Also in the colposcopy did the doctor mention/show you roughly how much of your cervix had abnormal cells?

I'm trying to predict my results! Can't help it!!! 

Hey!

i hope you are well :) 

If I’m being honest I can’t remeber if high risk HPV was mentioned on the original smear letter, however upon searching the internet which is the worst thing to do, it is mentioned that HIgh risk HPV is what causes CIN and cell changes in the cervix. My results from my Smear test stated that I had low grade dyskaryosis and HPV, my colposcopy showed HPV with no CIN. 

During the Colposcopy the lovely nurses did show me my cervix on the screen and showed me how much of my cervix had been affected

It has now been a year on and I have had my results from my second colposcopy.. I couldn’t believe what my results were, they stated that I had Cleared the HPV and no HIgh Risk HPV was found and I had cleared it from my system and I had CIN1. They have discharged me from hospital and said to go back to my doctors within a year and to have a smear to check my CIN. I made sure I took daily vitamins every day and I’m thinking this helped me to clear the virus, I have a pretty good immune system and very rarely get sick so not sure if this had something to do with clearing it! If you want to donknow what vitamins I took let me know :)

But please please please do nont worry and drive yourself crazy like I did for a year, HPV is not forever you will clear it with a good immune system! Xxx

Hi there, thank you so much for your response!

That does make absolute sense! I hope I can clear it because I barely get colds hahaha wondering if my immune system is decent! I'm so glad yours went well! That's promising. 

When they showed you your cervix, was there many abnormal cells? In mine, they showed me and told me that the cells were spread across most of my cervix, which I find daunting!!!! 

hey! 

Youre more than welcome. I hope it’s made you feel a little better as I know talking to people who have been or are going through the same thing helped so much!

On my first colposcopy she showed me and she said it was a tiny area and she would be surprised if it even turned out to be CIN1 (at the time after my results come back from that I didn’t hav CIN1 only inflammation) but my most recent one in June she said that was an area that looked abnormal but didn’t show me! My results come back with CIN1 for that one and I’m hoping they return to normal after another year as I no longer have HPV (fingers crossed(

Please let me know how your results go and I’m praying for you everything is ok! If you need to to ask anything else you know where I am xxxx

Hi I just read what you had gone through I’m too now in the same position ‍♀️

What vitamins did you take pls ?

Hi received a letter last week that I have hpv low grade I've been worried sick can't sleep it's constantly on my mind. I read your post so pleased to hear that yours cleared. I was hoping you would share with me what vitamins you took brand and dose. Look forward to hearing from you 

Hi Sarah,

i hope you are well. So sorry to hear that you've been informed that you have HPV, it's probably the worst news I had received and was in total shock when I read the letter. 
 

i took the well women vitamins in the purple box (hope this helps) 

i know it's hard and nothing anyone says to you will make it go away, but just know there are so many people out there that have had/or have HPV and have gone through what you're going through now. 

if you have any questions please do reach out to me as I know speaking to someone who has been through the same thing sometimes helps and there's probably thousands of questions going through your head! 
 

take care

xx

Hi thank you for getting back to me so quickly, the worry has had me checking my emails since I contacted you only yesterday,  lost count how many times Ive checked. Been feeling extremely down since I got the letter, constant worry day and night to the point it's started affecting my concentration. I was so glad to come across posts like yours and others while I searched the internet looking for answers and questions similar to mine. Thank you, will definitely take those vitamins I hope it can help.

Hi 

I was diagnosed with hpv and low grade cell changes last year and was referred for a colposcopy (awful experience) - i since abstained from any intimate contact, stopped smoking, cleaned up my diet - I've had another smear with the same results so looking like I'll not get rid of it now .... another smear and colposcopy horrific experience to endure ... which looks like will now to be an annual event ... and a lonely life

Hi 

I was diagnosed with hpv and low grade cell changes last year and was referred for a colposcopy (awful experience) - i since abstained from any intimate contact, stopped smoking, cleaned up my diet - I've had another smear with the same results so looking like I'll not get rid of it now .... another smear and colposcopy horrific experience to endure ... which looks like will now to be an annual event ... and a lonely life

Hi tm29

I’m sorry to see this has affected your life to such an extent. Almost everyone who has ever been sexually active will have come in contact with the HPV virus, and most will never even know they have it. 

However, having the virus does not mean you can never have a relationship again, or never be intimate again. I appreciate that is your choice, but just saying that it’s not a necessity. x

I have just received a letter confirming I have HPV and Low-grade dyskaryosis. I am going for a colposcopy. I was just wondering how the procedure was etc... 

I am also worried sick, I have lower abdominal pain and I think a UTI, not diagnosed. I had excruciating pain a few weeks ago after sex, but I just had put that down to having the coil fitted a couple of months back. 

But you google these things and it's terrifying, I know you shouldn't google but it's natural!!!

Any words of wisdom or advice would be much appreciated 

Charlotte

I am not selfish enough to want to spread a virus that causes cancer but appreciate your input 

Hi Charlotte

Well, my advice would be to stay off google! It’s not something I ever did, and I’m so glad I didn’t because I think it would have both scared the life out of me and given me lots of false information. I preferred to be guided by my medical team which has served me much better. 

The colposcopy is basically just a closer examination of the cervix and a solution is applied to identify any areas of abnormal cells. Low grade dyskariosis may not require treatment so your outcome will depend on what is found when this is done. Your mind can run away with itself when you get an abnormal smear result, but it really is extremely common, and the whole point of the screening process is to deal with this before it ever turns into cancer. The colposcopy is very straightforward, so try not to worry too much about it. 

Hi x wondering how you’ve got on x hope all is good xx and I agree with your decision back then. My 2nd col next week, a year after the first and the invitation did not read well  Worse than the 1st. Some on here are lucky and seem to clear their hpv but I’m not one of those and the dyskar is much worse it seems. xx

Hi SBJJ and welcome to the forum.

I'm sorry you haven't heard back from tm29, It's been a while since they last posted and over 2 years since this discussion was last active. You may have more luck reaching out to others on more recent discussions about this topic or starting your own.

I hope your second colposcopy went ok but if you have any questions or concerns you can give our team of cancer nurses a call on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they will do all they can to help.

Kind regards,

Steph, Cancer Chat Moderator