Hello Highlands xx

i had high grade dyskariosis and ended up having LLETZ - but this wasn’t the cause of my pain.     But I did get an MRI which determined that I have 3 discs that have slipped.   I’ve been told this is likely the cause of all my symptoms, paired with IBS.    All my symptoms are worse during menstration and ovulation, but I guess that’s due to all ligaments becoming a bit loose during these times in preparation for avpotential pregnancy.

i get sciatica periodically, which is now obviously due to that particular disc!   

I tend to grin and bare the pain now (I’m useless at making appointments with the dr).   It’s still constant to varying degrees.   They suggested next step as being steroid injections but I’ve heard they are hit and miss as to whether they will help or make it worse....   so I’m not keen on that option! And surgery’s a massive NO for me without a 100% garuntee !

the last few days I’ve been taking hemp cbd oil (15%) and I do believe it’s taking the edge off.....    I will try anything!   Amitriptyline didn’t help and I suspect I’ve become immune to normal doses of codeine and tramadol having taken so much!

if you haven’t had one ask for a lower lumber MRI x

good luck it seems to be a long journey xxx

Sorry to hear all here in pain, I hope you all feeling better. I too have pain down my left side,  starts under my ribs to top of bikini line, I have divaticulitis  One day good next day three bad. I also have an underactive thyroid, im on daily dose of 125 Levothroxine The pain wraps around my ribs to my back. 

At xmas i got hives after some intensive fitness (allergic to exercise ) Starting under my arms and spread down my sides and inside my thighs down towards knees, it was  crazy itchy which lasted over three weeks. I had sterroid cream and pain killers   

  Now I have a urinary tract problem, burning/stinging sensation which makes me want to pee urgently. I've had 3 losts of antibiotics, pro biotics  cranbury juice, apple cider vinegar yet still have it in episodes, it just flares up and I have to take pain killers and lie down   I have pain at the front of my right hip which feels like a trapped ligament which often stops me in my tracks from being able to walk   I have aches and pains all over which makes day to day living hard work.  I am tired all the time and so stressed and just want to stay home, i gained 3 stone in weight. I know I am depressing my family because I'm not my old happy self. I hear myself moaning and giving out a lot    Im fed up with myself!!!

Hi all, so pleased to have found this forum, I to have been suffering from pain in lower left hand side, which travels through to my buttock and sometimes down front of left leg. I have had scans and all come back clear, the latest is that my doctor said I have arthritis in my lower spine and this is causing the pain(I find this hard to believe as why does it get worse when period is due) any advice? Am thinking of getting a second opinion from another doctor,but unsure how I would do this as hard enough to get an appointment with my own doctor.

I’ve been experiencing the same thing, I’ve had these pains since August last year they’ve gotten worse over these past months blood test and urine tests came back clear both ultrasounds came back clear they seem the think that it’s growing pains but these pains are nothing like growing pains 

I have the exact same symptoms! Mine originally started about 9 months ago when my period disappeared for 3 months.. I'm 31! I have also been offered a laporscopy.. to be honest I'm scared of having it done and put it off, but I feel I'm going to have to go as I cant cope with this pain all the time.  Did you ever get ypur kidneys checked. I thought might could be kidney pain but they never checked, as for a I'm aware. I hope your laporscopy has gone well and you have got some answers.

This sounds exactly like Sciatica - I have 3 dodgy discs and 1 happens to be the one that effects the sciatic nerve - deft worse during menstration (prob due to softer ligaments during that time) I can be completely bedbound when the disc moves and pinches it - the thing that helps me most is very slow and gentle yoga for lower back pain - stretching out the psoriasis is crucial in pain management xxx

hope that helps xxx

Hi Hollie - I'd seriously be asking for an MRI - all your symptoms would be explained from a disc/nerve issue.    Problematic discs don't necessarily cause huge amounts of pain in the back but can cause a whole range of pain and problems depending on what disc is out and which nerves it's effecting.   (obviouly IBS is something different but may just be coincidental and not related to your other symptoms)

On a different note i also have non alcohol related fatty live (self inflicted from my diet i suspect) and my pain from that is always the right side.   my other pains are mainly caused by my back.  I hope you find an answer - unfortunately if it is your discs there are limited treatment options that can garuntee a fix but there are certain basics that you can do yourself that can really help x

Good luck - keep us posted x

hi My daughter came on her period at 8yrs old...she had regular 7 day periods but very heavy and painful gave paracetamol and the odd days off school till she was ok again!!! Suddenly on December 15th she started with pain in back and pelvis she was treated for UTIs. My friend mentioned to me endometriosis but my GP dismissed it saying she was to young....was later referred to urology to rule out anything to do with water works everything cane back clear so was then referred to Pediatrics who the referred to Gynaecologist before we could get the appointment through she took a turn for the worst and ended up in a+e after being told by my GP that she needed mophine in hospital she got admitted to the children’s assessment unit  where they ran tests (BUT GAVE PAIN RELIEF WHILE THEY WAS DOING THIS TRAMADOL) on appendix which came back clear, I had to go home for the night to sort my  other child out and dog etc I was woken, Chloe rang me saying the surgeons  wants to discharge me. I rushed straight back and was met by her nurse who said she was being discharged and I need to sign some paperwork I said can I have a private word  please so I said to her we came here as Chloe was in to much pain to stay at home what has changed??? She said well she hasn’t got Appendicitis so she doesn’t need to stay I said to her hypertheicly what you do if I said we wasn’t going anywhere and you would need to call the police to remove us against out will she said well she’s would have to stay to the morning till the surgeon can speak to you again I said great she staying then they moved her on to a children’s ward I settled her in and had to go home as I had my other daughter with me!! The following morning I went straight back to the hospital to find Chloe had been refused meds all night I was fuming she was doubled over in pain crying begging them for painkillers anything to take the pain away the surgeon came and spoke to me and said what is Chloe gaining form all this attention I was fuming so I said we was going for a walk to clear out heads... I had in my head that this was endometriosis when I walked on the ward I asked to see a gynaecologist but they refused  so I bundled Chloe into a wheelchair and went searching for the endometriosis specialist in the hospital I made a scene in the waiting room until they agreed to see us when he finished in surgery with another patient!!! We went back up to the children’s ward and waited all the time they are trying to get rid of us I said we are waiting for the specialist and he will come they  just laughed and sneered at us until the leading endometriosis specialist walked into our cubicle, he said you have got my attention let’s hear your story!!! Within 30 minutes he agreed with us and agreed to a laparoscopy and booked us in for 12th of April and sent down to pre op assessment then home with pain relief till the appointment!!!! Chloe has not been to school since the school opened back up after Xmas we have had numerous fines and social services trying to get her to go to school saying she is just emotional!!!! It has been a really tough battle but DONT GIVE UP YOU KNOW YOUR CHILD!!!!! Good luck with everything!!!!

Hi

I too have been experiencing excrutiating pain in left hand groin area and lower back for over two months now.  I have suffered from IBS for many years so know when having a flare up but this pain is far more concentrated and painful.  I have had a colonoscopy and transvaginal scan both clear.  I am at a loss to know what else it can be.  My family history with cancer is not good so obviously a little worried.

Anyone ?