I've had one today 3 stitches , my ear and neck seems to the most uncomfortable , but I. Taking plenty of painkillers , they said to,take them regualary x

Hi there,

In a similar situation and would be grateful to know whether any one else had had the same feelings.

I am a Kidney Cancer survivor (5 years), but have just recently had 3 nasty white patches come up on the side of my tongue. Everybody thought it was Thrush as I always get oral thrush whilst on antibiotics but when after treatment it did not go, they decided to refer me to ENT who then decided to perform excision biopsy’s on all patches in theatre.

I was awake, just had a local, it was awful but I got through it ok! Stitches etc and very sore, awful pain. I am 6 days post surgery now and still struggling to talk, and rest my tongue comfortably in my mouth. Stitches dissolved about 3 days after but no bleeding so went with it. I have 2 weeks to wait for my biopsy results which is the worst for me! I appreciate the healing process takes time but I have been salt water mouthwashing and corsodyl throughout the days but now I feel like my teeth and jaw aches... could it be the mouth washing that’s doing it? Teeth, gums, cheeks and jaw just feel wierd and achy like I’ve been biting down hard on something for a long time. Only noticed it yesterday. Anyone had the same feeling pls? Xx 

Hi Sarahvm

I got my tongue biopsy yesterday but I had pain in my ears and face weeks before I got it, I'm a lot better just 24 hour later, my heart goes out to you as I don't feel you should be suffering as much, I have only been using the salt mouth was, but was thinking of using another mouth wash as well so will keep you up to date. So happy you have come through the other side of kidney cancer well done. I was phoned yesterday after my biopsy to go back for a kidney blood test, any idea why? 

Hi Vey,

Thank you for your message, I’m doing a lot better now and get my results today... Fingers and toes crossed it’s not the dreaded C word!

I’m sorry to hear you were poorly but glad your feeling better now. I have no idea why they have requested Kidney tests? I would always ask why! I had a stage 3a tumour in my right Kidney but my bloods and Kidney function tests all came back normal. It wasn’t until they scanned me that they found it. Worryingly, for certain things bloods are totally unreliable. 

Always ask as many questions as you can and be pushy when you need to be, I’ve kearnt that over time.

i hope your results come back okay, I’m sure they will and keep me updated.

sarah xx

Hiya Sarahvm

Glad to hear you're feeling better, and fingers crossed you get a brilliant result

Kind regards Vey

Hi Vey,

I hope you are feeling a little better and you managed to get more info regarding the request for Kidney tests...Keep me posted!

just thought I’d let you know that my biopsy results showed severe Oral Lichenoid Inflammation, not cancerous, PHEW!

The consultant in the Max Fax clinic has suggested I get my amalgam fillings replaced with composite ones ( Costly), and have been given a steroid nasal spray to put on my tongue? 

Apparently it’s now a process of elimination to find the cause and if it hasn’t gone down in 4 weeks when I return to see him he has suggested another biopsy. 

Hoping it miraculously didsappears...

All the best Sarah x

Hi Vey,

I hope you are feeling a little better and you managed to get more info regarding the request for Kidney tests...Keep me posted!

just thought I’d let you know that my biopsy results showed severe Oral Lichenoid Inflammation, not cancerous, PHEW!

The consultant in the Max Fax clinic has suggested I get my amalgam fillings replaced with composite ones ( Costly), and have been given a steroid nasal spray to put on my tongue? 

Apparently it’s now a process of elimination to find the cause and if it hasn’t gone down in 4 weeks when I return to see him he has suggested another biopsy. 

Hoping it miraculously didsappears...

All the best Sarah x