Hello, I was going to suggest that you seek a different opinion which is what you are doing.  My son was fobbed off by our gp surgery for over a year turned away from a&e twice and I urge you not to accept lacklustre response, you need to have a colonoscopy at the very least so that you can hopefully put your mind to rest.  Sending you good thoughts and hope the festive season is all that you would want it to be

 leslie.

Thanks for your reply Leslie. And sorry to hear about

your son. Do you mind sharing his story? Symptoms etc. It is a worry when you're told you're too young and you don't want to be a hypochondriac but are really worried. 

Hi Allyo, 

Sorry to read about your pain and issues - yes - sounds almost the same.  I've gone through all those thought you have and Gallatones was closest but I had a CT scan and they showed no issues . 
I have scopes booked next week - both ends, and small bowel MRI the week after - my list now is down to muscular pain (no likely) Polyps and bowel/colon cancer. Non of which quite match the Symptoms, but I guess we are all different -   meeting with consultant on 27th and will share my results here. 

Forgot to add - I did myself online blood stool test and CRP and both have been negative 

And I'm really luck that my tests are private - that said, all this has still taken a year.

Hi I've been having stitch like pain in my lower right side since 5th December for the first week I could hardly move even to sit at the table to eat. I tried pain killers but they did nothing. My stomach was bloated I felt like I needed to pee often ,was constipated which is very unusual for me. I had no other symptoms,I wasn't passing blood ,didn't  have a temperature and didn't feel sick. I suffer from IBS so took Buscopan which seemed to help,after a week the pain had nearly gone,some days it goes altogether but appears when I wake up. It's still there today, it feels like stitch but I'm getting concerned as it's never lasted as long as this. I've spoken to my  DR who said to go to A&E which I don't want to do especially at this time. Does anybody recognise this is it IBS I hope so and not anything else 

Hello Wende and welcome to the forum.

I'm sorry about the symptoms you've been experiencing. They sound very challenging but I'm glad to see the Buscopan provided some temporary relief and that you've seen your GP. 

Your reservations about going to the hospital at this time are completely understandable, but your doctor has recommended you go for a reason so it really would be best to follow their advice. If you're worried you can contact the NHS on 111 and speak with someone who can advise you further. 

I hope you're able to get this resolved soon.

Kind regards,

Steph, Cancer Chat Moderator

Hi

I've got exactly the same issues. After all the tests

upper endoscopy, lower endoscopy, AB CT, thorax CT, ultrasound, numerous bloods, stool and wee samples but other than a hiatus hernia, inguinal hernia and diverticula all come back fine. Now I'm on anti depressants (as my sister died of stomach cancer a few months ago) and omniprazol but still getting the right sided swelling and bubble under the rib feeling. Always seems to be gone in the morning before getting up though. I'm also at a loss of what to do next. I feel like my dr now dreds me phoning him almost every week!. 
 

regards

Andy

Hello Andy,

I just wondered whether you have tried the low Fodmap diet? I had the same thing, but on the left. It improved once on the diet. Just an idea :) 

Jo

I have the very same issues and pain as detailed here. It has been going on just over 1 year now.  
 

Pain in right side abdomen in between lower ribs and hip.  I sometimes also have pain around to my back pain on the right side, in to my lower shoulder and in my pelvis. Very occasionally  the pain is also in my groin (on the right) and right calf.  I seem to be gassy al of the time, my bowel movements are all over the place and sometimes very hard / others very loose (sorry). 
 

I had a period of no pain between May and September last year, but since back with a vengeance.

I have adjusted diet, increased exercise (I didn't do any before really), cut out alcohol. Increased water intake.  All with little change - I do notice a slight difference with plenty of water and no meat in my diet. 

I have had a chest X-ray, abodomen ultrasound, bloods and stools.  All seemingly normal apart from raised ALT and vitamin in bloods - which has to be retested in 2 weeks. I'm told it does not appear to be IBS, Crhons, IBD, etc.  No stones etc.

I have now been referred to a gastroenterologist and awaiting the appointment.

I am absolutely terrified it is something sinister. I worry about my kids and wife - I support them all, I am the only earner.  I can't afford private but have been paying for a lot of this privately. I am considering private gastroenterologist - I just can't stand not knowing what this is happening. 
 

Have you an update please? I've read your posts and we both lost a parent to this horrific  disease and I'm going through hell at the moment convinced myself I have it too, I'm just waiting for a colonoscopy.

Thanks

Any updates? I've been experiencing pains in the lower part of my stomach for months now, it brings no pain just irritating and my health anxiety is going crazy I've been Googling what it could be which in turn is making me much worse im struggling to eat now through worrying and I've been to the toilet many times.

I am in a similar position, it has been going on for over a year. It is driving me insane. For me, it can be painful (a sudden onset of sharp / burning pain or a dull constant pain), other times it can just feel irritating (like I'm carrying a tennis ball around in the lower right abdomen). There was a period of months last year when I didn't notice it at all. Now, it's only the odd day or few hours here or there when I don't notice it.

I am genuinely terrified something sinister is going on. I am 42, I have two young children - I really want to see them grow up in to great adults. The health anxiety is dreadful, I'm sure it is a vicious circle - I have stopped Googling - it only adds to the anxiety. As me mentioned previously, I have been for 2 abdominal ultrasounds, 2 chest x-rays, a CT of my brain (due to a blackout), a range of bloods (going back next week), a private bowel health/screening blood test. ALT was raised, as was vitamin B12, all else comes back ok - private hospital didn't think raised ALT/vitamin B12 is an issue - they just wanted to retest next week (6 weeks after original tests) - I'm having this done with my GP.  The thing is, I'm told it's nothing to worry about, you'll be fine, don't be negative, but I know my own body and it wasn't like this just over a year ago. 
 

I have cut out alcohol, improved diet (it wasn't bad before but now even less red meat, fats, sugars etc...). I have also improved exercise - but no noticeable in my right side pain and discomfort. 
 

I have been referred to a gastroenterologist, the wait time is approx 4 months.   I can't really afford it but will pay for private gastroenterologist and either a CT or MRI of my bowel - or endoscopy, whatever is best. 

I am in a similar position, it has been going on for over a year. It is driving me insane. For me, it can be painful (a sudden onset of sharp / burning pain or a dull constant pain), other times it can just feel irritating (like I'm carrying a tennis ball around in the lower right abdomen). There was a period of months last year when I didn't notice it at all. Now, it's only the odd day or few hours here or there when I don't notice it.

I am genuinely terrified something sinister is going on. I am 42, I have two young children - I really want to see them grow up in to great adults. The health anxiety is dreadful, I'm sure it is a vicious circle - I have stopped Googling - it only adds to the anxiety. As me mentioned previously, I have been for 2 abdominal ultrasounds, 2 chest x-rays, a CT of my brain (due to a blackout), a range of bloods (going back next week), a private bowel health/screening blood test. ALT was raised, as was vitamin B12, all else comes back ok - private hospital didn't think raised ALT/vitamin B12 is an issue - they just wanted to retest next week (6 weeks after original tests) - I'm having this done with my GP.  The thing is, I'm told it's nothing to worry about, you'll be fine, don't be negative, but I know my own body and it wasn't like this just over a year ago. 
 

I have cut out alcohol, improved diet (it wasn't bad before but now even less red meat, fats, sugars etc...). I have also improved exercise - but no noticeable in my right side pain and discomfort. 
 

I have been referred to a gastroenterologist, the wait time is approx 4 months.   I can't really afford it but will pay for private gastroenterologist and either a CT or MRI of my bowel - or endoscopy, whatever is best. 

Hey thanks for the reply. My symptoms sound pretty similar. Is yours in the lower left side too? You should be satisfied that the tests you've done have all come back clear. Google is honestly a nightmare for people like us with health anxiety. My pains are usually always lower left I've got time off work this week and they seem more frequent now I had a bad day yesterday where I was just Googling and it scared me.so I couldn't eat a thing. A lot of the issues could be anxiety I've always had it a couple of years ago I was convinced I had a brain tumour. I dont really seem to notice the pain when im off work but unfortunately due to lockdown its hard to keep myself busy

Hi 

I have similar symptoms lower to mid right side pain that radiates in my groin , this has only started in the last 4/5weeks  

my bowel movements have change where they are more narrow than usual and sometimes pencil thin (I've be to my gp and he has told me it's hemorrhoids  and I then went for a second opinion and voiced my concerns and he also said it's hemorrhoids and not to be worrying but he has referred me fora colonoscopy just to be sure which I'm having done next Tuesday (cant say I'm not worried but needs to be done .

How did you manage to get a colonoscopy so quickly. I've been told 4 months waiting list to see a gastroenterologist - who will then decide if I need a colonoscopy or endoscopy - so it will no doubt be 6 months before I get a colonoscopy. 

I getting it done private 

Hello, sorry to hear that things are difficult for you. My partner is experiencing very similar symptoms, with the dull ache/tennis ball feeling in the lower right hand-side... I am worried sick for him, he's 38, his doctor run some blood tests which came back clear and they just said to wait to see if the pain/feeling goes away... How are you getting on?

Sorry to hear about your partner.

I have been for various tests and scans and all are clear. The pain comes in peaks and troughs. I find a number of things help me keep it under control. It took about 3 weeks for me to see a difference.  If I slip back into the below it flares up very quickly.

Private hospital  test says it is not IBS despite the below.

1. At least 1.5 litres of mineral water each day. 
2. Little to no alcohol. I did not drink regularly before, but I find a few glasses of wine can aggravate it.

3. As little sugar as possible - cutting down on all things with sugar in.

4. Little to no red meat.

5. Not a lot of caffeine. 

6. Generally sticking to a healthy diet.

7. Keep stress levels down. 

Thank you for replying.

The quest for diagnosis can be so challenging at times, can't it?! I think we might have to explore the private options too. Thank you for all the suggestions - the sugar element might be tricky for my partner, he has a particularly sweet tooth! 

I hope things improve for you. If you find any aswers, I would be grateful for any advice.

Best wishes

Hi Roygo.

You wrote: Private hospital  test says it is not IBS despite the below.

Which test was that?  The NHS website says there is no (specific) test for IBS.

It was a Bowel (GIT) Profile - looks for various markers, so doesn't specifically test for IBS, Chrons etc but 'should' flag up any indicators (or so I was told by the hospital). 

I can't find any reference to a Bowel (GIT) Profile test online.  Did they test blood or stool or both?