Quick update from my end, my fears for being called in early for results were true unfortunately. Consultant says I have aggressive cells which on a rating of 1 - 5 with 5 being cancer I am high 4, but good news is I couldn't have caught it earlier. I am in Mon or Wed to have part of my tongue removed to hopefully get rid of the bad cells & test for any spread. Yesterday was a bad day emotially but work n the few ppl I have told have been really supportive, *** myself for next week now!!!

Hi Stoke mate

sorry to have to welcome you to our small and exclusive club that none of us really want to be in. But any consolation they’ve found it quickly and are acting quickly as well .All I can say is the U.K. cancer treatment is second to none and a world leader. 

My own experiences are of tonsil cancer and my best advise is keep off dr google stick to cancer U.K. or Macmillan forums otherwise like my incolysays he could diagnose himself dead within 5 mins by reading rubbish online. 

When you know a bit more you can look at my blog www.radioactiveraz.wordpress.com where I do a blow by blow accounts warts and all of my 35 radiotherapy sessions and 2 chemotherapy sessions .but best advise take baby steps go with what your cancer teams tell you .

yesterday would have been bad if any consolation year ago yesterday I got put in the cancer pathway and know exactly how you felt gutted devastated why me !!! But I gitbyhe cancer clear in January and back to living our life s have just returned from 8 weeks in Spain riding my bike walking and in general doing as my oncologist says  live my life  ok still have mouth issues but each day I notice tiny improvements .

keep in touch and goodluck.

onwards and uowards

Hazel x

Hi Stokemate.

So sorry to hear your results.

To be honest having part of my tongue removed wasnt as bad as I thought it was going to be. I had alot more removed from soft palate to tonsil arch and palatoglossal muscle and neck dissection. My throat was horrendously sore but my tongue wasnt bad at all.

Its very good that youve caught it early too. Hopefully they will get good clear margins,in my case half a centimetre clear on tongue margin. If you are very lucky they may decide you wont need radiotherapy so fingers crossed for that.

It is all an emotional see-saw so you will be feeling the affects of your diagnosis for some time to come,but its good that you have supportive folks around you.

Keep in touch and best wishes for next week. x

Afternoon,

Thanks for the replies, I have been confirmed as Wed morning for my op. Think consultant says he will be taking approx. 5mm off tongue to give clear margin. Not sure what to make of it all at the moment, been very up & down with emotions. I know this is not confirmed as cancer but the urgency to get me in & long term prospects fill me with fear. Suppose it's just a case of get through the op, await further tests then take it from there. Thanks again for the support x

Hi

I can understand your worry and concern. Its far better to be treated quickly believe me. My tests and operation seemed to take forever and I had been told my cancer type was very aggresive. After palate biopsy I was told that hard palate was clear but didnt know anything about soft palate till after op So had it spread in the two months between tests and op?

If he only takes 5mm you will be fine and will recover surprisingly quick. Be guided by what Dr tells you after your op. Lifestyle changes etc(if needed). I am sure he will tell you your long term situation will be fine too. Do try to stay positive,this time next week it will be behind you.

Take care good luck and best wishes for Wednesday.x

Hi good luck forcSednesday keep in touch when op over and yiu feel well enough to post 

Hazel 

Hi Stokemale,

I wish you all the very best for your op tomorrow.

Thinking of you and hoping that it all goes well.

Kind regards,

Jolamine

Oh No Have just caught up with this - so sorry, Stokemale, wishing you best of luck for today, of course you're worried but you have a positive attitude, as you say it's been caught extremely early. And a positive attitude carries you a long way - I have nothing but respect for the amazing people on here who have been through so much yet still offer support and advice.

Best wishes Kitty.

Afternoon  all,

Quick update, im currently lying on my hospital bed, the staff have been amazing. Went in for surgery at 9am out after an hour, eating toast n coffee by 10.20. Not at all as bad as i imagined, I hope this gives people reading this post some positivity going forward. I suppose it's a case of waiting couple of weeks for test results, thank you all for your positive messages & support, I'll keep you posted.