Hello Expat. I hope you went out today and spent time with your friends from work,   I just want to say that i am recovering from tongue cancer I am not or never have been a drinker or smoker so when " they say" it is a smoker/drinkers cancer they are wrong...I was told that i was in the wrong catagory didnt tick the boxes so we will send for you again in 10 to 12 weeks but absolutly nothing to worry about returned 12 weeks later had an understudy take a biopsy  by this time i had earache as well told no nothing to do with tougne go see your doctor again about your ear its nothing to do with your tongue and again you have nothing to worry about this is NOT cancer we will have results in 3 weeks time. returned to be told we will take another biopsy as we didnt take enough so another one taken.. returned 3 weeks later no its not cancer but it could turn nasty if not treated  we will bring you back and remove it my husband said no  she has been through enough and the earache every day my wife has been coming to you since May it is now September Oh that long...ok go have a cup of tea come back I will remove it in half an hour. Brought back 3 weeks later to be told sorry it is cancer we will bring you in and operate might have to do skin graft. the point im making here is to be told you dont smoke/drink your not in the right catagory is crazy and the earache was caused by the cancer it is the same nerve from ear to tongue this cancer is more common now than ever I dont mean to frighten you Expat but if you are diagnosed with this remember you will get through it its tough but you will get through it...keep your family and friends close as we all need someone to help us when things get tough...and this chatline is a great help too...god bless D.

Hi Expat,

I put some respones to your questions. 

Results wise, I got my results quickly, my consultant sped up the results and I had them within a week of biospy. 

I don't think it would make a difference if you give up bad habbits before a biopsy. But regardless of the result, you should try to give them up anyway if you can.

I had to have time off work for the biospy half a day, so I told them I was having it but nothing more until I got the result.

Cancer does not have to relate to anything we have done, sometimes it just happens. I was 23, hardly drunk and did not smoke. That being said however, now I am recovered, I have the odd drink. You can't live in fear, more so when in the 20's/30's.

Please keep us updated, good luck.

Great news re melanoma yiubare due some good news

hazel

Hi Clara my arch was also removed tonsil melted away during r/t I found out other week. Hey ho 

h 

Hi Hazel,

Many thanks - I'm still finding it hard to believe my good fortune this time.

I'm glad to see that you are enjoying your hols. I'm in awe of how active you are!

Kind regards,

Jolamine xx

Hi jolamine

Thank yiu haven’t always been it’s onlyvsincex2015 when I rediscovered biking ! Typical last year I had never been as fit and look what I got !,,

determined now not to let it define me so onward and uoward

hazel 

     Hello Clara great to read you are getting through the hellish time you have had,  getting back to normal takes a while but you will get there! yes lots of drinks and food dont seem to taste the same even 2 years later i dont enjoy my food at all the way i used to...infact i dont eat that much any more can go a couple of days with out eating if its not soft then dont want it because i find it hard to break it down... think it affects every one differently.       God Clara to have your palate removed up to tonsil piller!... how do you manage to eat, swallow food?? I couldnt even drink water properly had to take small sips...you are doing so well you really are... keep it up Clara you will get ups and downs too we all have, but wer all here for you lots hugs best wishes always> your friend dee xo

Hi Hazel,

It's just as well you were as fit as you were last year. I'm sure that all that biking in Spain has helped to pull you through the nightmare you've endured in the past year. Long may you continue on this onward and upward path, or road in your case.

Kind regards,

Jolamine xx

Thank you am off to bed now , been reading up on parotid gland as my right one isn’t producing thin saliva and untilmitbdoes if it does dry mouth is here to stay .so thinking about acupuncture when we get home willing to try anything.

Night night

 h   

Hi Hazel,

I have had a lot of bother with dry mouth, due to medication. Have you tried any of the sprays or lozenges, or found anything that works? Please let me know how acupuncture works for this. I have never heard of it being used for this condition.

Sleep tight!

Kind regards,

Jolamine xx

Hi Jolamine

i have tried all the spray including buying ones in Spain for dry mouth 1 they all taste of fish oil ! Lol which is revolting 

2 get no more than a few mins relief from them

I use bioxtradry as a mouthwashwhuch is £9 online but eventually I got dr to prescribe me one a month at a time after a battle but uve has that with my drs all the way through all I get is budget budget .

mine isvaused by the radiotherapy that was targeted through the parotid gland not chemo or meds I know atvtheb2 year stage whatbuvw gornis likely to be as good as it gets . 

Re acupuncture will let yiu know an alternative therapist recomenened I try it  when we get home I will look around.

ps why are u awake at 0220 !

h x

Hi Hazel. Its me again!!

My husband had his parotid removed. Then the RT left his mouth like a desert. We carried copious amounts of water everywhere we went. I noticed he gradually was drinking less. Around about the 1yr mark his other saliva glands started to compensate and he was fine from then on, but still prefered moist foods.

The downside was gustatory sweating. The nerves from removed gland rejoined and saliva used to leak from side of his head. We tried botox injections but nothing helped. He used to get very annoyed and embarrased with it. He avoided eating out etc.

Take care speak soon xx

Hi Hazel. Its me again!!

My husband had his parotid removed. Then the RT left his mouth like a desert. We carried copious amounts of water everywhere we went. I noticed he gradually was drinking less. Around about the 1yr mark his other saliva glands started to compensate and he was fine from then on, but still prefered moist foods.

The downside was gustatory sweating. The nerves from removed gland rejoined and saliva used to leak from side of his head. We tried botox injections but nothing helped. He used to get very annoyed and embarrased with it. He avoided eating out etc.

Take care speak soon xx