Hello Expat. I hope you went out today and spent time with your friends from work,   I just want to say that i am recovering from tongue cancer I am not or never have been a drinker or smoker so when " they say" it is a smoker/drinkers cancer they are wrong...I was told that i was in the wrong catagory didnt tick the boxes so we will send for you again in 10 to 12 weeks but absolutly nothing to worry about returned 12 weeks later had an understudy take a biopsy  by this time i had earache as well told no nothing to do with tougne go see your doctor again about your ear its nothing to do with your tongue and again you have nothing to worry about this is NOT cancer we will have results in 3 weeks time. returned to be told we will take another biopsy as we didnt take enough so another one taken.. returned 3 weeks later no its not cancer but it could turn nasty if not treated  we will bring you back and remove it my husband said no  she has been through enough and the earache every day my wife has been coming to you since May it is now September Oh that long...ok go have a cup of tea come back I will remove it in half an hour. Brought back 3 weeks later to be told sorry it is cancer we will bring you in and operate might have to do skin graft. the point im making here is to be told you dont smoke/drink your not in the right catagory is crazy and the earache was caused by the cancer it is the same nerve from ear to tongue this cancer is more common now than ever I dont mean to frighten you Expat but if you are diagnosed with this remember you will get through it its tough but you will get through it...keep your family and friends close as we all need someone to help us when things get tough...and this chatline is a great help too...god bless D.

Hi Expat,

I put some respones to your questions. 

Results wise, I got my results quickly, my consultant sped up the results and I had them within a week of biospy. 

I don't think it would make a difference if you give up bad habbits before a biopsy. But regardless of the result, you should try to give them up anyway if you can.

I had to have time off work for the biospy half a day, so I told them I was having it but nothing more until I got the result.

Cancer does not have to relate to anything we have done, sometimes it just happens. I was 23, hardly drunk and did not smoke. That being said however, now I am recovered, I have the odd drink. You can't live in fear, more so when in the 20's/30's.

Please keep us updated, good luck.

Hi Clara 

more like Lycra and factor 50 is packed!! We try to cycle most days but under no illusion that I will be doing 50/75 km will settle for a steady 30 km   Factor 50 as radiotherapy caused my neck to have 3 rd degree burn so likeca baby skin.  Just pondering Wether a burka might be in orders!!! Only joking  just going to use false tan and sit in the shade will cover up as  much as I csn. Wil post photos on blog. 

Must  agree ee kitty can give useful feedback. Anyway good luck for next week k baby steps take it one day at a time  keep in touch 

h

Clara, was speed reading and just saw Packed - Bikini, shorts and T shirts and for a moment thought this was your packing list for your surgery - blimey, I thought,  you must be having it done privately!!

Have an amazing time, Raz, and bring back the yellow jersey ( sorry, hubby is well into the Tour De France! )

It's a pity that you can't post personal pictures on here as the thought of Raz in a burka....

The Orabase paste seems to be doing the trick, far better a layer  of that  than those  pesky silicone mouth guards. A bit tricky during the day as its difficult to talk with my tongue welded to the side of my mouth, but at least my work colleagues seem grateful for the ( temporary) respite!

Hi

so at e are well,into cycle races  as well ! Watching tour of  oman at min , looking forward to  giro Tour of Yorkshire’s the classics the list goes on. Maybe if you send me a friend request then we can swop emails then I can send photo .  Same applies to Clara is she wishes 

Re nitbtalking I didn’t loose my voice but already orpeares with an app for ohi e that I typed into it and could choose voice posh bird or cockney twang etc Jihn the hubby wasn’t getting off that lightly !  Think it w as called speak , yiu can surprise the girls at work .

H 

Hi Kitty.   Private!!!! I wish. I would have been in and out by now :-)) Me in a bikini I think the fashion police would be after me.

I wish I had known about the orabase paste, would it stick to palate do you think?

A story in papers yesterday about a woman from London having tongue cancer and story went on to describe her glossectomy etc with photos. There is a news feed on FB and people can leave comments, some comments were quite sick and obscene my daughter wouldnt let me see them. Not that I am delicate, she felt it was so awful they should have closed the comments down. Shocking to say the least!

 xx

HinKitty and Clara

i really don’t care seeing as I’ve lost 2 stone flaunted body before so deffowillmagain ok plastered in false tan and factor 50 sat under a brolly but will give it a go. Lol

nit seen the facebook,posting but it’s surprising whatbcomments I do get inhas a lady in densities whike inhas feeding Ruben In clearly talking about me and not to me about how I shouldn’t be out with one of those in. She wasn’t young either at least 75 and should have known better. It was as if I wasn’t invisible!

h x

Hi Hazel

You go for it girl ! I have been keeping weight up just in case. Well thats my excuse for ice cream, cakes and everything else. Not eating well last few weeks has made me obsessed with food.

I have relatives 70+ and yes they have foot in mouth, think they can say whatever comes into their minds. Brother-in-law said to me today "your only getting a bit off your tongue" I ended the phone call quick. I am still boiling mad hours later.

I had a mammogram done last week,wish I had`nt now. I got a re-call letter to go for more tests at breast clinic next week. I don`t think I will I`ve got enough on next week.

Any room in your car boot for a runaway.PS ive got a passport;)   xx

DHi Clara 

omg it never rain s but it pours ! I had my mammogram the day after I got my diagnosis I ended up consoling the nurse as when it got to then has any medical,changes happened since last one I started telling her and obviously she knew what was coming for me and broke into tears ! 

Sure you will be fine it’s not  unusual nowday for the scans to show things that aren’t really there think you should go if yiubcan otherwise it will be in your mind  ring uo and explain see if they can tell you any more over phone 

ok can squeeze you in will,pick u uo Friday !

oh yes a lot of insensitive people aeound

h. Keep in touch will be checking in whilst away can’t let my flock carry in without me. Lol

h x 

Hi Clara,

I am so sorry to hear that you have been recalled to the breast clinic next week. If you are too busy next week, please phone and explain your situation and re-schedule.

I am sure that, with all you've been through, you realise the importance of dealing with any cancer as soon as possible.

As Hazel says, it could well be something and nothing, as tests are so sensitive now. Here's hoping that it will be good news, but better safe than sorry.

Kind regards,

Jolamine xx

Hi Jolamine.

Its not that Im too busy as such its just really bad timing. I am having cancer surgery next week at the other side of the country, my surgeon has transferred me to a university hospital.

If the further tests were to be at my local hospital breast clinic it would be so much easier.

I feel awful asking my daughter to take me to appointments etc. She told me she has used up all of her compassionate leave.

But I will get another appointment sorted asap.

I am going to carry on and assume for now that it will just be a routine thing, head in the sand that`s me :)

Kind regards and again thank you for reply xx

 Dear clara,   I have been reading all of your messages here just not knowing how to help...make things sound  that you will be ok that  its all gonna been fine once you get passed all you have in front of you....and you will... YOU are so strong...stronger than you ever realised just take one day at a time get this next lot of weeks....only when you are ready  maybe then back to breast clinic...You have such a fantastic sense of humour.... your daughters are there for you and everyone here on this fourm are standing beside you willing you on to get through  this next lot of months...Im not very good with words clara  but my thoughts and best wishes are with you each and every day... God bless...your friend Dee.xo 

 Dear clara,   I have been reading all of your messages here just not knowing how to help...make things sound  that you will be ok that  its all gonna been fine once you get passed all you have in front of you....and you will... YOU are so strong...stronger than you ever realised just take one day at a time get this next lot of weeks....only when you are ready  maybe then back to breast clinic...You have such a fantastic sense of humour.... your daughters are there for you and everyone here on this fourm are standing beside you willing you on to get through  this next lot of months...Im not very good with words clara  but my thoughts and best wishes are with you each and every day... God bless...your friend Dee.xo 

Hi Dee. Good to hear fom you. Thought maybe you and hubby had swanned off on a wee cruise since Ive not seen you posting ;) It is a wonderful thing you do coming on here bolstering up folks that are feeling lost with diagnosis and all it entails :-))

I have been hitting my head off a wall today, why do nhs give you direct contact numbers and when you call all you get is a taped message. When you do get CNS to call you back she has to confer with another dept  and call back.

It took untill 4.15 today to get some sort of answers. Any how have sent off an email to Breast clinic explaining situation and will hear from them whenever.

D can I ask you if you were told your cancer stage? Ive been told the TNM and the grade but I hit a wall of excuses when I ask the stage. And its bugging me no end...... Im driving my daughter mad!

I do seem to have the habit of injecting a bit humour,cant help myself.

Hazel might find herself with a stowaway aboard yet haha.....

Thank you again and bless you.xxxx

Hi clara oh to sail off on a cruise.....maybe we can all one day.... we bought a pup a gorgeous Goldendoodle last year hes the size of an adult now! so cant even pack him away! but hes such a gorgeous gentleman love him to bits!! well clara you must be running around like a headless chicken.... hope clinic have been in touch so thats a bit off your mind for a wee while...are the hospital going to sort out trasport for you??  clara i dont know very much about my cancer at all but im due back 13th feb for check up so im gonna ask more what they did tell me was they found trace of cancer in lympnodes so they removed them 14 my husband tells me....wonder why so many if it was only trace? doc told me hed thought stage 2 but because of trace in nodes was more stage 2/3  so maybe until they remove what they will only then can they tell you more? no sure clara i heard word Cancer thought right get the damed thing out!! I wish we all on here could go hold your hand in hospital clara while you go through this xo...but wer all with you in mind... keep us all posted on here help get your time in when in hospital....pity you cant jump into Hazels boot peace from all the torture...  bet youd even wear your bikini!! keep up the humour clara...your friend Dee.xo

Hi Dee.

Your dog sounds adorable! I would love another dog but I couldnt excercise him/her so that would be unfair to any pet.I had bearded collies for many years. Daughter sent a photo last night of her wee dog and cat sound asleep together on a blanket on sofa, this is a first as they have a love/hate relationship.

I watch supervet program on tv and get heartbroken for these pets and owners,said to daughters I need to stop watching this.

I missed a call this morning from an nhs number that doesnt accept incoming calls, hopefully they will call back, but being a Friday they probably wont and I will be left wondering.

I am sorted for next week for transport. But if I have to do the 7weeks at cancer treatment centre its quite a distance and a nightmare with city traffic I will have find out about transport for that.

I do remember they took a whole lot of lymph nodes with my hubby, apparently the cancer cells can skip a few nodes and appear in another node further down so they remove more nodes as a precaution.

I made chicken soup yesterday to freeze for when I get back home(chicken soup sorts eveything lol) and made space for more ice cream as Ive ate it all. So def no bikini for me :-) Ive been wracking my brain to remember foods I made for hubby,but things changed so much with him,what he could eat one day, he couldnt the next. A lot of food got binned back then.

Take care speak soon love and hugs xxx

PS Just seen picture of your dog on your avatar. Omg I love love love him! I dont get jealous but I AM :-)

Hi Dee,

Just a wee update.

I got an email from breast clinic. They have cancelled tomorrows appointment.

No further info in email, so I will just have to wait and see if local clinic sends appt out for me. But I will chase it up if I dont hear anything in near future.

My daughter says I should keep fingers crossed that I dont get the German breast consultant, apparently he is every woman`s worst nightmare as a dr.

Take care my friend speak soon xx

Clara I think I got my days mixed up - I had in my head that your surgery was scheduled for tomorrow but it's today isn't it - you won't be able to read this today but please know that we're all thinking of you, I know you've been dreading this day, bless you.

Already feeling emotional, watched the Peter Capaldi /Lewis Capaldi music video ( Someone You Loved) this afternoon while making dinner - have seen it before but was unsure what it was about so Googled it  - it's about a man whose wife dies and her heart goes to a young Mum. He goes to visit the family and the young woman places his hand on her chest so that he can feel his wife's heart beat one more time. Bawled my eyes out. Then realised I'd got the days mixed up and felt even worse, I should have sent a message of support this morning, so sorry. I hope the surgeon is the best in his field and I hope you aren't in too much pain. It's really difficult to find the right words but hope you get some comfort from knowing that all on here are sending their love and best wishes xxxx

Hi Clara 

let us know when you are around and able to .like Bengal kitty says we are all routing for yiu. 

Update  on me biked 18 km today ok it’s nit the Tour de France but bany steps

vingrrs n goes x

h x 

Hi Clara,

This must be a great disappointment for you. Have you received another appointment yet?

I hope that it won't take too long before you get it.

Kind regards,

Jolamine xx

Hi Hazel.

I am Very touched with the kind thoughts and wishes of all you kind people. xxx

I know its early days,but I didnt think it was going to be as bad as its been. I shouldve jumped in your boot when I had the chance lol.

Well you keep on biking hon and enjoy your well deserved break xxx

Dear Clara it is fantastic to hear from you....wish we could all do more to help you through this horrific time, Kitty has been worring so much about you.... Wish we could all gather round you get you through this horrific time...but please remember we are all sending you love, strength, stay strong Clara i know it is so hard.... i havent been through the heartache  you have had to endure,.. but my love,and heart is with you every day....xo speak soon xo your friend Dee.

She's home! Woohoo! So relieved,  you've  been through the worst bit now, Clara, just concentrate on getting through the pain and getting yourself well. Chicken soup for the next 3 weeks...... Where is the chicken emoji.....

Xxxxxxxxxx