Hello Expat. I hope you went out today and spent time with your friends from work,   I just want to say that i am recovering from tongue cancer I am not or never have been a drinker or smoker so when " they say" it is a smoker/drinkers cancer they are wrong...I was told that i was in the wrong catagory didnt tick the boxes so we will send for you again in 10 to 12 weeks but absolutly nothing to worry about returned 12 weeks later had an understudy take a biopsy  by this time i had earache as well told no nothing to do with tougne go see your doctor again about your ear its nothing to do with your tongue and again you have nothing to worry about this is NOT cancer we will have results in 3 weeks time. returned to be told we will take another biopsy as we didnt take enough so another one taken.. returned 3 weeks later no its not cancer but it could turn nasty if not treated  we will bring you back and remove it my husband said no  she has been through enough and the earache every day my wife has been coming to you since May it is now September Oh that long...ok go have a cup of tea come back I will remove it in half an hour. Brought back 3 weeks later to be told sorry it is cancer we will bring you in and operate might have to do skin graft. the point im making here is to be told you dont smoke/drink your not in the right catagory is crazy and the earache was caused by the cancer it is the same nerve from ear to tongue this cancer is more common now than ever I dont mean to frighten you Expat but if you are diagnosed with this remember you will get through it its tough but you will get through it...keep your family and friends close as we all need someone to help us when things get tough...and this chatline is a great help too...god bless D.

Hi Expat,

I put some respones to your questions. 

Results wise, I got my results quickly, my consultant sped up the results and I had them within a week of biospy. 

I don't think it would make a difference if you give up bad habbits before a biopsy. But regardless of the result, you should try to give them up anyway if you can.

I had to have time off work for the biospy half a day, so I told them I was having it but nothing more until I got the result.

Cancer does not have to relate to anything we have done, sometimes it just happens. I was 23, hardly drunk and did not smoke. That being said however, now I am recovered, I have the odd drink. You can't live in fear, more so when in the 20's/30's.

Please keep us updated, good luck.

Hi demc

thank you for your kind words. I just wish this site was easier to type on! The numbs of typo mistakes do my head in Lol  that u make  

I decided that h n c want going to beat me or define me having a wonderful oncologistbrrally heloed he just oozes confidence,even if you meet him in the foyer he makes a beeline of coming over give some me a hug I might not have been due to see him but if he see you he comes over for a chat and nit abiytbcancee it’s usually football or family  it’s the little things that’s why I am in her trying to pass my limited knowledge on  didn’t help this week niw eeffeeed back to local ent  n git bumped at first appointment, but went at ut like a dog with a bike We list nearly an entire year last year and I am getting that feeeybto Spain come hell or Hugh water. Lol

have a good weekend every body 

ps wa th out for an announcement 27 July world head and neck cancer day doing a sponseeed bike ride for my cancee hosoital will be setting uo a just giving page in the wirkds if Tesco every little helps  

haZel 

Hi Clara

your late husband is certainly still your hubby and don’t let any ones tell yiu any differently ! yes you are a Mrs as well the Ms does my head in .

i have a sister in law who is just as interfering when my neck was at butbstill worse she kept asking me when was I going to clean it up ummmmmm let me think about it oh Incant !!!!then her friend had breast cancer which is bad but sandra could always eat so she would say to Sandra can eat ,so I shouted one day I dont eat with my boobs !!!!! i eat  with a radiated mouth ! Didn’t shut her up though her hubby just had melanoma off top of head she is scrubbing it to get blood off wonder why he now has an infection in it !

oh well please keep in rouch

h x

Never thought I'd laugh out loud on this Forum but I just did, Raz! "I don't eat with my boobs" - priceless!

And I've been having trouble with the typos as well, I even thought it was my phone and ran an update, it's a bit better now but there are still times when I type and it comes out as gobbledegook. 

I read voraciously as well, Clara, I can lose myself in a book. Usually crime novels ( today I learned what a Glasgow Smile is.)  

Having gone through most of the over-the-counter remedies for sore mouths ( Difflam, Anbesol, Hydrocortisone pellets) without success I am going to try some Orabase Paste - the sore place is getting bigger and I can't keep the mouth guards in all night, they drive me mad .

Sending best wishes your way Clara, and as Raz said, keep in touch. Or rouch even!! ( Sorry Raz I couldn't resist!) 

Hi Bengal kitty

glad I made you lol ! It’s a priceless one I have to agree with !

re sore mouth my oncologist wouldn’t prescribe anything apart from a saline solution of 9gram of salt in a litre of water ,he didn’t believe in any if the propriety ones just the old fashioned ones .He prescribed gelclair for ulcers that was all .

have you tried baking powder one teaspoon to a cup of like warm water ?

your attempt at misspelling nearly as good as mine  lol

Hazel aka RadioactiveRaz x

Hi Hazel.

I came across a couple of interesting things on USA cancer survivors network.

Magic mouthwash isnt really a marketed product as such its a recipe of 3 items lidnocaine,gaviscon type of product and benadryl. Docs write a prescription as lidnocaine is po and pharmasist mixes it up into a mouthwash. An antibiotic for thrush can be added.

Other interesting item was: An oncologist gave a bit of advice to a patient regarding loss of taste, he said to rinse tongue once a day with one teaspoon of sesami seed oil for two weeks. Patients wife wrote that he was beginging to taste some things within 2days and could taste most things within 2weeks and was enjoying food. I am assuming this was post treatment as you couldnt have an oily mouth during radio.

I did warn you Im an avid reader :-)

Hi Clara

i also love to read ,was on a cancer USA blog last night as well !

still wouldn’t have got magic mouthwash prescribed oncologist really didn’t want us putting anything in our mouths throats has like he said anyndlares ups he knew what we weee taking as opposed to lots of different things. 

I never lostbtastebsomwas lucky in that respect have heard tomhelpmwith lackmofbsaliva swirl olive oil round the mouth dontbgancy that though. Lol

keep in touch Hazsl x

  Hahahahaaa Raz dont even try to fix these typos they are fantastic!! just read this message out loud to my husband oh what a laugh!! and we all need a laugh together! best wishes to you all xo D.

Well They always say Laughter is the Best Medicine - carry on Razzing! Reminds me of the time I  messaged my  friend saying Will you come and see Fantastic Breasts and Where To Find Them - she thought I was inviting her to a dirty movie! . :D :D 

Maybe I should get rid of the predictive texting .....

Hi ladies love the new moniker razzing !!!!M!LOL. 

i said to daughter the other day I thunk I will write  a book  she retorted quickly hope u get a good deal mum co unwill need a dammed good proof reader to rev write your typos !!!!!!!!Cheeky

yep laughter us the best policy

h x 

Thanks for the suggestions for mouth washes by the way - I'm sure I have some sodium bicarbonate stashed away somewhere from when I used to watch that weird house cleaning programme with Aggie and What's Her Name - memory is shot these days...

But the Orabase paste is helping, except that my tongue now seems to be cemented to the side of my mouth. Reminds me of the time when James was about 9 or 10, I took him to the dentist for a check up and unbeknownst to me,he had picked up a free sample of what he thought was toothpaste and had rubbed it on his teeth. On the way back to the car, he started making these strange strangled- sounding noises - turned out it was Poligrip denture fixative and his upper and lower jaws were bonded together. Being a good mother, I couldn't do anything for laughing, poor boy is probably emotionally scarred for life now...

Thanks for the suggestions for mouth washes by the way - I'm sure I have some sodium bicarbonate stashed away somewhere from when I used to watch that weird house cleaning programme with Aggie and What's Her Name - memory is shot these days...

But the Orabase paste is helping, except that my tongue now seems to be cemented to the side of my mouth. Reminds me of the time when James was about 9 or 10, I took him to the dentist for a check up and unbeknownst to me,he had picked up a free sample of what he thought was toothpaste and had rubbed it on his teeth. On the way back to the car, he started making these strange strangled- sounding noises - turned out it was Poligrip denture fixative and his upper and lower jaws were bonded together. Being a good mother, I couldn't do anything for laughing, poor boy is probably emotionally scarred for life now...

Oops kids bless em. 

Baking powder is slightly less dizzy than bi carb ofvsosa as well so try that. 

Made me laugh re polident  , I liken my mouth and saliva at the  momemt t to having a  tube if super glue permanently in my mouth and trying to shove food through it is tiring. 

But roll onnFriday byhe car n us are going to spain for our 10 week trip along with lotions and potions Ensure drinks just in case bottles of  if water for the journey ,hoping to get out in bike and that saliva makes a remarkable comeback .I will  be online still,checking so keep uo the questions .

where in treatment are you kitty 

hazelm

I had a tongue biopsy as I'd had a sore on the side of my tongue for 4 weeks, Razz, and the pain was horrendous,the caresheet from the Hospital said to  expect some mild pain and discomfort- !! So I  googled Pain After Tongue biopsy and it led me to this Forum where I found some wonderful support while I was waiting for the results.

And then D day came - and it showed no signs of malignancy.  But the Dr couldn't sign me off as the area is just not healing and he asked me to come back in 6 weeks.

So  really I have no right to be here any  more, but the kind people on here said I should still let them know how I get on so I am still here and still getting great advice about how to deal with the soreness.

I am just blown away by how generous and kind people are, no self-pity despite the awful things they are going through. Wish I had a magic wand....

Hi of course you do have a right,plus you give us a laugh when needed keep it up

h 

Hi Hazel

So glad you agree that Kitty should be here :-) Her experience of a very painfull biopsy is going to help others that are experiencing the same. My first two biopsies were fine so Im no help to anyone coming here for advice unless they`ve had a palate biopsy as my 3rd one was.

Ive been waiting for hospital letter for pre op check. They phoned today to confirm admission next week so the clock is ticking:cry:

Are you all packed and ready? Bikini, shorts, T Shirts!

Hi Clara 

more like Lycra and factor 50 is packed!! We try to cycle most days but under no illusion that I will be doing 50/75 km will settle for a steady 30 km   Factor 50 as radiotherapy caused my neck to have 3 rd degree burn so likeca baby skin.  Just pondering Wether a burka might be in orders!!! Only joking  just going to use false tan and sit in the shade will cover up as  much as I csn. Wil post photos on blog. 

Must  agree ee kitty can give useful feedback. Anyway good luck for next week k baby steps take it one day at a time  keep in touch 

h

Clara, was speed reading and just saw Packed - Bikini, shorts and T shirts and for a moment thought this was your packing list for your surgery - blimey, I thought,  you must be having it done privately!!

Have an amazing time, Raz, and bring back the yellow jersey ( sorry, hubby is well into the Tour De France! )

It's a pity that you can't post personal pictures on here as the thought of Raz in a burka....

The Orabase paste seems to be doing the trick, far better a layer  of that  than those  pesky silicone mouth guards. A bit tricky during the day as its difficult to talk with my tongue welded to the side of my mouth, but at least my work colleagues seem grateful for the ( temporary) respite!

Hi

so at e are well,into cycle races  as well ! Watching tour of  oman at min , looking forward to  giro Tour of Yorkshire’s the classics the list goes on. Maybe if you send me a friend request then we can swop emails then I can send photo .  Same applies to Clara is she wishes 

Re nitbtalking I didn’t loose my voice but already orpeares with an app for ohi e that I typed into it and could choose voice posh bird or cockney twang etc Jihn the hubby wasn’t getting off that lightly !  Think it w as called speak , yiu can surprise the girls at work .

H 

Hi Kitty.   Private!!!! I wish. I would have been in and out by now :-)) Me in a bikini I think the fashion police would be after me.

I wish I had known about the orabase paste, would it stick to palate do you think?

A story in papers yesterday about a woman from London having tongue cancer and story went on to describe her glossectomy etc with photos. There is a news feed on FB and people can leave comments, some comments were quite sick and obscene my daughter wouldnt let me see them. Not that I am delicate, she felt it was so awful they should have closed the comments down. Shocking to say the least!

 xx

HinKitty and Clara

i really don’t care seeing as I’ve lost 2 stone flaunted body before so deffowillmagain ok plastered in false tan and factor 50 sat under a brolly but will give it a go. Lol

nit seen the facebook,posting but it’s surprising whatbcomments I do get inhas a lady in densities whike inhas feeding Ruben In clearly talking about me and not to me about how I shouldn’t be out with one of those in. She wasn’t young either at least 75 and should have known better. It was as if I wasn’t invisible!

h x

Hi Hazel

You go for it girl ! I have been keeping weight up just in case. Well thats my excuse for ice cream, cakes and everything else. Not eating well last few weeks has made me obsessed with food.

I have relatives 70+ and yes they have foot in mouth, think they can say whatever comes into their minds. Brother-in-law said to me today "your only getting a bit off your tongue" I ended the phone call quick. I am still boiling mad hours later.

I had a mammogram done last week,wish I had`nt now. I got a re-call letter to go for more tests at breast clinic next week. I don`t think I will I`ve got enough on next week.

Any room in your car boot for a runaway.PS ive got a passport;)   xx