Hello Expat. I hope you went out today and spent time with your friends from work,   I just want to say that i am recovering from tongue cancer I am not or never have been a drinker or smoker so when " they say" it is a smoker/drinkers cancer they are wrong...I was told that i was in the wrong catagory didnt tick the boxes so we will send for you again in 10 to 12 weeks but absolutly nothing to worry about returned 12 weeks later had an understudy take a biopsy  by this time i had earache as well told no nothing to do with tougne go see your doctor again about your ear its nothing to do with your tongue and again you have nothing to worry about this is NOT cancer we will have results in 3 weeks time. returned to be told we will take another biopsy as we didnt take enough so another one taken.. returned 3 weeks later no its not cancer but it could turn nasty if not treated  we will bring you back and remove it my husband said no  she has been through enough and the earache every day my wife has been coming to you since May it is now September Oh that long...ok go have a cup of tea come back I will remove it in half an hour. Brought back 3 weeks later to be told sorry it is cancer we will bring you in and operate might have to do skin graft. the point im making here is to be told you dont smoke/drink your not in the right catagory is crazy and the earache was caused by the cancer it is the same nerve from ear to tongue this cancer is more common now than ever I dont mean to frighten you Expat but if you are diagnosed with this remember you will get through it its tough but you will get through it...keep your family and friends close as we all need someone to help us when things get tough...and this chatline is a great help too...god bless D.

Hi Expat,

I put some respones to your questions. 

Results wise, I got my results quickly, my consultant sped up the results and I had them within a week of biospy. 

I don't think it would make a difference if you give up bad habbits before a biopsy. But regardless of the result, you should try to give them up anyway if you can.

I had to have time off work for the biospy half a day, so I told them I was having it but nothing more until I got the result.

Cancer does not have to relate to anything we have done, sometimes it just happens. I was 23, hardly drunk and did not smoke. That being said however, now I am recovered, I have the odd drink. You can't live in fear, more so when in the 20's/30's.

Please keep us updated, good luck.

Hi Kitty.

I will be thinking of you on Tuesday and keeping my fingers crossed for you.

Have you had the ulcer for quite awhile?

I came across a website for dentists it had a huge list of benign oral ulcers I was really surprised how many there is. That made me hopeful after reading that. Stats say 90 out of 100 are benign.

Ive looked at 100s of photos of both benign and cancerous lesions and not one looked anything like mine. Consultant took photos of it so it may end up added to Glasgow Dental College picture gallery of oral cancers (I hope not). They supply complimentary pictures to training hospitals.

I have some autoimmune conditions(I hate the word disease).One of which causes oral problems like glossitis and ulcers and if your unlucky stomach cancer. So Im no stranger to ulcers. This one is a tricky one,not easy to see and giving no pain or symptoms. I only noticed it when investigating a cracking sore throat I had at the time.

Hope to hear some good news from yourself take care. xx

PS. I tried tomato sauce crisps last night they tasted awful and stung like crazy :-(

 Hello clara how are you keeping i have just been reading your first post so sorry to read all the problems you are facing alone....must be so hard having to try get through this dame thing yourself dont know how id cope...but hey girl you stay strong keep busy clara you are in my thoughts speak again soon x

Hello Dee

Good to hear from you.

I was telling my youngest daughter about these cruk chat pages and how good it is to be able to converse with people that have had this journey or waiting to. I always say its good to talk.

I know they said around 3 weeks to heal on palate but it gets you down. I keep thinking my mouth was fine a month ago and now its holy murder! And the worst part is still to come.....

Its only a few days now till I see consultant and get the fuller picture. I noticed they took the biopsy from the soft palate and not the hard palate where the leukoplaktia is.I hope this isnt an error and have to have it done again. I would run up the corrider like a mad thing lol that would raise a few eyebrows :-)

Keep well speak soon.x

Tomato sauce crisps! LOL as the young ones say... My mouth is so much more comfortable now although I won't be going near any pickled onions just yet.

Yes, it's good to talk and to know that what you are going through has been experienced by other people - I almost bothered the Hospital as I was so alarmed by the pain as the caresheet they gave me said the pain would be managed by paracetamol and ibuprofen. But after chatting to you, DEMC, I realised that the pain can indeed be severe - saved me from wasting my time and theirs( plus a £3.00 parking fee at the Hospital!) 

So in hindsight, if anyone has a planned tongue biopsy ( mine was offered on the day and I had no time to think about it) I would advise that you start your painkillers before the procedure. Paracetamol doesn't cut it, you will need co-codamol for the first few days plus an anti-inflammatory and an anaesthetic gel containing benzocaine. Who needs Slimming World, just have a biopsy on the side of your tongue!! :-)

A friend is coming with me on Tuesday, I'm sure all will be fine, will be sure to let you know. And then we will wait to hear Clara's news, sending very warmest wishes Clara, will your daughter be going with you?

Xxx

Hi Kitty.

So glad to hear you are on the mend.x

I had to smile about the young ones use of LOL etc my daughters and I use a chat app and I have had to get used to the terminology. I asked once what does PMSL mean I felt dumb for asking :-)

I was the same a few days ago I was going to phone the clinical nurse specialist at the clinic,they have given me a list of people I can contact if needs be. I thought this has to be infected but I thought give it a couple of days see if it settles.

Its so maddening your body is crying feed me and your mouth is saying No! Ive lost 4lbs but its not a big deal as I overdid it all at festive season.

My daughter said to cancel mamogram but Im taking Dee`s advice and going for it. I asked radiographer doing CT scan if breast lumps would show up and her advice was, only if any lumps were big enough and she advised to still have mamo.

Im glad you have a friend going with you on Tuesday. Yes my daughter is coming with me on Thursday.Car parking is an absolute nightmare no matter what time of day I think she knows I would lose the plot trying to find a space.

Again good luck and speak soon. xx

Sorry Clara Didn't respond properly to previous message- had ulcer for 4 weeks when GP sent me to the Hospital. Normally if I get an ulcer it's gone in a couple of days. I think it was  not being able to eat chocolate because it hurt too much which sent me to the doctor if I'm honest! 

I did post a picture on here when it was at its absolute worst but one of the moderators sent me a gentle reminder that photos aren't allowed and so it was removed. Have started a course of antibiotics since then and it is much improved. ( Thank you to Anastasia for suggesting I should contact my GP if worried,good advice as it turned out  :-) )

Is anyone else having trouble with predictive texting on this site? It keeps posting gobbledegook, it's taking me twice as long as normal to type a post as I have to keep deleting the strange words it's selecting for me. Maybe it's my phone, have just run an update and it's marginally better but not right. 

Will be thinking of you on Thursday, Clara, I'm sure Dee will too xx

Hi ya kitty I see you only had your ulcer about 4 weeks so happy you went to doctor as soon as you did kitty that has got to stand by you as i had my little red sore on my tongue over 6 months my husband told me over and over get to the doctor! its only a wee red thing not even sore i would say...if only id have went sooner...only when it would feel like a burnning sting did i think maybe i should go...soon as doc seen it he red flagged me                                                                                                                             .I  was seen 10 days later by a so called 

Specialist  that re assured me for over 5 months that it was nothing sinister to worry about because i didnt drink/smoke didnt tick the boxes! get mad just thinking about him...Kitty are thoughts prayers are with you for Tuesday nice to know wer all here for each other...will send clara  message too let her know same for Thursday...best wishes kitty..x

Hi Kitty.

I think you must be in a pretty good health care region as they seem to have been very timely with you.

I had recently moved house and tried for 6weeks to register with a GP and Dentist. So it was around 12 weeks before I was seen by a dentist and a further 5/6 weeks to get my 1st hospital appt. Its around 75days from referral up to my Thursday appt and it feels like an eternity.

I noticed the other day a woman posted a picture of her breast,she wanted peoples opinion on orange peel effect I wonder if mods removed pic.

Im curious do you have a Bengal? I adore cats, dogs too. I cat sit for my daughter she hates going back home though. I say its because she enjoys the peace daughter says its because I pamper her.

Take care speak soon. x

Hi Dee

Oh my just read your msg to Kitty.

So you were about a year before a diagnosis. It doesnt bare thinking about no wonder you get mad thinking about him. Pity you didnt excercise your rights to a 2nd opinion back then. Mind you we are all wise after the event :-(

I know what you mean about tick boxes in the nhs, they dont think out of the box!

I think its the sores that are not sore should ring alarm bells sooner.

Take care speak soon.x

Well I have good news - no cancerous cells in my biopsy!! Much relieved - but sad for what everyone else is going through, I half feel I'm not one of the clan now and have no right to be on here, but thank you all so much for the support, and I know you'll be pleased for me. Consultant said he cannot discharge me yet as there is still a painful lump in the biopsied area which has not healed properly and so I have another appointment in 6 weeks time. 

He also asked the nurse to make me an urgent appointment for an impression to be taken for a mouth guard to protect the sore patch from my teeth but they couldn't fit me in for ages. So I'm using a DIY one I got on eBay, cost me less than 2 pounds, you pour boiling water on it then mould it to your teeth, obviously not as good as a custom made but it does the trick. Sort of!!! Not looking forward to sleeping with it on. I ordered it just after the biopsy but couldn't stand the feel of it in my mouth, but now I've been told I really need to wear one, I'll persevere. Apparently they are £200 from a dentist. 

We live in Norwich and Yes, the care I have received both from my GP surgery and the hospital has been excellent, can't fault them.

And Yes I have Bengals - they actually belong to our son who is backpacking his way around Asia. I'm not sure he will get them back!  Am on my Kindle but will post a photo when I'm on my phone, they are adorable. 

Xxxx

Well I have good news - no cancerous cells in my biopsy!! Much relieved - but sad for what everyone else is going through, I half feel I'm not one of the clan now and have no right to be on here, but thank you all so much for the support, and I know you'll be pleased for me. Consultant said he cannot discharge me yet as there is still a painful lump in the biopsied area which has not healed properly and so I have another appointment in 6 weeks time. 

He also asked the nurse to make me an urgent appointment for an impression to be taken for a mouth guard to protect the sore patch from my teeth but they couldn't fit me in for ages. So I'm using a DIY one I got on eBay, cost me less than 2 pounds, you pour boiling water on it then mould it to your teeth, obviously not as good as a custom made but it does the trick. Sort of!!! Not looking forward to sleeping with it on. I ordered it just after the biopsy but couldn't stand the feel of it in my mouth, but now I've been told I really need to wear one, I'll persevere. Apparently they are £200 from a dentist. 

We live in Norwich and Yes, the care I have received both from my GP surgery and the hospital has been excellent, can't fault them.

And Yes I have Bengals - they actually belong to our son who is backpacking his way around Asia. I'm not sure he will get them back!  Am on my Kindle but will post a photo when I'm on my phone, they are adorable. 

Xxxx

Hi Kitty

Oh I am so pleased for you great news! I`ve been thinking about you all day.

Hopefully things will have all settled by the time you go back in 6 weeks and you will be relieved to get discharged.

How can you not be one of the clan? You have been through the mill as we all have and are now in a position to reassure people waiting for biopsy results that its not always bad news. Afterall its always the best news to hear after an anxious wait.

Yes do perservere with the tooth guard you might find the swelling will reduce if not getting irritated with your teeth while your asleep.

I had mammogram yesterday heck that is so painful its unreal! She told me to make appointment with GP as there is a couple of issues (lumps and skin peeling). Although thats no excuse for you not to get yours strike it off your list of things to do.

Thats the trouble with being temporary foster parents to the kitts its the parting with them. They grow on you so quick. I know I am so sad when I see her go and she doesnt want to go, takes ages to get used to them not being around.

Dee will be along soon to share your great news.

Do keep in touch  xxxx

Hi Clara And you know we'll be thinking of you on Thursday. Glad you got the mammogram under your belt, one less thing to worry about. 

Here are some photos of the kitties to cheer us all up xx[[]]

And here i am Kitty!   Clara you know me already!... i am sitting with tears of happiness for you kitty such fantastic news  I looked on here around 3 pm today as i had you in my thoughts all day got bit worried when seen nothing then thought maybe at hospital or the pub celebrating and eating 6 pack cheese and onion! i am so happy that your not one of the gang as none of us want to be in this hellish gang but hey we all gotta keep each other strong!  im sure you will be back to eating  better soon. you gotta stay intouch too kitty as clara says to help others. Clara and me would miss you too! im sending you the biggest hug and kiss kitty  we clara and myself are both so happy for you stay  in touch and keep well. xo  

Hi clara how are you doing? its hellish that you had more pain yesterday.                                                          clara you have had so so much to deal with...... and now a visit to doc regarding  your mammogram...      and yet you still have your sense of humour...you are  a credit to yourself and late husband..keep strong clara my thought s are with you for  Thursday please let us know how things go  loadsa hugs  from me and im sure kitty too!! xo D.     

  Lovely pics Kitty....so thats wer the name Kitty came from! Lol..

Means a lot to me that even though you have suffered the scourge of the dreaded C, you still find it in your hearts to be happy for someone who has escaped it, I feel very humbled .

And actually you were right - we DID go to the pub! We intended visiting a new coffee shop but when we arrived it was closed and the pub is nearby.......

Still not quite ready for that crisp blow-out but I managed some chicken and chips ( no vinegar.) 

Working tomorrow so off to bed now, didn't sleep too well last night, but really, a huge thank you for your support over the last 2 weeks, can't help but think how lucky I am, I know up and down the country there will be others who didn't receive good news today. Hideous disease.

I will definitely stay in touch, again thank you for caring xxxx

  aww what a lovely message kitty  thank you... im sure you will have the best sleep in the last lot of weeks...sleep well  keep well  and keep in touch the very best of best wishes mrs and DONT forget youve to book that MAMMOGRAM!!! REAL SOON!!!  xo

Added you and Clara as friends, demc, thinking I could message both of you at the same time, but it doesn't work like that on this Forum ( I used to belong to Dacia World Forum and you could add several people to the same conversation - yes, I drive a Dacia, please don't unfriend me!  :D .My badge-conscious son almost died of shame but I don't care, I love my Duster!)

​​​​​​Didn't sleep all that well with the mouthguards in, just felt wrong, but I will persevere. I'm going to see my dentist as a bit of filling crumbled off some time ago, it doesn't hurt so I thought I'd leave it until the next check-up but now I'm wondering whether that has caused erosion of the tongue. That or the toothpaste - have switched to an SLS-free one, amazingly Lidl do one for I think 59p, the branded ones like Kingfisher are ridiculously expensive. 

Got to get ready for work, one more sleep before your appointment,Clara, you know we'll be rooting for you xx

Hi Dee & Kitty,

For some reason I have the jitters about tomorrow, alot more real now and I think I`ve been burying my head in the sand a bit :-( But I`ve had loads of things to contend with(house buyers let me down yet again!) I was going to move back to my home then this all came up.

Kitty those are adorable pics!

I will be in touch soon keep well both of you ladies. xx

Hi Clara,

Here's hoping that all goes well for you tomorrow.

Will be thinking of you and praying that it's good news.

Kind regards,

Jolamine xx