Hello Expat. I hope you went out today and spent time with your friends from work,   I just want to say that i am recovering from tongue cancer I am not or never have been a drinker or smoker so when " they say" it is a smoker/drinkers cancer they are wrong...I was told that i was in the wrong catagory didnt tick the boxes so we will send for you again in 10 to 12 weeks but absolutly nothing to worry about returned 12 weeks later had an understudy take a biopsy  by this time i had earache as well told no nothing to do with tougne go see your doctor again about your ear its nothing to do with your tongue and again you have nothing to worry about this is NOT cancer we will have results in 3 weeks time. returned to be told we will take another biopsy as we didnt take enough so another one taken.. returned 3 weeks later no its not cancer but it could turn nasty if not treated  we will bring you back and remove it my husband said no  she has been through enough and the earache every day my wife has been coming to you since May it is now September Oh that long...ok go have a cup of tea come back I will remove it in half an hour. Brought back 3 weeks later to be told sorry it is cancer we will bring you in and operate might have to do skin graft. the point im making here is to be told you dont smoke/drink your not in the right catagory is crazy and the earache was caused by the cancer it is the same nerve from ear to tongue this cancer is more common now than ever I dont mean to frighten you Expat but if you are diagnosed with this remember you will get through it its tough but you will get through it...keep your family and friends close as we all need someone to help us when things get tough...and this chatline is a great help too...god bless D.

Hi Expat,

I put some respones to your questions. 

Results wise, I got my results quickly, my consultant sped up the results and I had them within a week of biospy. 

I don't think it would make a difference if you give up bad habbits before a biopsy. But regardless of the result, you should try to give them up anyway if you can.

I had to have time off work for the biospy half a day, so I told them I was having it but nothing more until I got the result.

Cancer does not have to relate to anything we have done, sometimes it just happens. I was 23, hardly drunk and did not smoke. That being said however, now I am recovered, I have the odd drink. You can't live in fear, more so when in the 20's/30's.

Please keep us updated, good luck.

  Hi kitty great to hear you are back to eating eyeing up the cheese and onion crisps! kitty im not sure what the biopsy area looks like i cant see mine! cant hold my tongue out far enough to see it! id have to take mine out and turn it over! lol yes im sure ur tongue  is still swollen...i remember day after my op the doctor told me id have to get tube put in if i didnt start to eat! my tougne was so swollen i couldnt talk never mind try to put food in break it up und try to swallow! only when you have been through this can you understand...yes i can manage chocolate cheese lovely but no way nuts! hope you are keeping well kitty best wishes...

Not long now until my results. I'm gong to discuss SLS toothpaste ( sodium lauryl sulphate) with the Consultant - shortly before the lesion appeared, I had problems with sensitivity in one of my teeth and my dentist gave me a  sample tube of Sensitive toothpaste and said rub that over the tooth before you go to bed. Being me, I plastered the whole area with the stuff. After the sore appeared, I googled Mouth Ulcers Due to Toothpaste and found that SLS is possibly implicated in   ulceration. I can't remember the time frame between applying the toothpaste and the appearance of the lesion, but am now wondering if it was some sort of chemical burn . Or am I grasping at straws......

  hi kitty please let us know how things go Tuesday..dont be worring to much mrs...have a lovely weekend get plenty sleep too...listen to me eh...just hopeing its a reaction to the toothpaste speak soon goodnight.

Hi Kitty.

I will be thinking of you on Tuesday and keeping my fingers crossed for you.

Have you had the ulcer for quite awhile?

I came across a website for dentists it had a huge list of benign oral ulcers I was really surprised how many there is. That made me hopeful after reading that. Stats say 90 out of 100 are benign.

Ive looked at 100s of photos of both benign and cancerous lesions and not one looked anything like mine. Consultant took photos of it so it may end up added to Glasgow Dental College picture gallery of oral cancers (I hope not). They supply complimentary pictures to training hospitals.

I have some autoimmune conditions(I hate the word disease).One of which causes oral problems like glossitis and ulcers and if your unlucky stomach cancer. So Im no stranger to ulcers. This one is a tricky one,not easy to see and giving no pain or symptoms. I only noticed it when investigating a cracking sore throat I had at the time.

Hope to hear some good news from yourself take care. xx

PS. I tried tomato sauce crisps last night they tasted awful and stung like crazy :-(

 Hello clara how are you keeping i have just been reading your first post so sorry to read all the problems you are facing alone....must be so hard having to try get through this dame thing yourself dont know how id cope...but hey girl you stay strong keep busy clara you are in my thoughts speak again soon x

Hello Dee

Good to hear from you.

I was telling my youngest daughter about these cruk chat pages and how good it is to be able to converse with people that have had this journey or waiting to. I always say its good to talk.

I know they said around 3 weeks to heal on palate but it gets you down. I keep thinking my mouth was fine a month ago and now its holy murder! And the worst part is still to come.....

Its only a few days now till I see consultant and get the fuller picture. I noticed they took the biopsy from the soft palate and not the hard palate where the leukoplaktia is.I hope this isnt an error and have to have it done again. I would run up the corrider like a mad thing lol that would raise a few eyebrows :-)

Keep well speak soon.x

Tomato sauce crisps! LOL as the young ones say... My mouth is so much more comfortable now although I won't be going near any pickled onions just yet.

Yes, it's good to talk and to know that what you are going through has been experienced by other people - I almost bothered the Hospital as I was so alarmed by the pain as the caresheet they gave me said the pain would be managed by paracetamol and ibuprofen. But after chatting to you, DEMC, I realised that the pain can indeed be severe - saved me from wasting my time and theirs( plus a £3.00 parking fee at the Hospital!) 

So in hindsight, if anyone has a planned tongue biopsy ( mine was offered on the day and I had no time to think about it) I would advise that you start your painkillers before the procedure. Paracetamol doesn't cut it, you will need co-codamol for the first few days plus an anti-inflammatory and an anaesthetic gel containing benzocaine. Who needs Slimming World, just have a biopsy on the side of your tongue!! :-)

A friend is coming with me on Tuesday, I'm sure all will be fine, will be sure to let you know. And then we will wait to hear Clara's news, sending very warmest wishes Clara, will your daughter be going with you?

Xxx

Hi Kitty.

So glad to hear you are on the mend.x

I had to smile about the young ones use of LOL etc my daughters and I use a chat app and I have had to get used to the terminology. I asked once what does PMSL mean I felt dumb for asking :-)

I was the same a few days ago I was going to phone the clinical nurse specialist at the clinic,they have given me a list of people I can contact if needs be. I thought this has to be infected but I thought give it a couple of days see if it settles.

Its so maddening your body is crying feed me and your mouth is saying No! Ive lost 4lbs but its not a big deal as I overdid it all at festive season.

My daughter said to cancel mamogram but Im taking Dee`s advice and going for it. I asked radiographer doing CT scan if breast lumps would show up and her advice was, only if any lumps were big enough and she advised to still have mamo.

Im glad you have a friend going with you on Tuesday. Yes my daughter is coming with me on Thursday.Car parking is an absolute nightmare no matter what time of day I think she knows I would lose the plot trying to find a space.

Again good luck and speak soon. xx

Sorry Clara Didn't respond properly to previous message- had ulcer for 4 weeks when GP sent me to the Hospital. Normally if I get an ulcer it's gone in a couple of days. I think it was  not being able to eat chocolate because it hurt too much which sent me to the doctor if I'm honest! 

I did post a picture on here when it was at its absolute worst but one of the moderators sent me a gentle reminder that photos aren't allowed and so it was removed. Have started a course of antibiotics since then and it is much improved. ( Thank you to Anastasia for suggesting I should contact my GP if worried,good advice as it turned out  :-) )

Is anyone else having trouble with predictive texting on this site? It keeps posting gobbledegook, it's taking me twice as long as normal to type a post as I have to keep deleting the strange words it's selecting for me. Maybe it's my phone, have just run an update and it's marginally better but not right. 

Will be thinking of you on Thursday, Clara, I'm sure Dee will too xx

Hi ya kitty I see you only had your ulcer about 4 weeks so happy you went to doctor as soon as you did kitty that has got to stand by you as i had my little red sore on my tongue over 6 months my husband told me over and over get to the doctor! its only a wee red thing not even sore i would say...if only id have went sooner...only when it would feel like a burnning sting did i think maybe i should go...soon as doc seen it he red flagged me                                                                                                                             .I  was seen 10 days later by a so called 

Specialist  that re assured me for over 5 months that it was nothing sinister to worry about because i didnt drink/smoke didnt tick the boxes! get mad just thinking about him...Kitty are thoughts prayers are with you for Tuesday nice to know wer all here for each other...will send clara  message too let her know same for Thursday...best wishes kitty..x

Hi ya kitty I see you only had your ulcer about 4 weeks so happy you went to doctor as soon as you did kitty that has got to stand by you as i had my little red sore on my tongue over 6 months my husband told me over and over get to the doctor! its only a wee red thing not even sore i would say...if only id have went sooner...only when it would feel like a burnning sting did i think maybe i should go...soon as doc seen it he red flagged me                                                                                                                             .I  was seen 10 days later by a so called 

Specialist  that re assured me for over 5 months that it was nothing sinister to worry about because i didnt drink/smoke didnt tick the boxes! get mad just thinking about him...Kitty are thoughts prayers are with you for Tuesday nice to know wer all here for each other...will send clara  message too let her know same for Thursday...best wishes kitty..x

Hi Dee

Oh my just read your msg to Kitty.

So you were about a year before a diagnosis. It doesnt bare thinking about no wonder you get mad thinking about him. Pity you didnt excercise your rights to a 2nd opinion back then. Mind you we are all wise after the event :-(

I know what you mean about tick boxes in the nhs, they dont think out of the box!

I think its the sores that are not sore should ring alarm bells sooner.

Take care speak soon.x