My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • Yes, sounds like standard procedure you've got. My initial smear was CIN2 with HPV and the initial biopsies came back as borderline CIN1/2 with HPV. I've stayed that borderline for almost 2 1/2 years.

    It's frustrating waiting for results, but just remember there is nothing you can do more than what you're currently doing (I.e going to the clinic, having colposcopy, having biopsies, etc).

    Some things online can drive you crazy, so try and keep your searching to reliable websites.

    Best of luck.

    Kat x

  • Yah that is true Kat, what else I can do. Only listen advise of reasonable people like you and Minska. ️ ️

    I stopped reading anywhere except this chat and NHS web. 

    Even this chat can sometimes scare when I come across some conversations.Well, I spend way too much lately reading about this. 

    Thank you for your time and advise.

    I am sure I will come back to you later writing stories of me crying again. But what I know for sure, is that I am happy I went for screening and they will get me through this. The doctor who did my Colposcopy sounded reassuring and she is my hero now. Xxx 

     

  • Hi, after my colposcopy to remove CIN3 September I had a follow up smear on Valentine's Day this year (of all days as it was our 2 year engagement anniversary!!) she didn't even have to do a biopsy as she said everything was fine and to just have another smear in 12 months, I know it's hard but try not to worry to much about your biopsy results........I didn't even get a biopsy at my first colposcopy, she literally went straight in and removed all the 'bad' cells there and then! X

  • Hey Lyns,

    Thank you for joining conversation

    I was also surprised I wasn't offered any treatment but than most ladies say it's depending on your age. So I'm still unsure if that's a good sign I wasn't offered or it's good sign. My doctor told me she wasn't concerned of anything and not sure if I need treatment at all. That's why biopsy will confirm which grade she said. She predicted CN1/2 and I'm just worried as any one else. 

    I hope it's all was unnecessary worry and I will give up all the bad habbits xx 

  • Hi Dear Minska. 

    I was wondering if you could please help me with advice. 

    I had a call back from my biopsy results and the doctor said they could not diagnose which grade as it was inconclusive but the doctor told me that there was no suspect of cancer and she confirmed I have no cancer but inconclusive biopsy. 

    Please, does this mean I will be okay? 

    The doctor will be having meeting next Friday about the care plan and they will be getting back in three weeks to let me know what's the next step. 

    I really appreciate you have been here for me all this time. God bless you and your family , you are wonderful woman. You have made for me a such support. 

    Xxxxxxxxx 

  • Hi

    Yes, you should be absolutely fine. They will decide whether or not you need a treatment to remove the abnormal cells. This is a quick and straightforward procedure and It’s very good news that this is not cancer. xx

  • When they confirmed no cancer suspected I thought of you straight away to give my thank you to you for giving me that support. 

    Inconclusive results is something I will handle with no anxiety and will do my regular screening as advised and treatment if needed. I am happy they called me today and shared before my letter came.  Xxx Thank you Minska. 

    Bless you all. 

     

     

  • I’m just very glad you’ve had such a good result and hope you are able to move on with life now without being anxious about this. It’s really good news for you, and thank you for your kind words. xx

  • I know this is a bit random but I just wanted to say I have found this thread very calming and helpful as I am in the exact same situation as many others on this thread and thought to share my experience. 
    I was diagnosed with HPV 15 years ago and at the time I was in my early twenties and didn't think much of it. But a few weeks ago I had a Pap smear which came back as high risk hpv and I was booked onto an appointment for a colposcopy. I had my appointment last week and have been so anxious. The dr that did the colposcopy said she needed to take two biopsy samples. I was squeamish and couldn't even look at the screen and maybe it was the anxiety but I suddenly felt the urge to go to the bathroom and asked the dr. if I can go to the bathroom straight away. In the bathroom I was having a panic attack and so stressed out. 
    I felt ashamed for having had hpv in the first place and to top it off being a smoker. I am waiting for my results but I don't know how long they will exactly take. I feel horrible and so scared since I'm a smoker. The dr. said I have to stop smoking and my husband has been trying to get me to quit but with the anxiety of this, having lost my job last year and generally being unwell, I can't get myself to quit smoking. I haven't told anyone other than my husband and one friend but I feel very lonely and secretly ashamed and blame myself. Just wanted to share. Sending everyone here lots of love and best wishes and health ️

  • FormerMember
    FormerMember in reply to jasminaoex

    Hi,

     

    After reading your post I understand, I had my colposcopy and biopsies done in october, following this appointment i was told i had CIN 2 and i then had a LLETZ treatment to remove the cells. I was also embarrassed about the fact I smoked I am 29 years old and I quit a matter of days after my procedure. Smoking does affect your immune system and means your body cannot get rid of HPV on its own, a nurse told me this after my procedure, if I'd have known 3 years ago when HPV was first detected I would have quit sooner. It does increase your likelihood of developing abnormal cells because of the affect it has on the immune system. I downloaded the nhs quit smoking app and used a vape to begin with. The first week was the hardest, but after that my sense of taste, smell and overall breathing felt so much better. It is so so worth quitting so try to give it another go :) 

    Do not feel ashamed I know exactly what you mean I felt so much guilt but all my headaches, anxiety and everything stopped since I quit. I used to get chest pains and all sorts and stomach pains, but it really goes to show how much it can affect your health. I found distracting myself or going for a walk whenever I had a craving really helped! I'm sorry to hear you lost your job and are struggling but you can do this, I believe in you! :)