My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • Hi Elle,

    We're all here to help anyway - it's only natural for the nerves to kick in though. Just remember, you're in the best hands! Wishing you all the luck in the world for tomorrow. Anything I can help with, let me know.

    Kat x

  • Thanks! I had the appointment this morning and although it was a little uncomfortable I wouldn't say it was painful. 
    He said it looks like mild changes for now so advised it would be a case of having another smear in a years time to see what's happening (as there is a chance the immune system will do its stuff and clear it)! Also had a biopsy taken to be on the safe side which will come back in 4/6 weeks, think I'll feel much better once that's returned and hopefully confirms what he said. 
    I am already feeling much better and reassured though. 
    So thankful for finding these groups though as it has really helped throughout the whole waiting process! xx 

  • Amazing news Elle ️

     

    For those who haven't seen, Scarlet Moffat has today put a video on her Instagram about her battles with abnormalities and what the LLETZ procedure was like for her. So amazing for people like her to be speaking out about this! 

  • Hi Kat, 

    I just wanted to let you know I got my results today and my Pap was negative. My OBGYN doesn't need to see me for a year. Giving thanks to God for this news right before Christmas. Trusting you and all of the other ladies here are doing well also. 

    -- Kristin
     

     

     

  • Hi Brunette, 

    I just wanted to let you know I got my results today and my Pap was negative. My OBGYN doesn't need to see me for a year. Giving thanks to God for this news right before Christmas. Trusting you and all of the other ladies here are doing well also. 

    -- Kristin
     

  • I had news of my smear coming back abnormal just before Xmas with low grade cells and tested positive for the HPV made me feel even dirtier.

     

    This is happened 2 years ago and was referred for a colposcopy back then I was so frightened that I avoided the smears completely even going as far as asking letters to not be sent out to me. Then in the December 2018 I found out I'm hiv positive as a result of rape and on meds for life. What are the chances of this being the Big C? Cos I've had to cut ties with my mother and her side of family due to them being mentally and emotionally abusive towards me and I only speak to my dad and don't have female friends. 

     

    I.am terrified my colposcopy is in 18 days time and I've never had one before. I rang the hospital the nurse told.me that the colposcopist will tell me if it's bad news there and then. Don't think I can handle any more bad news after the hiv diagnosis as my ex knew he was hiv positive and didn't bother telling me when It was good days of the relationship.

  • Hi Jann,

    Firstly I just want to say I'm sorry to hear you've been through such a hard time it sounds like you've had a lot to deal with. Secondly please don't feel dirty for having HPV this is something around 80% of woman will get throughout there lives but many do not even realise due to the body clearing it by itself, obviously this is the same for men who also carry it but they do not have the routine screenings like us to pick up on these things. 

    I had the same result from my smear back in November and went for my Colopscopy just before Christmas. When he looked he was able to tell me there that it just looked like mild cell changes (which my letter had said) and due to that they would probably leave it to see if it clears up by itself before taking any action, so another smear in a years time. Obviously a biopsy has been taken just to be safe. Cervical screening and the colopscopy's that follow are meant to be preventative and to pick up things before they can turn into anything more sinister, so please try not to fear the worst specially as your letter also said low grade changes. It's hard not to let your mind wander and think negatively though, it's exactly what I did but these support groups have made me realise how common this type of thing is. 
     

    I hope this helps put your mind at ease slightly, but please feel free to ask any more questions, or get off your chest any of your worries, the ladies in here are always happy to help. X 

  • I second what Elle751 says. Have a read what all of the ladies have said on here and hopefully they will settle some nerves and answer some questions. Any further questions, don't hesitate to ask.

    Your story is so devastating and I can't begin to imagine how you feel. As Elle said, 80% of women have HPV; often it can be dormant in your system and stress can flare it up positively in tests. I went through a really bad bereavement 2 years before my positive test, which I'm convinced was the cause. The psychological trauma of what you've been through may have flared the HPV in your system, but remember, most of us fight it off naturally. You're in the best place now being looked after by our amazing health system.

    As I say, any questions, the amazing ladies on this feed will try to answer. Wishing you all the luck in the world.

  • Hey Kat, 

     

    Thought I'd drop back in, hope you had a lovely Xmas and New Year. 
     

    I've just returned from my colposcopy appointment which was very easy and relaxing, over quickly too! 
     

    The lady examined me and said she can see what the smear confirmed so she took a biopsy and said it'll be roughly 4 weeks for results then asked me how I'd feel about treatment soon as I'd be looking to have another baby! 
     

    Abbi x 

  • What if I have got cancer cos I prayed for it to happen?

    There would only be myself to blame wouldn't there? 

    Feel even worse having to go to this appointment now that the lockdown has happened cos I feel like I'm also preventing cancer patients getting treatment they need?

    cos I felt like I needed punishing for cutting ties with my mother who I thought and believed was the victim and that I was the abuser when the truth is she was mentally and emotionally abusing me until I ended up saying enough is enough?