My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • Hi, 

    hope you are well and your Pap test went ok on the 7th?

    I have been reading these posts after having a smear test in November that showed I did not have HPV but some cell changes were seen (no more information with regards to grade) I am waiting to receive a letter for my colposcopy which should be within 8 weeks.

    I am confused as the guidance here is that if you test negative for HPV then you automatically get a letter telling you will get a smear in 3 years and no further investigation of cells. So I don't know how they can tell that my cells have changed as they are not supposed to check them after a negative HPV. Now I am scared that the nurse doing the smear has seen something and asked them to check for cell changes even if the HPV was negative?!?

    Does anyone have any advice or been through the same thing?

    mant thanks

    xxx

  • Hi Brunette,

    Sorry to hear your going through this worrying time. 
    I can't speak from experience as I did test positive for HPV and they found cell changes (I have my colopscopy in a few days), but I do know that if they are concerned or have found high cell changes they will try and see you within 2 weeks of your letter. 
    So try not to worry and just think it's better to get these things checked out and know exactly what's going on :)
    I hope everything goes okay for you xx 

  • Thank you for getting back to me and your words are reassuring!  
    I did think it sounded more positive after reading on here that some have been given a 2 week referral and I have a referral within 8 weeks, it was just because everywhere I've read it says that from March 2020 your cells only get checked for abnormality if you have a positive HPV result, maybe they are just being overcautious!


    hoping everything goes ok with your colopscopy in a few days and let me know how you get on xxxx

  • Hi Brunette, 

    Thank you so much for thinking of me. I do not have the results from my recent Pap yet, but my specialist did not see anything concerning otherwise she would have told me. I likely won't hear anything for few weeks unless I call their office. 
    I would consider your doctor to be very good. Your story is exactly like mine : HPV negative with mild cell changes and my doctor still did a colposcopy  just to be on the safe side. She's actually done two colps on me over the past two years. Please try not to worry. I think your doctor is just being proactive to keep on top of things. I have appreciated my doctor so much for doing this because she knows I struggle with severe anxiety and she wanted me to be assured I am okay. Please keep us posted as to how you're doing. I'm quite certain you will be okay, too!

    -- Kristin ️

  • Hi Brunette Worrier,

    Depending where you are depends on how your local healthcare deal with your smear. The HPV positive route before abnormalities is what is done locally to me. That's Liverpool, England. Other places in the UK are different, and I'm guessing from some of the terminology you're using that you're maybe from the US? It will be different again there. Honestly, try not to worry yourself. Given that you have an 8 week wait, it would suggest CIN1, and although you naturally panic in a situation like this, just remember you're in the best hands now.

  • Hi Kat, 

     

    I have been reading through all the chat to see if there was anything that fitted my situation a little more and this did so jumping in now, if that's okay? :)
     

    So, firstly, I am 27 years old and I have been having regular smears for the past 3 years due to the HPV being positive, in the last few months I have been a little worried because I knew something wasn't right down below and I was bleeding during and after sex, so I rang the GP, the man checked me over and said my cervix looked healthy... however, my swab results came back showing I had BV? So I was put on antibiotics to clear this.... I knew my next smear was due so I just waited anyways! 
     

    Skip to now... I had my smear test on the 2nd December and received my letter on the 16th December, normally I would receive a letter with a full on break down of the HPV etc but this time it was a letter from the hospital telling me I need to go in two weeks!! The letter doesn't specifically say what it is or what I need but the leaflet included is for a "Cervical Punch Biopsy" , so, my guess is that's what I'll be having?! 
     

    Anyway, I'm going to try keep busy, still WFH, have two young children and Xmas is here so it'll keep my mind off it! 
     

    I'll check back in after my colposcopy in the New Year.

    Thanks for reading x 

  • Hi Cooper93,

    Similar situation to me last year. I've had two of the biopsies in the past year, honestly nothing to worry about, although naturally you'll be panicking. For a 2 week appointment, you'll either have CIN2 or CIN3 grade abnormalities; both are referred to as moderate. Try to remember abnormalities aren't cancer; abnormalities can develop into cancer over a long periods of time. Abnormalities also can get better on their own. My abnormalities were initially found to be CIN2. Due to you being late 20's, if you are CIN2, they're likely to monitor you every 6 months, which is what happened to me. CIN1 and CIN2 are natural occurances for some women our age, therefore they are reluctant to offer treatment to under 30s, as your body can naturally fight it off. Monitoring is purely to keep checking that your body is fighting it and that it doesn't go up a grade or get worse. If you are found to be CIN3, you're likely to be offered treatment. Typically this is a procedure called LLETZ. 

    The colposcopy and biopsies are very straightforward. It's slightly uncomfortable (but wouldn't say painful) and you might get period pain like cramping afterwards. I didn't have them the first time, but did the second time.

    You're in the best position being under the specialists - the hospitals have amazing teams! My last appointment has now come back with a downgrade of CIN1.

    Wishing you all of the luck in the world. If you have any questions, we've got some amazing women on here to answer anything you need. 

    Kat x

  • Hi Kat, 

     

    Thanks for the reply!  

    Strangely, I received another letter through today confirming it's HPV with a 'low-grade dyskaryosis' so I don't feel too bad about it now, luckily it's not too long to wait! 
     

    Silly me said to the woman who did my smear "hopefully that'll be it and I won't be back for 3 years" bloody jinxed it didn't I

     

    Abbi x 

  • Hahaha, I said the exact same at mine last November - "See you in 3 years"!!!! Typical.

    Low grade is CIN1, so it's likely they want to properly check it definitely is CIN1 via a biopsy. They'll then monitor you every 6 months.

    Hope it all goes well Abbi x

  • Hi Kat,

    Thanks for sharing your experiences. I have my colopscopy tomorrow after waiting just over a month due to my smear finding HPV and borderline cell changes. 
    What you've said has been reassuring, I'd been alright but now thats it's tomorrow the nerves have snuck in. So thank you for sharing! X