My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • The amount of time they've left you for an appointment would indicate you have CIN1, the lowest grade abnormality; don't get me wrong, it's still scary.

     

    I'm guessing from your earlier comment about HPV vaccine in school that you're younger than 30 (I'm 28 and was one of the first years offered this). If this is the case, they're likely to want to take a look in your colposcopy, take a biopsy and then monitor you every 6 months. If you're under 30, they're reluctant to give treatment for abnormalities unless it is CIN3 as your body can often fight off HPV and resolve abnormalities.

     

    Have you not got someone to go with you to your appointment? Mum, sister, close friend? You can choose for them to go in or wait outside. I brought my mum in with me for my first colposcopy and although she just silently sat in the corner and done nothing, it was mentally just what I needed to have her there with me. Don't worry about them seeing anything down there, as none of that will be in the eye line of where they're sat.

     

    With regards to sex when you have it, it can't "make it worse" as you say, but he will now have the HPV virus if you didn't use protection (still possible even if you did use protection). There isn't a HPV virus test for men, which is another way it spreads from female to female. There are more than 100 types of HPV virus - some cause cancer, some cause genital warts, etc, and the vaccine doesn't protect against all types.

     

    Hope this helps.

  • Hi thanks for your reply. Yeah I'm 27 and as I've still got a little under 4 weeks to wait for my appointment then it obviously can't be too serious. My mum has already told me that she's going with me but she also doesn't drive so we'll be relying on public transport and with the current restrictions ongoing, I'm not sure if she'll be allowed in the room with me but just knowing there's someone else there will be a comfort for me.

  • Hello everyone,

     

    I was a silent observer of this topic for quite a long time now but I feel in need to talk right now.

     

    In late February this year I got my smear test which come back with HPV positive and low grade dyskaryosis. I was about to get my colposcopy appointment in less than 4 weeks but because of Corona situation I got letter that it must be postponed to another time. So finally I will get my colposcopy appointment this Thursday 13th, and what I want to say is I'm super anxious about it and can't even think about anything else.. from the time I got my results abnormal - so 6 months already. Feeling depressed day after day. I read all of your posts but it still doesn't calm me down.. I think that after all that time it could develop into something much worse :((( please help. Also, first time in years I missed my period , it's late 2 weeks already and doesn't seem likely to come. I have no idea what could be the reason of that. I've done 4 tests all negative. 

    I will be greatful for any support

  • Stress can delay periods and it sounds like you are very stress at the minute (which is completely natural).

     

    Honestly, the colposcopy is nothing to worry about at all. The nurses do it all day every day - they've seen it all! They try their best to relax you as much as possible. I was terrified going for my first appointment, no matter what I'd read, so you're likely to be similar - it's natural for us to do this. I didn't find the procedure painful, just very strange. It's quite similar to a normal smear, but with your legs in stirubs and a lady sat between your legs looking inside.

     

    You will be imagining the worst, but honestly, if you've been told you have CIN1 in Feb, it's likely to be the same, or may have developed to CIN2. Best thing is that you're going to see them Thursday and will be in the best hands possible.

     

    Let us know how you get on and if you have any questions we can help you with, there are lots of lovely ladies on this post that will be more than happy to help you

     

     

    Kat x

  • I can't offer too much help as I haven't yet had mine, still got 3 weeks to go but what I can say is that I totally understand how you're feeling, I've done nothing but worry about what might be wrong with me since I received my results in April. The best piece of advice I can offer is that, if it was anything really serious, they wouldn't have cancelled your appointment the first time. I read that it can take upto 20 years on some occasions for precanceous cells (if there are any) to become cancer and I know it's frustrating when other people just keep saying to keep calm and don't worry but really, it's the only way to get through it until the appointment date. My results didn't even tell me what the cell changes were, just that there were some, along with high isk HPV. Just remember that you're not alone in going through this and think about it like this, you know there's something there all because you were brave enough to go for a smear so many women don't. They could be going through the same problems and not be aware. Something reassuring to keep in mind is that CIN isn't cancer and may never even become anything, it's just that sometimes, it does but with these procedures, as stressful as they are, they have the ability to save lives. I hope it all goes well for you on Thursday and do keep in touch to let us know how you get on. As for the missed period, I'm no expert but it could be caused by stress. Hang on in there, not much longer to go now.

  • Thank you both for reply.

    I feel like I'm slowly going crazy :D Anyway, I got two days to go, today morning has small panic attack but now I'm fine, I feel like I just need to get it done and then worry (hope I wouldn't have to worry anymore). 

    I will tell you everything after my colposcopy and I wish you all the best luck with yours :) everything will be okay ♥️

  • You may never have to worry again. Once you've had the appointment and know what it is, you will feel a sense of relief. I think it's the not knowing that we really fear. All the best for Thursday.

  • Hello,

     

    I'm back here to tell you about my todays colposcopy. 

    And honestly- I thought it's going to be much much worse. 

    My anxiety was high, but after initial talk with my doctor everything was more clear and I wasn't that scared anymore. 

     

    Doctor took one tiny biopsy to check my cells further but he said that everything looks fine and it's only a small area so nothing to worry about :) I will get my biopsy results in around 4 weeks, but I'm not scared anymore, because even if it's going to be something scary then I know I will get a proper treatment. If any of you have any questions regarding the procedure please ask. And please don't worry, it's really not as scary as we imagine it :) all the best for you ♥️

  • Hi there, thanks for getting back and I'm glad it went well for you today. I hope your biopsy results are something unconcerning. It is knowing that I may need to get a biopsy that scares me, I don't know how I'll cope with the 4 week waiting for results and I'll be terrified of what the results to a biopsy might show. I'm still a bit scared about going for my colposcopy but not as much as I was when I first got my results. I've never felt a fear so intense about anything before, somedays the fear is really bad and I can't think about anything and other days, I'm fine and believe I'll be ok. I just want it over now. Good luck with your results.

  • Hi Jen, 

     

    Did you get your colposcopy appointment? How are you ?