My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • Oh god bless you, you must be in a real state. Your brain automatically focuses on the negatives, just try to consciously focus on the positive things. You're being cared for under a team who will be doing the best they can for you and you've had the LLETZ procedure done, so action is taking place. But everything is completely out of your hands and with the professionals. Imagine you hadn't gone for your first smear - you're in the best situation you physically can be in (although it still feels the world is against you).

    I'm sorry I can't be of any more help, but am hoping and praying you get good news from your results. 

     

  • Hey so I received the same letter as you high risk HPV was found and changes in cells were found and they weren't specific. As soon as I went for my colposcopy yesterday the first thing she said was that there were low grade changes. They also tend to get you a 2 week referral instead of 8 week if it's urgent so try not to worry. I sound ridiculous saying that as I worried for 3 months then got the procedure yesterday and it was absolutely fine. She even said it looked fine enough not to take a biopsy. Let me know how you get on x

  • Thanks for the reply, I'm still waiting for my appointement letter and this is coming on to 10 weeks now since I got my results. I understand everything has been shut down because of the virus but I'm getting so frustrated with waiting. I am a bit more relaxed now becasue all I've done is research what it could be, I even researched cervical cancer symptoms to reassure myself that I don't have it, statistics helped me understand the likelihood of being ok. I also spoke to an expert from the Jo's Trust charity who did actually explain to me that if I'm waiting 8 weeks for an appointment then cell changes are probably low grade and high risk HPV means I have a risk type associated with pre-cancer, which I'm a bit confused by as I had the HPV vaccine when I was at school. I don't think my mind will be put to rest until I get my appointment. I have contacted the clinic and they confirmed I'm on the waiting list and letters are starting to be sent out but that was 2 weeks ago now. I just hope I get one soon so I can start moving forward. I will let you know the outcome when I finally have it.

  • Yeah mine went on almost 9 weeks so I just phoned up and said I was extremely concerned but I also had pain in my pelvic area so they got me an appointment for 2 weeks later. Now firstly I'm going to say, I know exactly what you're going through and it's *** horrific. I worried for 3 months and was in tears most nights for a procedure that lasted 5 minutes and was told I had low grade changes and no need for a biopsy. Now I'm not coming on here telling everyone they're gonna be okay cos I know that's not the case but I promise you if there was anything concerning you wouldn't be sitting waiting this long. The whole idea behind smears and colposcopys is prevention more than it is detection of actual cervical cancer. The reason I'm coming back on here to reassure you is because I wish I had someone doing the same for me haha! Let me know if you get a date set. Also I had the HPV vaccine at school but the test picks up any HPV, the vaccine we got protects us against the most common high risk HPVs. So don't worry too much about that. 

  • Hi everyone

     

    Just found this subject thread after having a colposcopy yesterday at hospital with a transvaginal ultrasound and cervical biopsy. So if it helps anyone, here’s my perspective on the procedure.

     

    To give you a bit of background first - I’m 47 years old and post menopausal since July 2019 but this was only diagnosed very recently (a very long story which I’m not going to bore you with here). I was on the Cerazette POP pill until January 2020 and since I started taking it roughly 12 years ago, my periods completely stopped (which is one of the side effects of taking it).  I had a recent bleed completely out of the blue so my GP referred me to hospital. I know everyone is different but to be completely honest, I found the experience just about bearable but the actual biopsy part very traumatic / painful but the doctor explained a couple of reasons why. Firstly is that many years ago, I had an endometrial ablation (where the lining of the womb is thinned / removed) as my periods were horrendously heavy (they started when I was only 10 and in my final year of primary school). 2nd reason is that I’ve never had children. He didn’t explain why this made the cervical biopsy very painful and I didn’t ask, I just wanted to get out of there ASAP !!! I had to have a local anaesthetic which helped slightly but I still found it painful. The nurse who was in the room was amazing - she held my hand throughout and kept me talking. She also asked if I’d rather know when something was about to happen and I said yes (some people prefer not to know but it helped me to prepare myself). So she was able to tell me to take some deep breaths at specific moments and reassured me at all times. I’m now waiting for the biopsy result and may need a hysteroscopy (camera thingy) but I’ll just have to wait and see. They told me that I have a cyst on my left ovary and they took some blood to test but doctor said he wasn’t too concerned about it at this point.

     

    I hope I’ve not frightened anyone by my experience but just wanted to be completely honest. Due to the COVID 19 situation, I wasn’t able to take my husband with me (or anyone else for that matter) for support so had a good cry in the car park. It was quite painful / uncomfortable sitting afterwards but I took some pain relief and waited until it had taken some effect before I drove home.

     

    Best wishes xxx

  • Hi Kat12

     

    Thank you for sharing your experience with your colposcopy. It's been very helpful to read. May I just ask how long of a wait it was between your pap smear and the colpscopy? Thank you. 

  • I had my smear the end of November - testing has changed slightly where I live, so the wait for results is 4-6 weeks. The clinic received my result back Christmas Eve (Tuesday) and rang me the day after Boxing Day asking for me to book in for an emergency colposcopy. As I hadn't had my result back in the post yet, I didn't have a clue what was going on and everyone seemed to be off over Christmas, so couldn't get any answers, so the days following were absolute hell. Apparently if your result is HPV positive and CIN 2 or 3, you must be given an emergency colposcopy appointment which means you must be seen within 2 weeks of them receiving your result at the very latest. I was booked in on the final day they could possibly see me, which was 7th Jan (Tuesday). Results showed CIN 1/2 borderline, so must be seen every 6 months. 

     

    May colposcopy was positive and CIN 2. November appointment booked in.

     

    Is there anything I can help with at all? Any questions could possibly answer?

  • Hi Kat12

     

    Thank you so much for your offer of support. It really is lovely to feel how sincere it is. 

     

    I was just wondering how long it would take to get a colpscopy. I am planning to get something on my cervix checked out that feels concerning to me (a rough patch that has bled a couple times). It could be nothing, but I'm feeling anxious about it. Thank you. 

  • How old are you? I ask, because abnormalities for people under 30 are common and usually sort themselves out.

     

    I'm 28, which is the reason I'm being monitored every 6 months rather than having any treatment. If it sorts itself in the next 2 years, amazing. If it stays the same, they'll treat it when I get to 30. And if, god forbid, it got worse, I'd immediately have treatment. What did your smear results come back as? 

  • I finally received my appointment letter today. It will be at 10.30AM  on 1st September. I'm so relieved to finally have a date that I wish I could throw a party! But I am also so nervous of what they might find, I just want it to be over with now. The only problem is that they are sending me to a hospital outside of where I live and as I don't drive, I have no idea how I'm going to get there for that time but I'm sure I'll be able to figure something out. I've also "been" with someone twice since waiting for the appointment, you don't think that would have made anything worse?